pain in my joints

[mike709]

Does chiari cause stiff and sore joints  almost like arthritis.

[selmaS]

  Keep me posted on the Dr at Hershey as I was not aware of a Dr there,.....

[mike709]

The one in Hershey is the specialist. I hope he is better than the one o saw today.Dr Free seed very arrogant and stuck up. He prescribed ibuprofen 400 mg for the headaches but not doing much for the stiff neck

[selmaS]

  Go with the one that is a Chiari specialist....is that the one u plan to see in Hershey?....I do not know ne Drs out there.....please keep me posted on how that Dr is and if u like them.

[mike709]

Do you think I should continue to see both NS s or stick to the one who is a specialist in chiari. I don't know if my insurance will cover me seeing both?

[selmaS]

  Oh defiantly, but it is a test u will need regardless.... I went to 3 diff NS's......
Trust ur gut, I am just saying if u have the RX for the test have it done as it is a typical test we all tend to have done.....

No worries that is y I am here : )

[mike709]

Did I do the right thing by calling another NS for a second opion. Sorry if this is dumb question bit I am new to this an have a million questions. And thank you for listening to me.

[selmaS]

  Continue with the EMG many of us have had this test it helps to prove the issues r from Chiari and not carpal or tarsal tunnel....

I was told I had both, had surgery for the tarsal tunnel and now have nerve damage....the EMG will help ur Drs figure out what is and what is not going on....so do have the test.

[mike709]

I saw a NS today and he said I Chiari 1 and he also thinks I carpal tunnel and said the numbness in my legs is something else and ordered another MRI an emg. The MRI is for the spine and brain. The emg is for my legs. He prescribed gabapentin for numbness. He didn't seem to concerned with my symptoms so I got home and called.another NS at Hershey med center and got an appt with him he is a chiari specialist.

[selmaS]

  Hi....as Mel mentioned above, u may have EDS, but those with Chiari can also develop RA as well....ne auto immune disorder or connective tissue issue can affect us as well....EDS is a connective tissue disorder which affect out joints....

  
Many of us can also have an auto immune thyroid condition which can affect our vitamin and mineral absorption just as with  EDS or taking GERD meds.....the lack of vitamin and mineral absorption  can cause pain too.

[Rylanesmom]

I have soreness in all joints from EDS ... My NS said chiari ound not cause pain in all joints.  Check into ehler danlos...and ehler danlos causes osteoarthritis too.