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Chiari Malformation Community
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Avatar universal

do hormones affect Chiari symptoms?

Hi everyone -
We have been tracking Matti's symptoms and daily log of food, water, activity etc.  I am noticing that her symptoms - particularly the headaches, seem to be worse about 10 days before her period - is this true for anyone else with chiari or is it just a seperate issue?
Thanks,
Kim
11 Responses
620923 tn?1452915648
COMMUNITY LEADER
HI Kim,

Back when I was still getting a monthly, I did notice an increase of HA's around that time.....many chiarians do have pituitary issues and hormone involvement.....and we r prone to autoimmune issues as well.....and they can affect hormones like Hashimoto's thyroiditis.....

Has she been checked to see what her hormone levels r, or do u feel this is more just a monthly issue for her?

"selma"
Avatar universal
Hi Selma,

Part of the problem with being newly diagnosed is trying to figure out which issues are Chiari related, or Chiari amplified, or just typical teen issues - It does not surprise me to hear that monthly cycle issues may be amplified by the Chiari - but now what?  Don't want to put her on hormones (birth control) as doc has talked about - she is only 13~
620923 tn?1452915648
COMMUNITY LEADER
I totally understand...and as a mom I would feel the same as u....u may want to try natural ways to reduce inflammation around that time...we do have a thread in the Health Pages on anti inflammatory foods.....she should drink plenty of water.....and some caffeine may also help with extreme HA's...
http://www.medhelp.org/health_pages/Neurological%20Disorders/Anti-inflammatory-Foods/show/1023?cid=186

I would also want to have her dr look at what natural supplements may help with ne other symptoms she may have.

Good luck
"selma"
1159737 tn?1286517257
I get my period twice a month, and my headaches DO get worse about two days before. It starts out being just a little bit worse, then when I actually get my period it turns into a full blown migraine, which lasts about three days, then slowly tapers off. I also get very ill, like I have the flu. Needless to say getting my period TWICE a month leaves me with about one week of being kind of ok.  I have never tried birth control for it because I smoke, and smoking increases your chance for blood clots when taking birth control.  I wish I could tell you somethinng that worked, but I haven't figured it out yet.  But yes, my HA gets worse at that time.
620923 tn?1452915648
COMMUNITY LEADER
Hi...I also used to get my monthly 2 a month too...I later found it was most likely due to a thyroid issue and I went into menopause early.....

Deff ask to have the following checked and do not listen to it is intermittent bleeding as I was told...it was a reg flow!!
TSH, Free T3 , Free T4...TPO antibodies.....

AND try to stop smoking as it constricts ur vessels which will make ur HA;s worse.

I pray u r able to quit soon : )

"selma"
1088046 tn?1272285396
wow, i always had mine twice a month, too! Now i have 3 every 2 months. I have no thyroid issues or other causes that we have found.
Strange
620923 tn?1452915648
COMMUNITY LEADER
I was never aware of the thyroid issue and like chiari when tested I was told I was "normal" ot with in range...BUT they only tested teh TSH which can appear normal...the  issue we have is autoimmune so just testing TSH is not a complete look and does not mesn u do not have a thyroid issue.
1159737 tn?1286517257
What is TSH?  I have asked them to check my thyroid because I can't believe all my problems come from Chiari and syrinx.  
620923 tn?1452915648
COMMUNITY LEADER
TSH is thyrotropin: anterior pituitary hormone that stimulates the function of the thyroid gland .

1159737 tn?1286517257
Okey dokey you medical book on legs LOL - thank you! :)
620923 tn?1452915648
COMMUNITY LEADER
U r welcome : D
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