Oneof my friends is getting ready to have surgery. She lives in texas and I will ask her who her specialist is... may take me a couple of hours. I'mnot sure she in our forum. YOu are definintely on the right track looking for a specialist...that is so important. YOu will be in my thoughts.
Hi...did u look at the list of Drs in TX we have posted? It is possible that u may have to travel to get to one as they r not as prevalent ans those of us with chiari.
U mentioned u have a CSF obstruction and a retroflexed odontoid...make sure they rule out syringomyelia in all areas of ur spine thoracic and lumbar as well as cervical, and tethered cord, and disk issues, sleep apnea, ICP....ehlers-danlos...as these can affect ur recovery post op.
were can i get that list i tried looking for it but wasnt able to find it....
I just bumped it up so it should be on this first page of the forum, other wise, do use the Health Pages link at the bottom of this page.
R u using a phone to access the forum or a comp?....with a phone u may not see the entire forum.
comp but still cant find it..............think im missing something