EXTREME PAIN AND TERRIFIED

[steven133]

Hi my name is steven 22 yr old male i was diagnosed with crohn's about 3 years ago by endoscopy and colonoscopy,i was put on prednisone pentasa and 6mp  i got well very soon taking in consideration i droped from 190 to 115 in about 5 months and gained this back in 3 but i started flaring up again and i lost wieght again this was about 9 months ago now i weigh about 150 and since then i havent been all to well i have a small kidney stone on my left side but  some times it hurts on my right side i dont get that also diarrhea all though some times i have solid stools and i have 3 days now vomiting not all foods but certain things make me vomit like ICE CREAM OR MILK IN GENERAL and wats funny is that this didnt happen  before i could tolerate dairy and all foods wile on meds but im concerned because my lower back and left side of my abdomen  hurts   lets say i go up a hill it hurts  or just bending down for a minute or two hurts  also i got x rays done of my chest because i had pain also there all came back good and got blood work all good to in a few im going in for a PET SCAN im scared idk why but i read lower left pain diarrhea lost wight ect.. could also be RECTAL CANCER and that freaked me out so can anyone give me some advice

thanks allot
STEVEN

[steven133]

thanks allot  as i told liz im going to start taking remicade next week hopefully this will help me more and also i have to eating moe healthy and exercise a bit more because also the prednisone is messing up my bones i get hip pain and should pain so im deff putting on my bullet proof taking my shottie and going to war with crohns i cant have this no more 4 years of bad health ....but really i apreciate you taking the time to respond b safe god bless

[steven133]

thanks allot for your response im more calmed now and i got my pet scan today just waiting for the results my G.I said my crohns was active again and im flaring up he did the pet scan to determine if my body is right for remicade because thats the drug ill be put on starting next week also im going to talk to him about my pancreas and doing does other tests you said see what he says but dont worry im very active on talking about my disease with him i research everything and im up to date with this curse that we have to live for the rest of our lives with or atleast till medicine advances more

[Dent709]

If it helps she is right on all fronts. Chrones or colitis are both painful and exceedingly unpleasant! I was diagnosed at the age of 13 ( I am now 18)  soooo don't rule it out entirely. stick with the drugs your given, btw remacade is the best drug so far that I know of and has worked wonders for me!
Hope this helps

[lizziecee]

Hi Steven

first of all...calm down and forget about rectal cancer!! Very unusual in someone your age.

I have had Crohn's for 40 yrs and still alive...but it is very debilitating to live with.

It could be you are not metabolising fat, hence the problem with ice cream, milk etc. If your stools are "floating" it means you are not absorbing fat, and hence the loss of weight.

I don't know why your doctor(s) are recommendintg a PETscan, really over the top, but I guess you live in the US and your doctors will prescribe anything that costs a lot of money. I would suggest you see a gastroenterologist, pronto, and have a C-reactive protein blood test and calprotectin stool assay test.  Both of thest tests will identify if your Crohn's is active if out of the normal range.

The pain in your left lower abdomen could be indicative of strictures (narrowing) in either the small or lage intestines. in the right side usually means inflammation in the terminal ileum, the last part of your small bowel. An MRI scan will identify both these problems..

As far as the fat in your diet is concerned, ask them to look at your pancreas...I have recently been diagnosed with calcification of the tail in my pancreas, and need to take Creon enzymes when I eat, to metabolise what little fat I eat in my diet.

Perhaps you need to talk to your gastro about immuno-suppressants, like Infliximab (Remicade) or Humira, instead of your current meds.

If you are vomiting, I would seriously suggest you go to the ER and get some help.

Take care.
Liz.