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7467495 tn?1393445587

answers for chiari

Hi my name is silvia I am new to this I have chiari malformation and I would like to know how many appointments befor surgery I had 2 more MRI done Monday the report said some thing about reversed cervical lordosis in the upper cervical region and diminished csf flow posterior to the cervicomedullary region I have no idea what that is I need more answers
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620923 tn?1452915648
COMMUNITY LEADER

If u r going to go to Aurora u might as well try to see Dr Oro as he is one of the country's top Chiari NS's....and trust me there is a big difference btwn a NS and a Chiari specialist.

Yes, chiari does affect sleep and I take antihistamines that are helping me sleep I tries sleep meds and they did not help....I am also post op so I am sure surgery also changed some of it, but I was still having sleep issues after my surgery too.

U may want to see if u sleep on an incline if that helps with the way ur head feels...for some it is ICP and laying flat adds to the pressure.
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

It is not how many appointments but what all u r tested for and do u need surgery now?

The reversed cervical lordosis is the curiture  of ur neck...some have a loss of lordosis....those with a reversal can indicate whip lash.
Were u in a MVA ?
Diminished or an obstruction to CSF flow is what we look for to see if surgery is warranted.Then u look to see if u have a syrinx, disk issues, ICP, POTS, Sleep apnea, Ehlers-Danlos....vitamin and mineral levels....

The most important thing aside of ruling out ALL related conditions is to make sure u have a true Chiari specialist.

Healing from this surgery can take long, and even longer if the Dr is not well informed or experienced.

So do research Drs ...use the list we have, and take ur time to see how surgery may benefit u, cuz once u have surgery it will be some time b4 u can lift ur kids...
Helpful - 0
7467495 tn?1393445587
Not sure what  mva is but the surgeon in Denver co said he need those results in befor scheduling surgery. He sent me to 2 more specialist for balance problems and memory lose  also don't know what to expect from that but the csf flow is diminished and the lordosis is reversed that is what the report says
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620923 tn?1452915648
COMMUNITY LEADER

  MVA = motor vehicle accident

Oh I am not familiar with a Dr in Denver, I know of one in Aurora ....
Helpful - 0
7467495 tn?1393445587
I thought that's what it stranded for but was not sure.and the answer is no I have not.and I go to Dr Steven ojemann he is in aurora co I believe
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  I am not familiar with that Dr, is he a Chiari specialist or is that ur PCP?
Helpful - 0
7467495 tn?1393445587
I am also taking pills to sleep I have a lot of trouble they worked for first days but not any more does that have to do with chiari also some nights I will not sleep at all do to very painfully head aches my head feels like it's pumping and about to explode is it normal to have those painfully head aches that bad or it's just how chiari goes
Helpful - 0
7467495 tn?1393445587
He is a Neuro surgeon I was referred  from cheyenne wy to him I have  only had 1 app with him I keep contact with him through email he is located inside the hospital.
Helpful - 0
7467495 tn?1393445587
Thanks I will go ahead and try contacting Dr oro and try sleeping on an incline maybe it will help  it does make sense ThAnk you for your answers.
Helpful - 0
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