toddlers and chiari 1 with seizures and RAGE

[strykersmom]

Does anyone have experience with a young child that has rage attacks from chiari my baby is 21months old and after being in the intensive care unit for uncontrolled seizures we now have a chiari diagnoses with rage attacks they thought where seizures my son does have seizures but not as many as they thought the rest are rage attacks. any info will help im in portland oregon thnaks

[sabadew2]

What should adults do for 'rage attacks'?  I had decompression surgery 3 years ago and have been an emotional basket case ever since.  The surgery went well, I even went home from ICU (no additional stay).  Physically I felt fine, but mentally? I feel like I am in an almost non-stop rage attack.  I am hating life in general, have become extremely depressed, taken all the medications, but nothing helps this anger inside of me.  

Please email me at ***@**** as I may not find my way back here for your answer!

Thanks so much!

[selmaS]

Hi and welcome to the Chiari forum.

I have heard about chiari affecting  anger....I even noticed it in myself as well......and children can not communicate how they r feeling, so it is easier to have these rage attacks to let off steam.We did have other members with children who had this issue too.

There is a list of chiari drs, but do research to find one that is also a pediatric NS specializing in chiari.
http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

"selma"

[lilmiss1999]

I am so sorry to hear abou your baby. = cant imagine what u are going thru. There is a Chiari specialist in Seattle. At the University of Washington. If u want to message me I can give you the name and #s to call. I too am in Oregon south of you. Hope u get the answers u need.