My name is Patrick and Im 29 years old. I was recently diagnosed with syringomyelia a few months ago. Unfortunately the neurologist that found it was not very helpful in describing it to my family and I in any way. Even when we asked her where it was and how big it was, she only described it as being too small to do anything about. After reading up on it some, it says that some cases have been caused by a traumatic injury. At the end of 2003, I was in a very bad car accident that left me with a severe case of whiplash among other injuries. I was under chiropractic care and physical therapy for 3 years before released. Since the car accident, I have had chronic pain in my neck, shoulder, back, hips, legs, severe headaches, my eye sight even gets blurry at times, as well as other symptoms. I attributed all these symptoms to my car accident, but now I am being told if could be from the syringomyelia. After seeing my chiropractor for the past 7 years, and him being really the only dr that has provided me with any relief, even if only for a short period of time, Im being told not to see him anymore since any slight jerk of the neck can cause it to grow. They say not to add any extra strain to the neck, but being 6'5, almost everything I do adds strain to my neck. Currently I do not have health coverage, and the 2 doctors I have seen have no experience with this disease, and I feel like I am being taken just for my money. When I told the one doctor I have been in chronic pain for years, he just looked at me like I was crazy. I am a cosmetologist, and being so tall requires me to contort my body just to cut hair. i am afraid me doing this may cause it to get worse, and eventually I will not be able to do this for a living. I was put on a new drug called Vimovo which is a combo of naproxen and prilosec, which has done nothing for the pain, and they were giving me small doses of percocet 10 mg (about a 5 day supply at a time). Even the combo of the 2 hasnt helped much with the pain. Can anyone in New Jersey point me in the right director to a doctor that has knowledge of this disease and that will actually help me manage the pain so I can try and go about my life as normally as possible? I know I am not alone in this disease, I just dont wanna feel like I am crazy by doctors since most of them are not educated in this disease..