Hi and welcome to the chiari forum.
I am glad u found us, but for the resons u sought us out.
We all seem to have the same story...drs that don't listen and the "it's all in ur head" is the only thing most of them get right!
I hope u cand find out more on ur condition here and find the support these warm people have shared with me.
Do u know if u have a CSF blockage?....or how long ur herniation is?
Please start a new thread of ne questions u may have.
Godspeed
"selma"
I'm not very familiar with Chiari Malformation but I am quite familiar with migraines. I have been having migraines since I was 8, which is about 30 years. I have experienced migraines where I thought that I would never make it til the next day as the pressure in my head was so extreme that I thought my veins would explode. I also get a lot of "optical" migraines which range from the blindness,tunnel vision, streamers, stars, distortion, imbalance, etc. all without pain. These optical migraines started after I had my child. I still get the painful full blown migraines but the optical migraines are more common with me. From what my doctor told me, the migraines are not true migraines because they are related/symptom of the Chiari. I was told for years that "they were all in my head". At least they had part of it correct.
Thanks for the info....I did read that there can be painless migraines...and that the symptoms can be light or noise intolerance......vertigo.....ect.
I am glad to hear u found a dr u r comfortable with and like his plan of action as well!!
This info is appreciated as I am sure not all r aware of the different types of migraines.
"selma"