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Avatar universal

failing retina and poor weight

Hi,

My son is diagnose with Optic Atrophy two months ago... he is 15 months old now. His weight was never has been a concern because he is an active kid and continue to hit his milestone. All changed when we started to notice involuntary side to side eye movement.

This is my son special diet we been serving him. I am a worried dad and nutrient limits is a major concern because we don't want to overload my son system. We are very concern with toxin due to overload.

Morning:
5am - water with 1/4 spoon spirulina
8am - 7 ounce milk with 5ml cod liver oil
10am - cereal
12pm - i bowl rice porridge  with anchovy and mixed with 1 teaspoon nutritional yeast and 1 teaspoon wheat germs.
3pm - some bead with 1 teaspoon grind flaxseed
6pm - 1 bowl  rice porridge  with anchovy and mixed with 1 teaspoon nutritional yeast
10pm - 7 ounce milk

... please advice ...
7 Responses
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267079 tn?1195142970
MEDICAL PROFESSIONAL
If he was allergic to milk he would have diarrhea and increased gas after consuming dairy products. He should be consuming much more food then what you wrote, especially protein. He needs the amount of food suggested in my previous answer and then you will see him gain weight and grow.
Helpful - 1
Avatar universal
Here is blood test results:
Total WBC - 12.1
Neutrophils is 28 (low)
Lymphocytes 65 (high)

liver function:
potassium 5.4 (high)
carbon oxide 15 (low)

I might be going insane... we cut off his milk! we cut off his anything that contain wheats. And start monitoring his poop. Luck that my wife is able to produce breast milk.. she providing 18ounce milk a day.
Helpful - 0
267079 tn?1195142970
MEDICAL PROFESSIONAL
His weight is below the 3rd percentile and his height is on the 10th percentile for his age. According to the growth chart, he is underweight for his age. Here is a guideline for a 15-24 month old child should eat the following on a daily basis with the amounts: Dairy 3-4 feedings a day – Milk (4oz), cheese (½ oz), yogurt (½ cup), or cottage cheese (¼ cup). Starch 4 feedings a day – Cereal (¼ cup), pasta (¼ cup), rice (¼ cup), bread (½ slice), or crackers (2). Fruits & Vegetables 4 feedings a day – Fruits (including 100% juice limited to only 4-6ozs) & Vegetables (¼ cup). Protein source 2 feedings a day – Meat or fish (1oz), egg (1), or beans (¼ cup). He should eat 3 meals and have snacks between meals using the foods above to be spread out throughout the day. He needs food to grow and gain weight.
Helpful - 0
Avatar universal
Doctor, is it possible he is allergy milk? We didn't notice  any allergy symptoms except ear infection on and off. His weight chart indicates his weight started to drop just after switch from breast milk to formula.
Helpful - 0
267079 tn?1195142970
MEDICAL PROFESSIONAL
As I stated before, suggest giving your child the daily amounts of food that I wrote in the previous answer. If you are giving him milk as breast milk, then give it in the amounts stated. Your child is underweight and needs to grow. Food is the only way he will grow. The problem with his eye maybe only a muscular issue not diet related.
Helpful - 0
Avatar universal
He don't really have all the food that you mention... i cut off anything related to wheat and milk temporarily. He is drinking breast milk 7 ounce x 3. He is eating well and active. I feel he is much heavier now .. gaining more weight. My only concern is CALCIUM... if he is gaining weight should there be a concern for calcium? His diet consist calcium here and there. His tooth growth sort of slow.. he is 16 months old and only has 4 tooth. 2 tooth on its way. We noted even when he is one formula his tooth growth is slow.



Helpful - 0
Avatar universal
just re-read your note "If he was allergic to milk he would have diarrhea and increased gas after consuming dairy products. "... you know I quite often noted my son had constant gas issue before.  He also had diarrhea during breast feeding.... i  was reading few days ago that milk protein drank by mother can affect their children.

One a second note... we notice a big different in behaviour between our first and second son. My first son who is on strict diet now used to cry long and all night... we thought it is common colic thing. Now we starting to feel he could have been suffering GI because our second son seems to be very quite... I know you would say each children different from one character to another. If wish he didn't have any issue that I am suspecting now.

Another issue that I noted then and now... his poop is always green.. the whole poop look greenish... you would say.. he eat green vegetable or milk formula's iron thing... It worries me  still then and now. The diet some what has changed the color off from green to brown/yellow but I start noticing dual color poop, two separate piece.. I believe one part is coming from breast milk (I am getting good at this) which is green. Is it possible mother's breast milk can be contaminated by mother consuming cow milk... I thought it should be filtered. I been examining his poop for sometimes now... it is a dirty job but someone has to do it. He never had diarrhoea for few weeks and his poop is mostly solid.
Helpful - 0

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