Body Literally Deteriorating-Please Help. Very Desperate

[tomtom940]

I am a 20 year old male, athletic build with sinusitis being only past medical history. There is a lot of cancer on my father’s side of the family but none on my mothers.
During the summer, I started to develop stabbing abdominal cramps followed by mustard-yellow colored explosive diarrhea. The diarrhea was abnormally foul smelling, it floated, and seemed really acidic. When I wiped, the toilet paper would look almost neon yellow. Two to three times a week for the three month summer vacation, I would have this yellow diarrhea. I figured that the yellow color was just stomach acid and nothing to worry about. In late August, when I returned to college, I started to get this diarrhea consistently for a full two weeks that was accompanied by lower right quadrant abdominal pain along with lower right back pain, night sweats, weight loss, chills, and thirst increase. When I eventually reached out for help in early September I was rushed to the E.R. for a possible appendicitis. The CT Scan in the E.R. showed that I had borderline appendicitis due to the appendicitis not filling with the contrast fully and the mesenteric lymph nodes of the area being “shoddy”.  I was given Cipro and Flagyl for two weeks to see if that would fight the infection. After an ultrasound, they found my appendix healed completely. While the yellow explosive diarrhea has returned to coming 2-3 times/week (rather than the daily occurrences) the pain in my lower right abdomen and back continued at the same intensity. Meanwhile, I started to lose weight rapidly.
After a colonoscopy showing inflamed nodularity in the terminal illeum, an endoscopy showing “abnormal” results(definitely non-cancerous) in my upper small intestine and signs of GERD, another CT scan showing a thickened terminal ileum, and another six weeks of Cipro for a cured prostatitis, my gastroenterologist seems stumped. He has tested my adrenals and for any sign of infection-No Luck. He wonders about Crohn’s Disease but has no true evidence and truly doubts that Crohn’s Disease with this little amount of evidence could be causing these extreme symptoms. Since this is my second opinion doctor, I have another Colonoscopy AND Endoscopy on Wednesday so he can clarify those “abnormal” results and so he could look at my colon and ileum himself. Meanwhile, he is also doing a stool fat test that should have results by tomorrow.
By November I had lost 25 lbs so I started to eat much more than normal yet I still am not gaining weight (yet I am not loosing anymore weight). I am the most exhausted I have ever been in my life and these four months since September have truly been torturous. With my family history, I wonder about cancer of the pancreas, endocrine system, small intestine and lymphoma/leukemia. Yet, I feel that something would have showed up by now on the two CT scans or the procedures. My family and friends are very worried about me and I am truly worried about dying. I am deteriorating. Please help

[tomtom940]

I just got off the phone from my doctor who just told me that the endoscopy came up with "holes" in the duodenum yet the biopsy was tested for all diseases the in-house pathologist could think of. Also, the colonoscopy came back with many ulcers in my illeum. With the thickening of the illeum from my last CT, the colonoscopy results, and the symptoms I had, the doctor was ready to diagnose me with Crohns. Still, he wanted to be sure so he order a capsule endoscopy for me. The capsule came back negative, however the capsule went through the illeum too quickly to get a good look. Still, the rest of my small intestine looked fine. Therefore, he is not willing to diagnose me with Crohns. Soooooooo now back to the drawing board. I am going to suggest a "trial" with Crohns medications while I am getting tested by many of the tests you listed above. Thank you again for all of your help.

[MaximusXIX]

If you feel to share any more experience about this disease. Don't feel shy, I can maybe answer some other questions as well.

[tomtom940]

Thank you so much for your response. I really appreaciate someone having my back on this. It's nice to here that you finally found an answer. Also, I mispoke when I said "I am truly worried about dying". I just feel run down and I am the skinniest I have been in at least five years. The pain is uncomprehensible and I am just desperate for an answer. I may have been a little dramatic at the time when I posted last. Sorry about that haha. But still, thanks for understanding where I am coming from.
Feel better Max. I am in my second semester too so I can completely relate. I wish you the best of luck.

[MaximusXIX]

    These tests usually take a long time to find something going on. It's a time consuming process to diagnose things with people. I have felt your pain and at a much younger age. I was 18, athletic and lived a healthy lifestyle part besides junkfood every summer break.
   I then went on a drinking binge for New Years and the next morning I had horrible stomach pain which led to a bloody stool. Went to hospital and first said it was a hemmaroid and then I got a colonoscopy done 3 months LATER! Diagnosis: Ulcerative Colitis. I lost 25 pounds and was heart broken that I was having this issue. I have no family history of IBM problems or any disease besides alcoholism.
     It may seem like you are dying but their will be times where you will be healthy once again. I was 135 my 1st year in college. This is my third semester now and I am 150 pounds and counting. To make things better, don't stress it out as much or the pain will only get worse. Good luck you Tom. Hope everything goes well for you.
                                                    -Max Lopez