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Avatar universal

Please help with HEART mystery!

Hello,
So this is the back story.
Patient: my Dad, 57 yo, heart attack 5 years ago (2 stents), fine since then until a year ago when he started having problems to sleep laying down, he started increasing the amount of pillows until now when he has to sleep almost sitting. When he lays down in the slightest he gets the following symptoms: breathless, pressure in his head, dizzy, nausea, swollen jugular vein, cough, swollen hands.
This started getting progressively worse, Cardio did an Angio and decided he was fine because he only had 2 50% blockages (in main arteries though) which weren't flow limiting (according to the doc) so he gave hiim some medication and sent him off, another appointment in 3 months time.
2 weeks later my Dad was admitted in hospital with unstable angina. In his worst (when we called the ambulance) he had been experiencing chest pressure, and all the above mentioned symptoms while resting, even talking would leave him breathless. His Oxigen in blood was VERY low when he was admitted. He was in hospital for 10 days. He never received a diagnosis.
The tests they did:
Ecocardiogram: normal ejection fraction in both ventricles (50%)
ECG: normal (slight problem in right ventricle but non-problematic) therefore he was told he didn't have Heart Failure (even though he has all the symptoms), also tested for 'hole in the heart': normal.
CT Scan: normal (no major pulmonary embolism which was initially thought), slight problem with lungs diagnosed as COPD (obstructive pulmonary disease) supported by air flow test.
Blood tests: normal (except for oxigen, which overtime became stable).

Diagnosis: "we're not sure what happened to you, but you may now go home" Thanks for nothing!

They gave my dad some medication for the COPD (inhalors) and some pills for his angina. But never explained why he deteriorated so quickly nor what the root of the problem is or why he has symptoms of heart failure.

TODAY: He's been out of hospital for 2 weeks, he's feeling slowly better, no chest pains (due to angina meds) occasional breathlessness, we've bought an Oximeter and his oxigen in the blood is now normal.
However, symptoms he STILL has: swollen jugular vein, constant cold hands and feet, swollen hands, feet and tummy (also before, was given a diuretic for it but the doctor took him off it because he didn't think he had heart failure and thus didn't need diuretic), he STILL cannot lay down, exact same symptoms as before occur at night if he lays down in the slightest, plus, he is having terrible headaches and migranes every single day (possible side effect of his meds?).

CAN ANYONE HELP?
We do not knw what else to do. Not even being IN the hospital helped the docs understand what he has, meanwhile his quality of life is quite poor, and doctors literally don't care. The results were normal, therefore he's fine (docs OWN words). They just ignore his symptoms.

ANY SUGGESTIONS would be greatly appreciated.

Thank you!!!!
2 Responses
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Avatar universal
There is a super virus that causes the symptoms you list.  It attacks the major organs of the body, and causes symptoms of Congestive Heart Failure.  There is no name for it, and when the doctors test the patient, nothing shows up, and therefore they won't believe there is anything wrong with the patient.

My husband contracted the virus while being seen in the local ER about 4 years ago.  He had all the symptoms you speak about, and he was convinced he was going to die, yet his doctor told him he needed to have his head examined by a professional.  He was lucky, as he finally got better, and the only lingering affect is an irregular heartbeat.  However, after 6 months, I contracted the virus from him and even though I managed to survive, I was left with End Stage Renal Disease, and Stage 4 Heart Failure.  I have an ICD, and do dialysis 6 days a week, just to stay alive, and it was all caused by the virus.

My husband and I were very fortunate that we were at peak health when we caught the virus, however, we know of several people who have died from it, one young person who was 19 when it killed him.  He was in one of the major Medical Centers, locally, when I talked to his doctor and told him what was going on with the young man, but it was too late, the virus had done it's damage, and the young man needed a heart, liver and kidney transplant to save his life, but he died waiting.

My point is, don't hang too much on what the doctors are saying, and keeping looking for  a doctor who will believe the seriousness of the situation.  There is medication that will help the symptoms, but you have to find a doctor who will prescribe them.  

I hope the best for your Dad and you......
Helpful - 0
Avatar universal
Ask for a DNP level which will show how much fluid his body is holding.  That would be my 1st request.
http://www.************.com/tests/bnp.htm#bnp_levels
Helpful - 0
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