will i get any better

[twin149]

dr doctor  i have been diganosed with myofacial pain disorder and have been on a lot of pills that dont seem to really work i have been depressed and anexity is one big factor it first started in my legs touching would make me cry then burning sensations through my legs and then numbness.  i now have a lot of numbness in my feet and hands and the pain has also now traveled to my arms hands feet back.  i am on 60 cymbalta , i am on zanax 0.5 hydromorphone 2 mg i take 2 at least 3 times a day and also on tizandine4 mg 2 to 3 times a day although i dont take at work.  i am on a ateonl 100 mg for blood pressure and simstatin for cholestrol 10 mg.  my memory seems to be slipping a lot more often also.  i have had some slight chest pain but doctor has said it is normal but the numbness in my legs shouldnt be part of my problem and wants to send me to another neurolgist for a year i have heard everything from being flat footed to it being all in my mind which i feel like i am losing i walk with a cane and try to walk as much as i can i do a sit down job only 20 hrs a week because i cant do 40 anymore will i ever get to be feeling better or will this continue to make me disabled more than i am now  i guess i am asking if the tissues detirate and start to affect my nerves and mucles will it kill me .  i have had tests done both nerves and muscles are fine so far please if there is anything u can tell me that i havent already heard i would appreciate it

[LysaJane]

In my opinion you have made some sweeping statements about persistent facial pain.  I am one of those so afflicted and the origin of mine came after dental treatment that changed my occlusion.  I neither smoke and never have, nor do I drink (other than on the usual celebratory occasions that require a toast)  I have been bothered by fibromyalgia in my lifetime, so much so that I had to take ibuprofen on occasion just to get dressed in the  morning. You seem to suggest by your comments that this is a self inflicted disease. Yes, exercise IS  difficult. I will never run a marathon. When the body is not moving because it is painful to do so, calories are not being burned.  Being overweight is a "no brainer."

Recommend stretching exercises especially in a warm water pool if possible, progress to walking as much as possible.   10 mg amytriptline at night will help with sleeping as fibromyalgia is associated with non restorative sleep. Massage can be helpful. I have lived thirty years with the condition.  

One other avenue to explore.  Have you had your Vit. B 12 checked? A friend of mine who had the symptoms of fibromyalgia found she was deficient in the vitamin and needed injections. All symptoms vanished.

[J T Junig, MD PhD]

Hi,
No reason for the delay other than I get too wrapped up in other things.  I don't have great news for you;  'myofascial pain syndrome' is a term used for a condition where people have chronic pain that doesn't have a clear cause.  The term is usually synonymous with 'fibromyalgia.'  Since taking this forum, I have been surprised by the number of people who have similar symptoms;  pain in various parts of their bodies without a clear reason or solution.

There are no known cures for the condition, but there are clearly certain things that are more associated or less associated with the condition.  I don't know which is the chicken and which is the egg but people with myofascial pain syndrome in general do not get a great deal of exercise.  They tend to be overweight.  They tend to h.ave unhealthy habits, including smoking and bad sleep schedules.  I cannot think of a patient I have ever seen who exercises regularly, doesn't smoke, doesn't drink, and who has myofascial pain syndrome.  I am not sure why that is-- maybe once people have pain, they stop doing the healthy things.  But I think that the best way to reduce your pain is to increase your activity level as much as possible.  If you smoke, stop.  And work on 'sleep hygiene' and get adequate sleep.  Let us know if any of those things make  difference

[vivitools]

A related discussion, widespread muscular discomfort and pain was started.

[pain2009]

A related discussion, strange feeling was started.

[missingmn]

A related discussion, myofascial pain syndrome comment was started.

[TrudieC]

I would also suggest you have your vitamin D checked as it can also cause pain.  I have found massage a wonderful help for the pain.  You might want to look at nutritional changes.  This web site provides some good ideas.  http://www.bellaonline.com/articles/art26921.asp.  Good luck and I hope you get some relief.

[twin149]

dr doctor i still havent heard from u  is there a reason why