Aa
Aa
A
A
A
Close
Avatar universal

trying to determine a diagnosis

I have been having issues for almost a year now of fatigue, dizziness, low grade fever frequently, wierd sensations in my head, my head just doens't feel right, muscle tension in my neck and shoulders, and my doctor has done blood work over the last year that all comes back normal. These symptoms are affecting my daily life and I am tired of not feeling good. Recently I had a CT and the results said my cerebellum was lower than normal and if I continue to have symptoms of dizziness or headaches to follow up...yet the nurse pract. that read my report to me was not concerned AT ALL and said it was nothing. Yesterday and today have been bad with dizziness and I am getting concerned. I don't have medical insurance so I feel like I have no options. Any advice would be appreciated. I know when something isn't right with my body and I am not just 'stressed & depressed" like the Nurse Prac. tried to tell me......
3 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648
COMMUNITY LEADER
HI and welcome to the Chiari forum.

It is all too common for those in the medical profession not to fully understand this condition and it's effects on those of us who do have it.

U need to get the copies of the MRI and report and send them to a chiari specialist for review.

Depending on where u live u may need to travel to get to a true chairi specialist.It makes a big difference.

See if ur PCP can request testing to see if u have a CSF blockage.....syringomyelia....tethered cord..PTC...Ehlers-Danlos syndrone.

Many of us are given meds for anxiety...so u r not alone with be told that......this is a lack of knowledge of chiari.

I hope u find the info and support u r looking for here with our little family....these r great people here that understand .

"selma"
Helpful - 0
Avatar universal
thank you for responding. Today has been a 'bad' day..I am still having the 'swimmy' head feeling/dizziness tonight and I am lying down. And the fatigue has been terrible. Is it normal for people that suffer from this to be exhausted most of the time?my neck always is hurting me/muscle discomfort in neck&back of head, shoulders. And my head just feels so wierd sometimes (sensations) that makes me feel uneasy, it is hard to describe.It just doesn't seem 'normal' to be told that the CT showed a lower than normal cerebellum.I live in Greenville SC so if anyone could recommend a doctor? I appreciate more info from you and others with symptoms and other things to consider.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
Hi Kat,

Unfortunately yes....fatigue is common with this condition.Yeah, it feels like u r walking in a dreamlike state like it isn't real......depth perception is really off, if u ever r in a darkened room it is diff to walk around....or on a black and white checkered board floor....

We do have a list of drs that members have gone to and liked...I suggest u look at the list and research the drs to find one u r comfortable with.

I am not sure we have on in SC, but I know we have one in TN.......

Look for the Health Page icon top right of this page....and on the search the menu for our specialist list.If u have a problem navigating to locate this let me know.

"selma"
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1331027953
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease