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Chiari Malformation Community
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1759188 tn?1324678308

color purple

  i just wanted to share this with all of you....   i have been wearing purple finger nail polish for about 4 months now,  i have been asked numerous times why i don't change the color, my answer,   "it is the chiari malformation color "  wow do i get strange looks !!  lol  i think i have made so many people aware of chiari because of my toes and fingers
10 Responses
1903798 tn?1333905288
:) opi has a purple called purple for a purpose ... Love it
620923 tn?1452915648
COMMUNITY LEADER

  Ne thing we can do to raise awareness is great !! Thanks for sharing : )
1827123 tn?1383865276
have had my toes done purple for a long time now, I dont wear it on my fingers...I wear it off too fast!  My girls are great at coming up with new designs for them.  I have to try to find the OPI color, my small town doesnt seem to carry it - guess I'll order it.   I had my ribbon on Friday and was at the bank. ONe of the bankers greeted me (she was wearing a purple blouse) and asked me if my ribbon was for suicide prevention?  I blankly stared at her for a moment and stated no, it was for chiari - a neurological disorder....which she returned with a dazed stare and finally said Oh, have a nice day.  Does everything fall under the "purple" awareness color?
1903798 tn?1333905288
Alzheimer's, add, chrones, Cystic fibrosis, eating disorders, epilepsy, fibro, lupus, some cancers, sarcoidosis, pulmonary are just a few there is a lot if you google purple ribbon you will find a list:)
1759188 tn?1324678308
  or purple is for Chiari
1759188 tn?1324678308
  anything we can do to raise awareness to chiari
620923 tn?1452915648
COMMUNITY LEADER

  There is the 5th annual Walk for Chiari this Sat.....our color is purple, and yeah we share it with other conditions but we have a zipper added to our ribbon......

  I always ask in a prayer thread we all wear purple for the member having surgery, to show awareness for chiari and show support for the person having surgery...if we wear purple enuff  we may get asked y?
1759188 tn?1324678308
  selma where is the walk ?  i love the zipper comment  
620923 tn?1452915648
COMMUNITY LEADER

  There is a link that u can go to and look for an area near u, I think the closest is an hour away for me....nothing I can get to....'

We all consider ourselves Zipperheads post op....and we have a thread to post when u r newly Zipped.


I will look to see where the thread got to with the walk info, but u can also look for it using the search this community feature.
620923 tn?1452915648
COMMUNITY LEADER

  Here is the link to last yrs...I am sure u will be able to find this yrs info from this.
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620923 tn?1452915648
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987762 tn?1331027953
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