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530191 tn?1214162811

Autoimmune urticaria anyone?

Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?
318 Responses
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Avatar universal
Please do not kill yourself!! Your post broke my heart </3 As of about a week ago I started breaking out in itchy red hives. I have just realized what they were by doing research online ( I thought it was mosquito bites or poison ivy) On top of this I have chronic pain and insomnia..so take it from a lady that is always suffering..life is too good to stop living. I plan to try Zyrtec and am also taking benadryl and prednisone with hopes the hives will subside. We are all in this together and dealing with the same issues sweety..I am here if you need a friend. I will let you know if the zyrtec works and if so you better try some and stop all this ending your life nonsense..my prayers are with you and everyone else dealing with it.
Helpful - 0
Avatar universal
I have had bouts of chronic urticaria since age 8.....I am now 56 years old. that first time (age 8)....it lasted for 3 months.  My parents thought it was an allergic reaction to "something"?? Then it just went away.  My next experience was at age 17.....and it lasted 6 months.  The time after that at age 28 it lasted 9 months. At age 37 it lasted a full year. When I turned 45 I woke up with that oh so familiar itching & burning witH welts everywhere....and I thought I AM NOT GOING THROUGH THIS AGAIN. I checked out several sites on line and found zantac/zyrtec taken together would work.  It was wonderful that finally I found a "cure". Worked beautifully.  when I tried to stop taking these meds....it came back like gangbusters.  So I continued to take them for over a year and finally it was in "remission",  Now here I am at age 56....and yes....they came "back" 2 weeks ago.  UGH!! My H1 H2 blocker combo of zyrtec/zantac isn't working too well this time.  Now to find something else !!
Helpful - 0
13116921 tn?1428616525
DebMatt,

I too suffer from Chronic Urticaria. It is very depressing indeed! I have tried lots of medications, and have had it for 7 years now. I am only 28 years old. Im going to Hawaii tomorrow, and I am broken out in hives from stress, and now I'm stressed even more because I know the heat will make it worse. People loo at me like I'm a monster some times, or point it out to me! Like I didn't notice! Please do not end your life, I am hoping they find the ultimate cure. We are all going through this together! Stay strong.
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Avatar universal
I have been suffering from Chronic Hives off and on for ten years now, been on prednisone e Doxepine Xyzal, Zyrtec, Clariton as well as many more, Been from Dr to Dr to Dr , They al think I am NUTS, It is so debilitating, And I hope neither of my Daughters get this some Day, I Am Cconsidering SUICIDE, How Very Sad the Medical Community Cannot help us, and Blame us Because they Cant find an answer!! I have a 4month old Grandaughter, and Would Love to  see her Grow Up!! But, Sadly I cannot take this anymore, So I am getting my affairs in Order, and I am strongly leaning toward Ending my Life. I wish all my fellow suffers A cure to this horrible Disease!!
Helpful - 0
Avatar universal
I have been suffering from CIU and angiodemia for 4 years now but only diagnosed for 2. Shortly after I was diagnosed with epilepsy. I'm on fenofexodine and citrezen for the hives but my consultant is talking about immune suppression. Has anyone had any luck with this?
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Avatar universal
I suffer chronic hives.  I weened down to 1 Zyrtec every 3 days.  At 9:00pm on the third day, like clockwork, I get a breakout.  I suffer with all of you.  I have been going to a Naturopath.  PREDNISONE IS THE ENEMY, I understand it works when your on it but the moment you go off the hives return with a vengence.  While I do believe CANDIDA overgrowth is the main culprit, which is a symptom of autoimmune disease, but no one here has talked about MERCURY.  Google Candida, Mercury, Hives and Prednisone...

The hives are caused by the Autoimmune Disease, not the other way around.  Also if you have any sort of Fungal Infection, i.e, jock itch, athletes foot thats a dead ringer for Candida Overgrowth.  First its a bacterial takeover of the gut, that leads us to Gastrointestinal docs who put us on meds that cause fermentation from our generally bad diets and lifestyles.  The Fermenting that happens in the gut creates a perfect place for Yeast to grow.  We feed Yeast with sugar and yeast, which is in just about everything.  After awhile the Yeast turns into a Fungus and thats when the real problems begin.  The Fungus then penetrates the stomach wall and gets into your bloodstream.  Your immune system begins to get overwhelmed and confused and begins attacking you.  

The pharmaceutical companies are profiting off of your illness.  Notice, almost every post mentions Prednisone or some other so called miracle cure.  Dont forget the connection to mercury... if you have Amalgam fillings... get tested.  You will not rid your body of Candida Overgrowth if you have Mercury poisoning.  I suffer with you and this information wouldve been gold for me 10 years ago.  God bless you all.
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