Yeah same thing is happening to my mom and just talked to a guy today that had the same as you and had surgery for two tumors in his neck. Something is seriously wrong when fast growing tumors are killing you all quicker. The truth needs to be out there.
Pray, I took harvoni july 2017 until October 2017. I am grateful that the Toronto general hospital said that thru blood work that virus is not detectable, but my mind is f#####d, Concentration, confused and angry and frustrated. Talked to nurse if I could write to some medical body to express side effect to no avail. She set up appointment at same hospital to see a shrink. He recommended take anti-depressants.
Can not win. I feel this is nothing more than an international drug cabel.
Wish i never took it and stuck with herbal and homeopathic remedies.
This is happening to my dad right now! It has been about a year from his treatment with harvoni! Went in for a scan in June everything was great! 3 weeks ago rushed to the hospital for retaining bam cancer stage for liver bile ducts... death sentence
How are you Doing? It has been over a year since your post and new studies are out that show an aggressive form of HCC ha--Enos to some people with advanced liver disease after DAA treatment. Please update us.
Same thing is happening to my husband!!
What type of cancer were you diagnosed with? My father took harvoni last year and was cleared of Hep C at the end of treatment. This summer after a follow up scan showed tumors in his liver he was diagnosed with hepatocellular carcinoma (there were several weeks between the initial scan, liver biopsy, other scans, & diagnosis). He sought a second opinion (in a different city at a larger hospital) about 4-6 weeks after original diagnosis and was told he actually has cholangiocarcinoma (cancer of his bile ducts). This is a very rare cancer and is unfortunately too far along at this point to treat so he is currently on hospice. Just wondering if there could be any connection to the Harvoni.
I am so sorry to hear, Hector is right, please do what he says as soon as you can. We have a member on here Crossroads/Karen who treated got to SVR then cancer was discovered. Her doctors did the procedures that Hector mentioned kept her well enough for her to get the transplant back in April.
Hector went through an arduous journey himself and just celebrated his 2 year anniversary for his transplant. We are so so lucky to have him here with us. He is the most knowledgeable person you could hear from.
If you would like ,Karen has a story of her journey which I found comforting
Ihelpc is the name of her blog and she describes it all. Very moving story.
As Hector said, hang in there. Dee
Unfortunately cirrhosis cause by hepatitis C is the main cause of liver cancer (HCC) in the US. It is not common but it can happen for two tumors of that size to develop within 6 months. Ultrasound is not 100%accurate for diagnosing HCC (neither is CT or MRI for that matter, but they are higher resolution than an ultrasound). In a cirrhotic liver the cirrhotic liver tissue abnormalities can often mask the cancer. Meaning it can be difficult to differentiate between the two, the cancer and the nodules of a cirrhotic liver.
Sadly curing hepatitis C doesn't instantly cure the cirrhosis which is the cause for the development of HCC. It is the combination of hepatitis C caused cirrhosis that causes liver cancer. In fact if the cancer hadn't already started developing, being cured of hep C would have greatly reduced the risk of developing liver cancer. This is another reason for people with cirrhosis to get treated and cured so they can reduce the risk of developing liver cancer. The risk doesn't totally go away, because anyone with cirrhosis can develop liver cancer but it is greatly reduced from 3-5% per year down to about 1% per year..
What to do?
Get in touch with your nearest liver transplant center ASAP. Tell them of your situation and get your medical records sent to them. They will see what they can do. Hopefully they will be able to get you within transplant criteria (size and number of tumors) by treating with HCC treatment ( TransArterial Chemoembolization (TACE), Radio Frequency Ablation (RFA)) and downsizing the tumors until you are able to get a liver transplant. Liver transplantation is only cure for HCC in someone with complete cirrhosis.
If you more details tell me where you are and I can help you to contact a liver transplant center near you.
Hang in there.
I believe that Hector may best be able to answer your question
Were you receiving your routine every 6 months ultrasound to detect liver cancer during treatment?