1340519 tn?1305166702


Hey everyone... I haven't been here for a while but I have a question as a new symptom has popped up

I went to TCI in NY and was not given an official Chiari dx b/c I didn't have "characteristic headaches" but I was told I probably had EDS and went to Dr. F in Maryland... she confirmed the EDS dx as hypermobile or maybe classical with mild skin findings.... anyways enough of the update

I am also 28 weeks pregnant.

Lately I can not bend over with out feeling like my head is going to explode... the pressure builds up so quickly and is unbearable. When I stand up the pressure goes down but leaves me with a yucky headache for a short while... feels like a vice squeezing my head.

The headaches/pressure don't seem to last too long, but after bending over so many times by the end of the day I have a pressure headache that is dull and won't go away and starts to hurt/more pressure with slighter movements.

I have a 20 month old boy which is why I have to bend down all the time... plus I am in the process of moving... blah! I really don't feel stressed... so I doubt it is stress really... just when I bend down :/

Anyone got any advice? Are these "chiari -like"?

I have to be re-evaluated at TCI after the birth of this baby as they think my low lying cerebral tonsils (1-2 mm) are probably caused by the EDS.

2 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648

  Hi...it does sound like it could be related to the EDS...u could have a retroflex odontoid which can cause the pain u described. Since u r pregnant I am sure there is not too much the dr can do....I  wonder if Dr F in Baltimore could suggest or rx a neck brace to see if this helps.Those with EDS have an issue with cranial instability.

Ask if the neck brace is something that could be helpful.

Helpful - 0
1996562 tn?1330337839
I know this is an old post but I took a look at your MRI and I agree with selmaS... It looks like you have a "retroflexed odontoid." Did they tell you that at TCI??
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1331027953
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease