He didn't have any choking incidents or anything?
Oh dear, that WOULD be worrisome. You're doing the right thing by working with the doctor. I would ask for some further diagnostic tests, like a barium swallow, JUST to ensure there isn't a physical cause.
SM asks an important question, did he have any near choking incidents, or anything like that? Is anything going on with him, emotionally? Any big changes in the last few months (even good ones, like a new baby, moving, marriage, etc)?
Prayers that you get some answers and get this resolved. So sorry your little man is going through this.
First get him off of Prilosec. Pepcid is ok.
Second what kind of a doctor are you seeing? If its just his normal pediatrician, I think its time to see a ENT for starters. Actually your normal doc needs to know that he now has stopped eating solid food. This is serious and its time to get more help.
The reason I was wondering is that my son ---- from when he was a little guy just getting on solid food had difficulty chewing. He's got some motor planning issues and because of this difficulty chewing, he choked on food and gagged often. As he got older and chewing was no longer a problem, he still gagged and spit out food. We saw a specialist about this who talked about gag memory. That just the smell of foods or the texture of foods that were similar to what he's choked on or gagged on would create an involuntary gag. We had to work to overcome that. I would cut things up into tiny little pieces that no one could ever choke on and he'd put it in his mouth and gag and spit it out. It was psychological/neurological.
So, I was just wondering about that. I agree that anything medical needs to be ruled out. good luck
Thanks all! My son has never had a choking incident, so that stress doesn't come in to play here. Only big change in life us that he started 2nd grade a few weeks ago (year-round schools in NC), but he seems to like school, loves his teacher, and gets along with classmates well...I just can't imagine that would cause enough stress that would make him unable to swallow...IF it is a mental thing. At this point, even if there is an underlying physical cause, he probably does have the gag memory or will have to also deal with the psychological aspect of swallowing...ugh. We are back to pediatrician next week, I'm sure after trying allergy meds and reflux meds without success, we will be sent to specialist.
The doc is aware he's not eating solids...he is living off Pediasure, yogurt pops, milk, etc...poor kid tried a grilled cheese last night, really wanted it and thought he could eat it, But no luck :( In the beginning, he did manage to normally swallow a few things...like cookies (?!), so I do question if its physical...whatever it is, its heartbreaking!
Sandman2, what is wrong with Prilosec?
You can't use it on an as needed basis. You must take it every day for it to work. It stops all stomach acid production. You can become dependent on it and take months to get off of it (my own personal experience).
As Public Citizen says, " Summary: PPIs are helpful for some but unnecessary and risky for most." That is why in Aug. of 2011, " In August, Public Citizen petitioned the FDA to immediately add black box warnings and other safety information concerning several severe risks to the product labels of all PPIs on the market in the U.S. (esomeprazole, dexlansoprazole [DEXILANT], omeprazole, omeprazole and sodium bicarbonate [ZEGERID], lansoprazole, pantoprazole, rabeprazole, esomeprazole and naproxen [VIMOVO]; PRILOSEC OTC, ZEGERID OTC, PREVACID 24-HR; and all other generic counterparts).
We petitioned the FDA to require the inclusion of black box warnings identifying the following risks: rebound acid hypersecretion, which results in dependence on these frequently overused drugs; fracture; infection; and magnesium deficiency."
Fortunately he wouldn't take the Prilosec...even in chocolate syrup he said it was "too spicy" (I assume bitter?).
Am calling doctor asap in morning to get in to see specialist. Also contacted teacher to get him in with school psychologist... he says he's "scared to eat" now, so obviously needs some psychological help to overcome. He said that "eating use to be my favorite thing to do"... its so sad. He is a VERY active kid, too, slender build, so there's no weight to lose...his ribs are really showing now...MY HEART IS BROKEN!! Feel so very sorry for my precious child :(
Aw, if feel for both of you. For him because the poor little guy has no clue what or why this is happening. And for you, because there is nothing worse then watching your own child go through this.
I take it that even something soft like scrambled eggs won't work?
Good luck with the specialist. Make sure you convey to the doc that you need to get in as soon as possible.
Please do keep us posted!
This link might prove helpful - http://emedicine.medscape.com/article/1001253-clinical#a0217
My girl is 7 years old and choked in September 2014, but after a couple weeks went back to eating. January 5, 2015 she stopped eating solids again. I am writing to ask if you have resolved his eating issue because your story is almost identical to mine. She is scared to eat, phlegm and something caught in her throat, she says. Went on Zyrtec, omeperzol. Nothing seems to help.... Just had an upper GI that came back normal and her endoscopy just showed thickening in the esophagus related to allergy changes. We are still waiting on the biopsy. I am so sad for her and she is loosing weight. I know we need to see a feeding specialist/therapist. Please any help would be appreciated..
My 5 year old just started doing this. Will put food in his mouth and chew it a while but then have to spit it out. The only thing he'll swallow is yogurt, soy milk. I just have a gut feeling that this is psychological.what can I do to get him to eat?
Any updates on your child's condition? Has there been any resolution or effective treatment?
My wife and I are experiencing the exact same thing with our six year old son. Literally the exact same symptoms and progression. We had a barium swallow study done, which came back normal; and recently had an endoscopy that had normal results. Still waiting on the results of the biopsy.
Has anyone had this experience, and found an effective treatment or solution?
Is this a recent development or has this always been the case. If its recent, hopefully, it will pass. If its always been the case then something like sensory processing disorder could be the cause. Is he sensitive to textures, light, food tastes, sounds, etc.
I have a 8 year old girl something has happened to her 1 1/2 weeks ago will only take liquids. we did have a slight choking incident but ate after. 2 weeks ago she had nitrous oxide at the dentist and freaked out wondering if anybody else has had any relation to this. We have had the swallow test all normal now referring to GI doc!! Please share any info you have
Hi can you please share what the outcome has been and how your got there?
Almost the same thing is going on with my son. Any help would be great.
Thank you for sharing about your Son. Yes, my eight year old Son has been doing the same thing. He says he feels like he is going to choke and so he spits food out or simply won't eat it. He is serious and it scares me because he has lost weight but doctors see nothing wrong. He says it feels like something is in hos throat like a spider trying to crawl out when he swallows, and that makes him choke. He is particularly obsessed with a fear of spiders right now, and his Dad (doesn't live with us) showed him arachnophobia and told him some horror story about spiders crawling over us as we sleep. I'm wondering if there is something mental/emotional triggering a physical response. He is a very bright and sensitive boy who listens very well and remembers. What kind of a Dad does that to a 7 yr old!? Thanks again, Shannon
I have been taking my son to an eating disorder clinic. He has high anxiety and he is OCD about germs. He says he has a germ in his throat and it won't let him swallow.
I am still concerned that there is something physically wrong though. I saw all these posts with similar symptoms so I just wanted to know if there were any outcomes.
My son stopped eating propaly early 2015 it was becoming a concern over the past couple of months when he choked when eatingthen about 2 weeks ago he stopped eating all together. His diet at the moment is what ever he wants mainly chocolate milk and smooth desserts like moose and custard.
He will try most things however he turns it to liquid in his mouth and spits it out.
My Daughter is doing great now eating!!! You need to be patient but firm I started pushing pedia sure which began to give her an appetite and she began to eat at her own pace. My Dr also had her take liquid Vitamin D this also could have helped
I wanted to update everyone on my son's and our experience b/c I have had several people email me and ask...this is obviously (and sadly) a pretty common problem! Please read our experience, I hope it helps you, and feel free to send me a personal message, if you want more details or advice!...
My son at first got treated for possible reflux with meds, but they didn't seem to help. Then the doctor decided to try for allergies b/c that can create a lump in the throat or uncomfortable sensation as well, it can scare kids, then it creates a fear and snowballs out of control where they can't swallow. Well, those meds didn't help either :( SO, the pediatrician ordered tests through a GI doctor...my son first had a barium swallow test, which came back normal. Then he had an endoscopy, which came back normal as well...both of these tests showed that there was nothing physically wrong, and there was no inflammation from allergies or reflux. All signs pointed to the fact that this was probably mental, like an anxiety issue. We never found out how or why it started...weather it was stress from starting school (it started a week after he started 2nd grade) or something like that.
The one person that finally got him to eat solids again was a Speech Therapist that specialized in swallowing issues! He had 1 session with her and he was eating again :) So I do think maybe it was triggered by something, but then fear took over and he couldn't make himself swallow (he started with the spitting out of food, then had a few 'safe' solids he could eat before he only could eat solids). SO I would suggest that anyone with a child with the same problems to first look into finding a speech therapist in your area that has dealt with swallowing....it could eliminate the need for any of the traumatizing and expensive testing (Endoscopy)! Even if this started as reflux or allergies, they can help the child to overcome the fear and eat again. Ours was a lifesaver...my son did have a relapse after about 3 months, but we went back to her & she was able to help again. My son also saw a child psychologist for anxiety issues, but he never could determine why the issue began, and I also don't see my son as an overly stressed kid, so we didn't think that was all that helpful...but in some cases, this might be a good solution.
If I had to do it all again (and I REALLY hope we don't have to!), I would absolutely go to a Speech Therapist/Pathologist first (ours was in a pediatric GI doctor office) before any invasive tests. If the therapist can get your child to eat again, it's most likely nothing physically wrong. I guess you could also try to rule out reflux or allergies (with meds) b/c that is non-invasive as well.
Please let me know if you have any other questions...I know it's a heartbreaking thing to go through. My son lived on Pediasure shakes for over a month, they have a lot of sugar, but at least many nutrients. Good luck to all!!!
Thanks so much for your reply/update i am so happy for you and your family things have improved. It gives me hope there is light at the end of all this. I cant wait for my family to get past this, it has been horrible for everyone.
a speech therapist has been discussed by the clinic we are going to, this may be the first point of discussion at our next session
thank you again for your openness.
My son also has started to develop the same habit
Let me know in case you got the solution to this problem
Thanks in advance
So happy to hear that you got this problem resolved, and it might also give some hope to those still suffering!
We are having a similarly difficult time with our 4 year old. Already, he has always been tall and thin. In the last year, he became gradually slower to eat his meals, and most recently he has been holding food in his mouth, chewing until it is liquified but saying he cant swallow! He's eventually getting about half of most meals down but is rapidly losing weight. He can not afford to lose it, as he hates all sweet and processed food to begin with. No way he would drink a shake or yoghurt as he says they are mushy and he likes crunchy food. Im trying so hard not to show how anxious I am in front of him but its driving me insane! hes eating half of what he ate at age two, and its taking him twice as long. we did have some upheavals, some family travel and he knows he is starting school. We've done our best to make these stress free, but you never know how it really affects them. This could be the underlying cause, we feel pretty sure that it is phychological rather than physical. he just says he cant swallow! We have started to limit the time he has to eat his meal, as giving longer has not helped at all. We will contact a speech therapist to see if that will be of any help. Thankyou.
My son gained 900grams in the last week, we are over the moon. He has been diagnosed with ARFID (avoidant restrictive food intake disorder) this is common in children with anxiety, OCD and autism/ ADHD.
The eating disorder clinic recommend not to go to the speech pathologist as when ever someone examines his throat he regresses.
At our next appointment we will see if he has gained more weight, if not the speech pathologist will be discussed again.
This has been the worst time for all of us and the past week is the first positive in a long time.
Hope everyone else is making good progress
Our 8 year old daughter went through the EXACT same thing as your son. EXACT. It started in May and she stopped eating for close to 6 weeks. We eventually got her into a speech/feeding therapist and it was a miracle. She was eating within days. She was 'cured' within 2 weeks and had a wonderful summer. Then she started 3rd grade and stopped eating. We're on week 3 right now and brought her back to the speech/feeding therapist and now she has a cognitive therapist. We're hoping for a speedier recovery this time around.
I can't tell you how awful this is and it's been devastating for all of us. She doesn't understand why this is happening to her. The first time she did have a positive strep test and the doctors suspected a syndrome called PANDAS. However, this latest bout she did not test positive for strep and in order for there to receive a diagnosis of PANDAS, strep must be positive.
Anyway, we're in the middle of therapy right now and praying that she recovers quickly. The therapists believe anxiety has triggered these episodes, but she functions completely normally and happily in school and with her friends.
I'll come back and update was soon as we see significant progress. But I agree with you mvkmako24 - the first line of action from here on out is therapy first, invasive tests last.
Thank you and keep us posted.
Wonder if the start of school triggered this? Ask her teacher how she does in class. Does she volunteer information? Does homework stress her out at all. How is she doing on the weekly quizes, etc.
Since the 5th of September our sons weight has dropped significantly. He has now been hospitalised. We went to the speech pathologist, a paediatric dietician, the paediatrician and continued at the eating disorder clinic. The doctor has been wonderful and has not completed any invasive tests. He had a barium swallow test (my son thought this was cool) it came back normal. He is now having an MRI on Monday. they completed genetic testing yesterday and are looking at completing cognitive testing for autism.
School is not an issue at all. Her teacher says that she is so relaxed in school. She's an excellent student and doesn't get stressed out about school work at all. She's been progressing slowly with the therapy (OT and psych) and her anxiety is starting to decrease. She's eating only foods that she thinks she can chew easily and quickly. We're supplementing her caloric intake each day with at least 3 Pediasures. Her weight is still concerning me so we're working closely with her pediatrician as well.
This is all so nerve-wracking. We're in week 6 or 7 right now with this latest episode.
I hope everyone is doing well and your kids are progressing in a positive direction.
How is everyone's children travelling? I hope things have settled for everyone. Can anyone offer solutions that have worked for their children, we have tried the speech pathologist, occupational therapist, eating disorder clinic. Nothing has worked.
Are there any problem with snoring at night?
My little sister had a thin object lodged in her throat which allowed only liquids to pass. Because it was thin and flat, tests did not show anything as it would flatten against the throat. Neither did a throat exam because the passed right be the item. Can't recall which, but eventually an xray, cscan, or mri showed it.
I asked about the snoring or difficulty breathing at night because the flat object would shift when she was laying down. Actually went on a sleep apnea machine before the cause was discovered.
Going through the exact same thing with my 8 year old son right now. It is heartbreaking. He chews his food until it is a liquid consistency and then spits it out. All tests show that there is nothing physically wrong. Been to emerg, doctors, pediatricians, ENT and they all say he will eat eventually. I cannot accept this answer because it has gone on too long now (almost a month) and is affecting him at school. Next appointment is with a child psychologist, but I will be calling a speech therapist after reading these comments. Any other advice would be greatly appreciated.
Yep been there too...been through that many nutritionists and a specialist GP each saying "there's nothing wrong/we don't know what's wrong."
She's always been fussy and not a good eater anyway.
Now she only occasionally chews her food the chokes and spits it out but we went through a period where she did this every meal time for a couple of months...as a result my daughter can go two weeks without food happily. She's skinner than a take but active and generally happy, well behaved (mostly).
We reduced the amount of milk she had and took out some junk food such as Choc milks and chips (they were a suggestion of a GP to help her gain weight).
It helped but she's still very fussy! She doesn't eat veggies, bread, dairy (bar milk) and most fruit. Plain meat and chicken is ok but it can't have anything touching or on it and even then she sometimes will choke and spit it out.
It was hard to watch her go through that and she still remembers the nutritionists. It was traumatic at times and so many people thought she was doing it just to gain attention/be stupid or I was doing it purposefully...crazy!
Hoping you find something that works for you. Don't listen to others trying to put you or your child down...go do what's right for your child and you and get the help you need.
Best of luck!!
This is still going on for us. It started mid last year. We have been to every specialist possible.
He has been diagnosed with autism, sensory processing disorder and ARFID, this is an eating disorder. https://en.m.wikipedia.org/wiki/Avoidant/restrictive_food_intake_disorder
We have just arrived home from a 3 week admission at hospital. After almost 9 months of eating only soup, he is now having about 5 swallows of solid food per meal. When eating he has severe panic attacks about choking, however this has reduced in intensity and frequency with anti anxiety medication. He continues to live on pediasure hopefully over time the solid food will increase. The dietician gave a formula for the pediasure to increase the calories and reduce the amount he needs to drink, it has helped for him to be able to finish all the drink.
My previously happy healthy child became a skeleton in front of my eyes. He should be around 26kg and at his worst he was 17.7 kg. We went to an occupational therapist who did SOS therapy this helped him make great progress and enjoy the taste of food. We continued with the eating disorder clinic and aventually he was admitted to hospital under this program. He is now a beautiful 23kg, a little way to go in weight and a long way to go in swallowing however now the stress has been relieved a little. It's a lot of hard work but well worth seeing my baby smile and play again.
I truely feel for all families affected by children not eating. It is the most heartbreaking thing to go through for all involved. The child, parents and also siblings. I recommend not waiting and not relying on 1 or 2 opinions. Keep going to specialists until you find someone to help. In Australia we used a private eating disorder clinic in Sydney until we were referred to the eating disorder clinic at west mead children's hospital. My son went to over 50 appointments and had an admission to our local hospital, no one knew what to do. I just kept going until I saw results. Many tears and a lot of heartbreak later he is on his way to a healthy weight and making progress with swallowing.
Thinking of everyone xxx
My son had severe constipation. I clean him out and gave him soft foods for a few days. Because his autism, he got used to chew and spit his entire food. He started with little bites and he started eating solids agaim!!! I clean him out with Mira lax and I s y I'll give him 4 tsp. Every morning before school!!! Now he eats normal again. More than anything, pray Jesus for him!!!
If you need more details about my son's sensory eating desorder, email me at ***@****
My son is the same way too,, this happened when he choked on ice. A week later tooth pulled out.. the next day he don't want to eat anymore.. it's been 3 weeks now and he only eat yogurt or soup, or ice cream.. nothing solid food,,, I'm so worried about him... I don't know what happened he use to eat like he never eat before but all the sudden everything stopped...
Following in the same boat with my 5 yr old child, your exact issues relates to my child. None of the Dr can help and rule out what's wrong with him, it's been 7 days and blood work can back negative and the GI test came back also negative.
They think it's acid reflux they provide him liquid renitidine and still not eating solids.
I need help and what to do.
Thank you for your reply,
Our doctor had request to see a specialist only for ear and throat. But I will diffenatily ask to see speech therapy and speech pathologist.
I have no idea what I am dealing with.