need a specialist in michigan

[airy88]

Was in car accident 2009 found out I had chiari, I can't find Doctor to help.Can you?

[Mazie1209]

Dr. Sullivan @ u of m is great! I haven't.had the surgery (i can't decide if I should) but I do have appts every six mo with him. He is very honest and upfront!

[jennylynch]

i had a neuroi really loved my neurosurgeon until after my decompression he thinks he cured me. he is very knowledgeable.. but i have been told at the university of michigan their neuro is amazing i am trying to get into him now but i dont have insurance so its gonna cost me 750 jsut to see him... i know their peds neuro is amazing and if the adult neurp is as good as him i will love him. good luck finding a neuro.. if u find a good one let me know... definatly check out u of m though

[selmaS]

  Hi and welcome to the Chiari forum.

Many of us have this same issue...we may not notice our symptoms as they can be attributed to other things until something like a MVA triggers them to worsen...and then unfortunately Drs  r not educated enuff to help.

Most of us find we do have to travel to get to a true chiari specialist.
I am going to include a link of a list of drs names ...it was compiled by the members of their own Drs.....u do have to research the names...the list is not a referral.http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

U also may want ur parents to join this forum as well...to help them understand what u r going thru and help them find the right dr for u.

    "selma"