I live in London, England and my daughter was diagnosed at birth with congenital hypothyroidism. She had negligible thyroxine levels when tested at birth and so her hypothyroidism was severe. She has been on medication since she was 10 days old.
She has developed well, with the exception of her speech and was recently diagnosed with verbal dyspraxia (apraxia). She has been in speech therapy for about six months. Her speech therapist has recently told us that she has made little progress and that she is wondering if she has a memory problem. Her hearing is fine.
Rachel gets about 30 minutes of speech therapy a fortnight, supplemented with what we can do at home. Accessing the right kind of help (or enough of it) is proving to be a problem.
Our 'take' on her is that she seems to us to be very bright and we have not noticed any memory problem ie: she always know what her favourite book/video is, she picks out people she rarely sees from photos. We have got some concerns about her behaviour: although affectionate and endearing, she can be agressive and does not seem to understand the word 'no'.
We find it very difficult to access information about Rachel's thyroid condition and are not sure what outcomes are for children with her condition. It does seem that problems with motor functions are quite common.
In your experience, could a child with this condition suffer with memory loss? What are the types of challenges we can expect to encounter with her development?