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Hi - not sure if my experience with Crohn's and Sweet's Syndrome is helpful, as I live in England. Some 5 -6 yrs ago I was wrongly diagnosed with Sweet's Syndrome - the lesions had spread up my nose, across my forehead, and my eyelids were almost closed. My husband tooke me, late at night ,to a specialist Eye Infirmary in Plymouth, Devon. The Consultant Opthalmologist advised I had "herpes simplex" and advised me to see my GP next morning. I did, and he, unbelievably, diagnosed impetigo (I had not been near any children). I was very ill for about 7 days with a fever, chills, muscle pain etc. I had no proper medication, just an anti-histamine.
Sometime later, I saw my then gastroenterology and showed him a photo of the lesions and he (wrongly) diagnosed Sweet's Syndrome. The dermatologist who gave the disease its' name was based at Derriford Hospital, (which is where I am treated for Crohn's and breast cancer) but not sure if he is still alive. If alive, he is retired.
A couple of years later, I had the same symptoms, thought I had Sweet's, and my husband called out the paramedics who admitted me to hospital. My new gastro (who had worked in a leper colong in Africa) took one look at my face and said: "You haven't got Sweet's, you have Erysipelas". Wow!! I was admitted overnight and next morning saw a Consultant Dermatologist, who biopsied the lesions and my gastro was correct. The treament for Sweet's is not steroids, but a specific antibiotice - I think it was amoxicillin. The attack cleared up much quicker than previously.
Did your husband's Dermatologist do biopsies? If not, perhaps it may be a good idea to ask for this procedure to make absolutely sure of the diagnosis.