I went to TCI, but as a first time patient...so I do not know how they will handle u and meds u r already on for a previous surgery...I did have a roommate that was there for a re-do that another NS had done.,
That said, I did have to give a list of all meds...dosage, how long I was on it etc....so I am sure they will look at ur meds.
How long since ur surgery?...could ur CSF issue be from scar tissue?
I am sure TCI will look at the big picture as they have their own orthopedists and NL working from the same offices....
Good luck and do keep us posted : )
thank you once again Selma for all your help and taking the time to answer my questions.
i had my first decomprission in Jan. 09 and almost all my symptoms went away until about 3-4 mos. after surgery when they started returning. an MRI showed CSF was being obstructed but not totally and crowding again at the foreman magnum. most likely scar tissue. NS did not open the dura and sew in a patch just removed skull bone and back boney structure of the C1. Doctors are trying to decide if second surgery would help my symptoms or not...
i have read about Dr. Di who used to be at Cleveland Clinic and he does endoscopic chiari surgeries and was thinking of seeing him to see if he could go in and explore the area endoscopically and if scar tissue is causing the problem see if he can take care of it endoscopically.
the doctors here just keep adding drugs to take for symptoms...i have had symptoms since before surgery and drugs and now they are saying maybe drugs are causing rebound pain but the only new pain i am having that i did not have before surgery is nerve pain and pulsatile tinnitus and waking with wicked throbbing headaches that go away once i am up walking around for a bit, about 20 minutes then they go away...
Hi Cathy...I have heard that the procedure u had is less invasive, but many times needs a redo as it does not help...and these issues reappear.
It could be scar tissue or what ever was there to begin with.....they used to do mos t of the bony decompressions on children to avoid opening the dura...only to have to redo them...
This could just explain y u r having the issues u r.....I understand now.,
I pray we all hear from Dr Di soon...there r sooooooo many of u waiting on him.