After researching on Curezone I found several things to try. One of those was food-grade quality diatomaceous earth (DE). From what I understand, DE is the fossilized remains of diatoms (hard-shelled algae). It's harmless to humans (except if you breath it) but it's deadly to bugs. It's like broken glass to them. I found them for a good price on the internet and ordered some. I made a mixture of this with a few other things (walnut/wormwood extract, clove oil, oregano oil, grapefruit seed extract) and drank it. Wow, it tastes awful. Within a few hours I felt something different in my intestines. It didn't hurt so much. This is gross but I examined my stool. I was horrified to see dead worms. After taking the mixture once or twice a day for over a month my innards feel better than they have in a long, long time.
Here is how I was able to research my illness. It used to be Google had a cool search feature. If you put a plus sign (+) in front of a word or phrase it would require that word or phrase to be in the result page. A minus sign would exclude pages with that word or phrase.
Some example searches I used were:
+"chronic fatigue syndrome" +forum +"I take"
which would usually find result pages on a forum where someone with CFS would discuss how taking a particular drug/whatever would help/not help.
+"fibromyalgia" +forum +"I feel"
which would usually find result pages on a forum where someone with FM would discuss how they felt.
Sadly, Google removed the plus and minus features sometime in Sept/Oct of 2011. I think the "advanced search" still works but I haven't tried it.
I found it on Google /advanced_search. It appears you can require certain words and exclude others. Phrases should be enclosed in double quotes.
By reading other people's stories I learned the common terms used to describe my symptoms. From there I was able to read all kinds of stories about what people tried. That's how I found the link to the radio interview with Dr. Starr about HT2 on CureZone.
I also found AskAPatient. People post their experiences taking different medications. Now I always read the reviews for a medication before I take it. That's why I never took Lycera. Some of the side-effects give me the heebee jeebees just thinking about it (e.g. blindness).
Some Other Things I tried:
-I took colloidal silver for a long time. I think it helped. I experienced flu-like symptoms during use that eventually went away. I consumed about 4oz a week at 30ppm for 1.5 years. I stopped taking it went I didn't feel anything different when I took it.
-I went into a hyperbaric chamber. I didn't feel any different.
-I tried massage and acupuncture. Massage initially felt good but with a few hours I would usually experience horrible secondary fatigue/flu-like symptoms that would last days or, one time, two weeks. Acupuncture was nice. It felt good but it was expensive and a long drive. The effects didn't last long so I didn't continue. Besides it was treating the symptoms and not the root problem.
-I tried a bunch of different vitamins and minerals in both pill and liquid form. Never really noticed anything except for Vit D. I still take that every day and I notice a slight improvement.
-I tried several types of magnesium even the oil that you rub on. It just made my IBS worse or did nothing.
-I tried that mona via stuff. Tasted good but didn't do anything.
-I took Vitalzym SEB for a while. It helped with my pain and my muscle burning feelings but I always felt it was treating the symptoms and not the source.
-I tried light therapy with a Verilux light. My wife thought I had seasonal affect disorder (SAD). Turns out the cold of winter made my hypothyroidism worse.
-I had my mercury fillings replace with ceramics and I did a detox. That helped me feel better but it wasn't related to my CFS/FM problems.
-I had a bunch of blood tests. All negative normal.
-I saw a CFS/FM specialist who took a bunch of my money and didn't do anything for me. He wasn't even a good listener.
-I saw a gastroenterologist who put me on Protonix. Ugh, vile stuff. Never again.
-I was on Xanax and tramadol for a while. I liked Xanax a lot and combined with tramadol at night I was able to get some sleep. My wife said I wasn't all there when I was on Xanax. She said it was like I was on auto-pilot a lot which was true. I stopped after about a year and a half.
-I'm sure I've left some things out but that's all the comes to mind right now.
I'm not 100% and I'm definitely not the person I was but I'm doing okay. Discovering that I have HT2 made life so much better. I read that it takes 12-18 months to fully recover and it's been only 10 months for me. I can't wait to see how much more I improve over the next 8 months.