Weird mouth that keeps flaking

[bevit]

I have been plagued with what seemed to be dry mouth for more than year after using Lyrica (for fibromyalgia) for a month. It seems that it is NOT "dry mouth" since my mouth was checked for lesions and salivary problems by my regular dentist, a periodontist DMD, and the U of MD Oral Medicine Clinic and they all can find nothing. Meanwhile, i have tried every dry mouth product and am awakened from sleep often at least twice nightly by flakiness and discomfort in my mouth. Drinking water gives NO relief. Also my lips are constantly dry and lip products never seem to help more than a half hour. My palette often sheds tissue and there are slightly sore spots on my tongue although they do not "appear" sore. Even my teeth feel different in my mouth and yet no one 'sees" a problem.

[scottma]

Sjogren's syndrome is a common comorbidity of fibromyalgia.Lip biopsy may reveal histopathologic feature known as benign lymphoepithelial lesion. Those faculties in the department of oral medicine or oral pathology are supposed to know this.If you do have sjogren's syndrome, which is further confirmed by medical studies, comprehensive medical management is required. In the mean time, you may try oral balance, which is probably a non-prescription artificial saliva. Neurologist or orofacial pain specialist may help identify whether your problems are neural dysfunction or not, their knowledge and practice are not limited to pain management.

[scottma]

it appears you are afflicted with relative xerostomia, if saliva collection demonstrates that salivary gland did produce nomal amount of saliva. peripheral and central neural dysfunction may be implacted in your presentations. Seeing an orofacial pain specialist or neurologist is advised.

[bevit]

Yeah, I'd thought Sjogren's too along with my eye Dr. but my rheumatologist ordered a blood test and said it wasn't Sjogren's; also not all the symptoms "fit" when i'd read up on it. Oral Balance was one of the first treatments I'd tried but it didn't relieve my symptoms very long. Also I did persist with U of MD by phone until I reached another Dr. there that DID reconsider my case and all i have to do is drive the 2 & 1/2 hours each way to be reevaluated; this time they'll do what i originally requested namely a biopsy, as the local peridontist had suggested this summer. I'm curious what "comprehensive medical management" might entail and hope it wouldn't include drugs since I prefer to be holistic and "natural" when possible. I would guess that here on the eastern shore it might be hard to find an orofacial pain specialist so i guess I'll contact a neurologist... THANKS AGAIN! I'm tired of feeling like I've got super-thin fish scales down the back of my throat too!

[bevit]

Thank you for the reply. I know that pain is a neurological problem but there is relatively no pain associated (other than the rare sore areas on my tongue) with my discomfort. Its more of a chronic disgusting feeling which leaves my mouth and throat feeling rather flaky and rough. The trip to U of MD was actually the maxillofacial and dental department as well and they didn't even do a biopsy since it all "appeared" normal. I've been thinking about possibly trying a dermatologist although i'm not sure they'd deal with mouth tissue... By the way, U of MD did send me home with xerostomia info but i could find no remedies within it.