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1755089 tn?1376053555

kaleidoscopic vision

Today I had a terrible experience. My vision went all weird like if I was looking in kaleidoscopic glasses. Now I have a headache. Is this common with Chiari patients?
6 Responses
620923 tn?1452915648
COMMUNITY LEADER

  Hi Drew,....sounds more like a migraine with aura.....

I did have weird vision b4 surgery but it was only in my peripheral vision it looked like a window with raindrops running down it...but just out the sides of my vision....it was very weird and I have not had it since.

Since u have a HA afterward, I would say it is a migraine with aura. JMHO
1755089 tn?1376053555
Thanks It's a possibility! It's just realy disturbing and scary!

I never had something like that happening to me before. But there is so much weird stuff appening to me that it should not supprise me!

I don't understand how the best answer got up there!

620923 tn?1452915648
COMMUNITY LEADER

  When u come back to a thread u start, there is a place for u to select the best answer...many times it does not fit as there is no best answer....lol...if u did not mean to select that u can go to the bottom of this page and use the contact us  link to let the MODS know as only they can change it.

I agree this can be scary and and frustrating as we have no idea what it is and who to ask.....
Avatar universal
I had a ton of vision issues before surgery, and when they started occurring along side my headaches my doctor sent me to an ophthalmologist and ordered the mri that would diagnose my chiari. When I went they said I had a nerve in my eye that was stuck in the ON position that was causing all my vision issues.I got the chiari dx the next day... and that went by the wayside. Post op I couldn't look at a cpu for 3 weeks and couldn't tolerate florescent lights at all... All of this has since resolved but at the time it freaked me out. Pre op? If I closed my eyes I got that kaleidoscope right away.  
Avatar universal
I have C1M - 12 mm.  I've had a couple ocular migraines and that's what it sounds like.  No headache, just prism like images and it lasted for about 20 mins.  I first noticed the room seemed to get darker..so weird.  Getting ready to schedule surgery -- hoping for a march date.  Mixed emotions for sure - but am looking forward to getting rid of headaches, and so many sensations it would bore one to death to hear about.   I suspect I have come to accept how I feel as normal -- will be interesting to see improvements in areas I've come to accept as such ;)
620923 tn?1452915648
COMMUNITY LEADER

  When u do get a surgery date , post in our surgery date thread so a prayer thread can be posted for u....keep us posted.
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