At your son's age it is now possible - in a way it might not have been earlier in his life - to pin down with more accuracy the pertinent diagnoses. Your overall description lends support to two diagnoses: (a) ADHD, and (b) a condition along the PDD spectrum (which, as you probably know by now, covers a lot of territory). Your description does lean in the direction of Asperger's, which is one of several conditions along the PDD spectrum. The OCD diagnosis is not so clear from your description, though of course I'm not in a position to disagree with it. To a certain extent, it is helpful to achieve clarity re: diagnosis, but some symptoms cut across a number of conditions. This can be particularly so when a child displays symptoms in several categories (such as Disruptive Behavior Disorder - of which ADHD is one type, PDD - of which Asperger's is one type, and Anxiety Disorder - of which OCD is one type). It might be more helpful to place primary focus on the symptoms per se, because it is the symptoms, not the diagnoses, that are treated. If the Risperdal (which can be helpful to address some symptoms with Asperger-type kids) is not helpful, then it makes sense to stop it. He should definitely be evaluated (if he has not already been) by a child psychiatrist. It's possible that one of the serotonergic medicines (e.g., Prozac, Celexa) might be useful. Relative to food allergies, some children do display mood and behavior problems that may not be directly attributed to a food or food group, but which may very well be exacerbated by ingestion of certain foods. A generally helpful supplement, if your son does not eat several portions of fish each week, is Omega-3 fatty acids, which can be obtained via fish oil supplements (do not use the flax seed variety).
Has anyone ever suggested doing a karyotype?
Many boys who are 47XXY are often misdiagnosed as ADHD, PDD, Asperger, etc.
While they may display these characteristics, it is important to know whether something like an extra chromosome is present and at the root of the problems so that proper care and guidance can take place.
Was reading a comment of yours regarding a question about ADHD - which my son has been diagnosed as - and i tend not to agree with. But, sorry for my ignorance, but what is a karyotype test?
And what would it entail? I live in Canada and am not sure if it would be available - but am going to ask my doctor. My oldest is on Dexedrine and tends to have lots of side effects from it. Would love to know if he really needs it.
I was very concerned to read of your family problems. I was also very concerned to read of this possible misdiagnosis. Have you considered Tourette Syndrome? ADHD (with or without the Hyperactivity,)Obsessive Compulsive Disorders, etc., are all associated behaviours of Tourette Syndrome.
Many of your child's 'innapropriate' behaviours you will find in reading about Tourette Syndrome. Please check out the Internet for more information. You may also contact me for more information on the disorder.
I noticed that you mentioned the cost of medical bills. We were in a similar situation with my three year old. We were going through genetic testing and etc. and we didn't qualify for medical assisstance or social security b/c we always just missed the cutoff for income and we had insurance through my husbands employer. We then just happened to hear about the Loop hole program through a speech therapist. You can be a millionaire and still qualify (if you have enough proof that your child has special needs). We live in Pennsylvania and I had to contact our local assistance office. I can't tell you how much this has helped. They will also go back I believe three months and pay for those medical bills as well. I hope this helps some. Good luck! I know it is tough trying to get a correct diagnosis we are going through it too!
Wilbarger approach "Brushing Technique"
prescribed by the school Occupational Therapist
This is like a massage with a brush - it is done
every 90 minutes at home and in school. It seems
to calm him down, stop him from chewing on his
shirt, and generally redirect him (and the teachers)
to more positive activity.
Your child sounds similar to my 8 year old.
My child is in second grade.
Smart, reads, gets along with his sisters (mostly)
plays games, helps around the house (sometimes),
enjoys school (often), plays Piano, engages in
conversations, likes Boy Scouts
Wets his bed, gets very upset when something is
changed or missing or broken, will not do some
school work (such as creative writing), yells and
throws tantrums when upset, very picky about food
(eats primarily peanut butter and jelly but must be
of correct brand and type), refused participation in
karate, soccer, and other group sports.
He has been diagnosed as Asperger's by a Neurologist,
Psychologist, Developmental Pediatrician and social worker.
ADHD and ODD were brought up as possibilities but we do not
This is what has helped:
Social skills group (taught by social worker, weekly
meetings with 6 similar children to talk about
and act out proper behavior)
Discussing all activities with him first and
if he is still upset about them we skip them.
Agreement by school staff to preview work, supply
in-class full time aide.
My wife and I have read books by Tony Atwood and
gone to see him talk.
I just want to let everyone know that aspergers, ADHA, ADD, can also get confused with Non Verbal Learning Disorder. My son was informally diagnosed with ADD by his Dr. A year later I paid a nice amount of money to get a pyschometrical test done on him and the tests came back that my son has a Non verbal disorder. He does not understand 65% of what goes on around him, he does not understand facial expressions,body language,voice fluctuation,he has no organizational skills. It is detrimental to be sure to get the right diagnoses before starting to treat a child with different meds. It really saddens me that for 7 years my son went through a lot of heck not comprehending life. He was punished plenty at school, to the point that we changed his school 3 times because he was pegged as being behavioural. Since his diagnoses, his current school is great, he is not on meds yet( I am still researching ) But it is looking up. Good luck to all you that are going through what I have already been through. I realize it is still a long haul ahead as this disorder gets worse as years go by but I am at least now on the right track.
A related discussion, how to treat touretts at home