I am not sure the post from rox74 is appropriate for this forum. Can you please look into this, and perhaps delete the post?
Many thanks.
lizziecee, Community Leader.
still undiagnosed...results came back and all the biopsies were normal...doing more blood tests & sending me to an allergy specialist to see if i've developed food allergies...just playing the waiting game & praying it comes sooner rather than later.
Thank you for all the tips, I'll definitely try anything to help with the nausea. In the next week or so my biopsy results should return & hopefully can get diagnosed & treated.
thank you for all your help!
Hi another Liz!
You sound as if you have Inflammatory Bowel Disease = can be either Crohn's or Ulcerative Colitis....they are very different as UC only affects the first layer of mucosa in the small intestine, Crohn's, right through 3 layers and can cause fistulas. The severe loss of weight is indicative of Crohn's, when I was diagnosed some 40 yrs ago, (still here and fighting!) I weighed all of 70 lbs.
Nutrition? I take 3 small bottles, 200 ml, some 300 calories, of Fortijuice daily - all the vitamins and minerals to survive. I tried the ghastly Ensure drinks but they made me feel nauseous. I live in England and have to get these on prescription (luckily our socialised NHS pays for them) but there must be something in the US that is similar.
Perhaps your gastro is not explaining things to you correctly, or you are not hearing..difficult to when first diagnosed and trying to get your head around an incurable disease. You can have, as I have "pan Crohn's Colitis" - this just means the Crohn's is not only in the small intestine, but also in the large colon, hence the term "pan", meaning everywhere.
Need any further help, let me know?
take care,
Liz.
I also have lost a lot of weight. in almost 3 months I've went from 110 lbs. to 96lbs. This may not sound like much, but I'm 5'2" and cant afford to loose much more! Any suggestioins on what to eat that can help me bulk back up? I need more energy!
I'm 24 female and I have Ulcerative Colitis. I'm going to see a specialist at St. Vincents in Toledo, Ohio about my problem. My family dr. seems to think I have Ulcerative Colitis AND Chron's. I'm not sure if you can have both, but I know the two get confused for eachother very easily.
When I have a flare up I have:
~ Lovwer left cramping, not tender but I wont be able to stand up straight. Actually, when I push on that spot it relieves the pain a little bit.
~ Get to feeling like I'm going to get sick with it
~Headaches
~Mucus in my stool
~Get gassy accompanied with belly cramps (like I have to go to the bathroom)
Before I changed my medicing to Pantasa from Asacal, I was having diahrrea really bad with lots of mucus and some blood. I went to the ER 2 days ago and all they did was give me some moraphine (which didn't help) so they gave me something stronger (I cant remember the name of it). I'll let you know what I find out on the 30th. Maybe you have Colitis or something.
The first thing I would do is get to a good health food store. You need to start taking enzymes. This will help you digest foods properly. All the meds your were on, antibiotic, prednisone will all give you gastric problems, and diarreha. As it happens my son is 20, completely healthy athletic college student. He was on the floor the other night screaming in pain. We took him to the ER. He was diagnosed with inflamed colon. It can be caused from a virus or colon disease or salmonella poisoning.
He is at our doctor right now. I am very worried. However I am not sure I will have him go through the amount of tests you are going through. I would have him look at diet, stress reduction, acupuncture and a naturopathic doctor. All of your tests are coming back normal thank God. So delving in to other possibilities like do you eat soy? are just some of the things I'd look at.
You can buy fresh ginger at the grocery store, peel off the skin, boil hot water and put pieces of the ginger right in the tea. It helps so much with nausea. Look up pressure points, acupressure points on the body for nausea. There is one on the wrist, you press on it, it really helps me with nausea. I hope some of this helps. I wish you the best and please look in to alternative medicine and consider take an enzyme with each meal.
Hi There,
I am sorry you are having this problem; I am not a doctor, but I live with a person who has Crohn's Disease and she has been known to have lots of nausea and even vomit out-of-the-blue. She did alot of belching and had gas. Her abdomen was sensitive to touch. She just felt lousy with burning bellyaches and stomach pains. She too lost weight before being diagnosed with Crohn's. See your pharmacist, they keep an over the counter medicine in the refrigerator that helps with bacteria in the stomach. See your doctor for some pain RX; it should help with the pain until you get a diagnosis. See a doctor for anti-diarrheal RX or try the over-the counter Immodium. Get proactive and start researching gasterintestinal disorders.
Good Luck,
Izze
well Im not sure but I was talking to a mom that her daughter was having the belly pain at night and found that if she eats an apple at bed time she is ok no pain. but i'd like to know the results of the colonoscopy? have u been tested for Celiac's or Chrohn's those are the 2 things I know that can cause those prbs that u are having look them up and see and get tested for that. I hope this helps. Let me know what u find out best of luck. I to am waiting for labs to come back of colonoscopy to see If I have Chrohn's. My mom just few months ago found out that she has Celiac's. your in my prayers good luck and please let me know how things go.
nikki0207