achy squishy top of head??

[not_all_tonsils_are_in_your_throat]

Has anyone else felt a sore squishy spot on top  of their head?  My daughter is post-op 5 years and in consult for a probable re-do now that symptoms have returned.  We can't figure out what or why she sometimes develops fluid build up under the scalp up on the crown of he head.

Just wondering if anyone else has experienced this?

[selmaS]

Hi...well I pray Dr B is able to offer u and ur DD some help.I know CSF pressure is expected to be elevated with PTC, but I have heard a few that had low pressure as well......I am not that well informed on this, and I look forward to updates from u .

I am not sure if another member has had this....please be patient for a reply....the forum slows down a bit during the holidays.

Best wishes
"selma"

[not_all_tonsils_are_in_your_throat]

The DR that has been considering a re-do (DR Bejjani)  ordered a LP, haven't heard official results, but the opening pressure was only 18 & closing 12 so I am doubting a Pseudotumor cerebri... but was curious if others have had this symptom.  Her headaches are worse on the days she has a squishy spot.

[selmaS]

Hi...some will develop PTC or excess fluid ... hydrocephalus after a decompression surgery.
A LP  is done to see what the pressure is.....and this wil cause many symptoms similar to chiari symptoms.

We do have a Health Page on Pusedotumor Cerebri....intercranial hypertension.

Some will need a shunt to help drain the excess fluid  away.....it is not known y the body creates too much fluid or y the body can not absorb it.

I am not saying ur DD has this, just it is a possibility.There r several members that have had this happen sooner after surgery and  may be able to share their experience with u.

Good luck
"selma"