Aa
A
A
A
Close
Chronic Fatigue Syndrome Community
327 Members
Avatar universal

Have you seen many doctors? Gotten SS Disability?

I am new to the forum and in trouble.  Thank you so much for allowing me to join and reading my thread.  I hope one day, i can be of help for you.  I have spent the last 8 years studying hormones and immune systems, diet etc..

This is out of order and maybe doesn't make sense, please forgive me..

My lawyer says that i may not get my social security disability claim to go thru, merely because i have seen so many doctors, like a specialist for each part of my body that went crazy.  I was given no diagnosis, for many years,  other than i was mentally ill and put on psych. meds.  in and out of the ER etc..  i explained that this is common with all my conditions; cfs, FM and endocrine/autoimmune disease.  I read it over and over again on forums, online, but i am very isolated and have so few people in my life, no friends.


I have autoimmune pituitary disease, that occured with the Hashimotos. My thyroid and pituitary were "chewed up"  by my own immune system.
I have been ill since 2008 and am unable to get my hormones properly evaluated and thus, treated.  I am now in bed about 18 hours a day.  Diagnosed with Empty Sella, fibromyalgia, Adrenal Insufficiency  and chronic fatigue syndrome [mysteriously  occurring with the onset of pituitary and thyroid damage and only a coincidence, according to my doctors]..i don't buy it, totally, i need more hormone testing.  I did have EBV and Hpylori, terrible horrible, sadness and stress, for many years, which happened right before the autoimmune diseases started.

Because i have disappeared from society, i have virtually no proof of anything much. I swear, the doctors don't hear me.  They are not worried particularly, because i am not a skeleton, in fact am swollen.  My stomach digests very slowly and i can only eat a few cups of food daily , for many years, yet can gain weight over night.   I have no energy to pursue getting well, at this time.  The medical care i have received is substandard..6 weeks to receive lab results, rarely, if at all or no return calls or emails, losing my medical records, waiting 2 hours in a waiting room, loosing lab results, not calling them in, no appointments available for 4 or more months etc..

This year, I will lose most of my widows benefits and am unable to afford private insurance and must go on medicaid. I am very depressed and scared.

The lawyer wants a letter, addressed to him, stating,  that seeing many, many doctors, for symptoms and a diagnosis and remaining ill, is very common..  That  each doctor, has often,  a different protocol..from the next..you start over and over again; eventually you are unable to continue.  The lawyer has never hear of this before.  I do not know of a lawyer, specifically for cfs, in Ohio.

Any help would be greatly appreciated.  Back to bed!



Thank you for your time!
0 Responses
Have an Answer?
Top General Health Answerers
Learn About Top Answerers
Popular Resources
In this unique and fascinating report from Missouri Medicine, world-renowned expert Dr. Raymond Moody examines what really happens when we almost die.
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
When it comes to your health, timing is everything
We’ve got a crash course on metabolism basics.
Learn what you can do to avoid ski injury and other common winter sports injury.
Here are the pros and cons of the top fad diets and weight loss plans of the year.