Aa
A
A
A
Close
Chiari Malformation Community
5.18k Members
1679858 tn?1346768781

lump in throat

Hi all,

Recently, I have been getting this lump feeling in my throat (the same feeling you get when you're upset).  It does not affect my swallowing.  I know that trouble swallowing can be a serious symptom of Chiari, so I worry that this could be the start of something.  I also realize, and hope, that it could be caused by anxiety and stress, and I'm not sure how to tell the difference.  I will be going to an ENT soon, but any input would be appreciated!

Thanks, Heather
19 Responses
620923 tn?1452919248
COMMUNITY LEADER

  Hi...in addition to what u listed it can also be a symptom of GERD/acid reflux...many with chiari also have that as well....

May I ask, do u get an odd sensation when u sing too?....just wondering since u said it is like a lump feeling when u r emotional....

    "selma"
Avatar universal
Singing?
1679858 tn?1346768781
Hi Selma,

This lump sensation does come and go, so this is why I feel it may be anxiety...however, I do get the feeling that I need to burp when it is really present, so you could be right!  As I have mentioned before, I have a 17mm herniation that seems to have room, with no hydrocephalus or sprinx.  That said, I do get some symptoms, such as the throat lump, but also a dull ache has begun in my arms and legs (mostly arms and shoulders).  This again, could be anxiety...I just don't know, and sadly, I don't think my doctors really know either, with the exception of the NS that I can't just run to every time some new symptom pops up that isn't concidered too serious.

Again, your imput is so appreciated!!

Heather
1679858 tn?1346768781
Oh, and as far as the singing...not really any strange sensations, sometimes a bit of a vibration, which is kina weird, I guess, haha.
Avatar universal
I also have the lump feeling every once in a while...started a few months before my second surgery. It hasn't gone away, it sometimes makes me go into a coughing fit because whatever I swallow goes the wrong way. I have told my NS and my NL, but they did not seem quite too concerned about it, I guess, until it probably causes major problems like difficulty in breathing and swallowing?

@ Selma: funny you ask about singing, but the lump in my throat does affect my "singing"
620923 tn?1452919248
COMMUNITY LEADER

  Hi....when u say the lump in ur throat affects ur singing...what do u mean?

It can be GERD/acid reflux...or it can be chiari affecting u....

When it affected my singing, my throat felt like I had spasms...and my voice was gone, nothing was coming out....and it felt strange like when u cry or get emotional, this is y I asked this of Heather....I had no idea it was chiari and b4 I got my dx my DD thought I was just lip singing in church...I felt bad, but I could not get nething out.
Avatar universal
My voice is just gone in the middle of some notes...then becomes all croaky...and then I "choke" somtimes when it is really bad...thus, I stopped singing. ;)

I seem to think, though, that it is just very mild at this point and am worried it will become worse as I grow older.

I am positive it is not acid reflux...and have concluded it is from Chiari. However, like I mentioned earlier, my docs aren't that concerned yet, he just said to give him a call if it gets worse.
620923 tn?1452919248
COMMUNITY LEADER

  That is how mine started...just spotty at first....and them raspy ...

I also had a cough that I would get if and when I laughed...I would start to cough then gag...it was awful...
1679858 tn?1346768781
What I don't get, is how can you have symptoms, such as lumps in the throat,bad singing voices, haha, or slight pain/aches in arms and legs, ringing and fullness in ears which my ns said are not a chiari symptoms, if the MRI shows lots of room around the Chiari herniation with no sprinx or hydrocephalus?? Anyone? Help!!
620923 tn?1452919248
COMMUNITY LEADER

  Hi...well, where did they look for a syrinx...did they do a full spine MRI?..Too many Drs only look in the cervical spine for a syrinx, but they can be found in the thoracic and lumbar spine...plus, u could have tethered cord, or a retroflexed odontoid...a related issue and all they r looking at is how long is the herniation...that is not the only factor in if u will have symptoms.

Did they do blood panels on u to check all ur vitamin and mineral levels too?
1679858 tn?1346768781
Thanks Selma! That was my biggest question, actually, whether they should look further down my spine...I just had a C-spine MRI in late January.  It did not include my thoracic or lumbar!  I will insist on this if these aching symptoms persist!

I believe I have some older posts from you with this type of info...I will definitely bring it with me to my next appointment -- I am tired of walking away from appointments with even more questions because all the answers have been so vague!

You are a great help and very knowlegable!

Heather
620923 tn?1452919248
COMMUNITY LEADER

  No worries...this is a huge problem as I mentioned they do not look beyond the cervical spine and a syrinx can be in ne area of the spine...and if u have tethered cord* u will have pulling down of the brain stem.....so, ur NS should be able to recognize if ur brain stem is longer then most, this is a good  indication for TC*. Also many with TC* may also have a mild form of scoliosis....

And make sure they test u for EDS as well this needs to be done now as it can also be the cause of HA's and joint and all over pains.

  "selma"
1 Comments
Hi!   I found this thread when researching throat hurting in relation to Kyary. It is all very interesting what I am reading here. And scary too.  What are you referring to when you say EDS and HA Selma?

Monica
Have an Answer?
Top Neurology Answerers
620923 tn?1452919248
Allentown, PA
987762 tn?1331031553
Australia
1756321 tn?1547098925
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease