I'm posting here hoping to shed some light on my condition.
I was told yesterday that I have Chiari Malformation type 1. I went to my doctor in December with sudden, persistent migraines. she tried to help, but nothing worked, so I was referred to a neurologist. He gave me preventative migraine meds and ordered an MRI. This was almost a month ago.
Yesterday, my primary care called me and said she wanted to talk about my MRI. she said "everything looks okay" but there was something she wanted to talk about. That's when she let me know that I have this malformation. She did not go in depth with any information, and apparently my neurologist has not even recieved my MRI yet.
I am just very lost here! As someone who works in the medical field, it's a strange feeling to be so lost on a condition.
I don't know what my next steps are. do I look for a neurosurgeon? I think any advice would be very welcome at this point. I don't think this has sunk in yet how potentially serious this could be!
any comments, suggestions, advice, anything is greatly appreciated! lord knows I really need it right now.