Has anyone been on Humira and what kind of result did you have? Any side effects? I am on lots of meds which are not decreasing the pain. My doctor wants to put me on Humira and I was wondering if anyone out there has had any success with this drug. I am desperate to NOT be in pain anymore. Help...Kim
Last week was awful. Chest pain vomiting at the er they said a virus. I contactd my gastro office to inform them. Well, the had the nerve to call and say the reviewed the report and it was caused from me not taking my meds. That was a d@#$% lie. I had thrown up the meds. How stupid. Of course this isn't the first time they het their info wrong. They have screwd up my scripts on countless times. To top it off messed up my humira refills and shipping. I have to always check on everything their suppose to do.
I am doing better. Today 9 days later. I just get so upset when someone doesnt do their job. Just needed to get this off my chest. My birthday is n a few days I hope to eat something solid. Oh forgot to say its just been liquid for days. Better than a feeding tube. Do any of you have this problem?
My mom has had Crohn's for almost 30 years, and she has been in remission for 10 years. She has had multiple surgeries when I was younger, and was already on Remicade during the worst of it about 11 years ago. A few weeks ago, she had a flare-up for the first time in a decade. Her doctor recommends putting her on Humira, but she is concerned about the side effects. We have several babies/toddlers in the family, and you know how kids get runny noses and little colds often. She's worried because her doctor said Humira can cause you to catch infections often. Has anyone else who has been on Humira experienced this? She's also concerned about the more serious illnesses that can come from taking Humira. Please let me know!
yes it lowers your immune system really low at first. and everytime i took my shot i had a sinus headache and felt like i had the flu for about 5 days. but i'm in the 9th month and the last 3 shots actually have helped me feel better. sometimes the risk is worth it. i was so sick and at 98lbs. i felt like i was dying and i didn't have other choices. most other meds have failed. but i didn't give up. i've only been in remission once since 1997. but i'm thinking positive. i keep my hands washed an use the hand sanitizer. wet wipes for the potty. also, keep all door knobs cabinets and counter tops wiped down with anti-bacterial wipes or bleach-water. stay away from children who have had their shots. i go to the store when its not busy with alot of people. and get the first app. times when i have to go to the doc or whatever. and i go to the park with my husband to get out of the house in the fresh open air. hope some of these tips help.
Hi - just a quick update - great news for a change after last year's "annus horribilis" - well my name is Elizabeth, so I can use our Queen's word terminology after the horrendous fire at Windsor Castle. I had a consultation last week with a gastro - not my normal one as he was Consultant on duty on the in-patient wards (the one with a spinning halo around his head) and learned something new, which does alarm me a bit. I have only seen this gastro once, when hospitalised last year with a pulmonary embolism, which my docs think came from my previous breast cancer, which had spread to the axillary lymph nodes in my right armpit.
I was under the impression, when first given Infliximab (Remicade) last July, that I would have 8 weekly infusions for life; been on them since July 2009. However, this gastro said the protocol now is to give Infliximab for one year, then they will stop the infusions and see if the Crohn's flares again. Yikes - I cannot contemplate going through last year's 4 hospitalisations, surgery, small and large bowel resections, severe flare, then pancreatic insufficiency, not to mention 2 and a half months on enteral tube feeding at home - 10 hrs a night wired to a machine in my bedroom. Crohn's *****!
I am doing sooo well - am now a healthy 112 lbs and have a lot more energy, just some days diarrhea after eating breakfast. I have tried eliminating all items I thought could be the culprit (wheat, tomatoes, fibrous veggies etc) and eat a high protein, high carb diet, with as little fibre as I can tolerate - virtually no fat, just enough to keep me healthy
Not sure what to think - whether there is new research on using Infliximab, or whether it is a cost factor - I live in England, and we get "free" medical treatment at the point of delivery. We do pay though, when we work, some 13% of salary for National Health Contributions, and our employer pays 14%, so it is not really free....only for those that shirk work and immigrants from the newly enlarged European Community, including Eastern Europe who have not paid one cent into the NHS system. The goal posts have changed dramatically.
I am due for more "imaging" he said, as we suspect my pain on rising, and diarrhea after breakfast is due to more strictures. He said I have had enough ionizing radiation for 2 lifetimes, having had Crohn's for 40 yrs, so I am hoping they can do the imaging by MRI
All in all though, I feel terrific, got some much needed energy, although I try to do too much, and am learning to pace myself.
Great to hear from you I was wondering how you were. It sounds as if you and I are on the mend for a change. I hope to stay there. My problem is when I travel with my husband and need meds. The nurse always it seems to mess them up and I get blamed. She even said that she would not call anymore meds in till I see my doc. Now keep in mind me traveling is not new to them. I'm gone 2-3 months at a time. If they would not keep messing with my meds I think that would help me get stable for awhile. If you have any idea's on how I should discuss this please feel free. I just don't feel the treatment is right because when I'm back and go in for an app. they eat us up. I always bring them a cake or cookies. Its not like I'm the annouying patient that calls all the time. This last time which was just the other day the nurse hung up the phone on me. I didn't even have the chance to ask about my results from lab tests. I am just tired and upset over the constant problems with them. I feel as if I am at their mercy. They even have missed refilling my humrira. If I didnt check and stay on top of all they are suppose to do I dont know how things would end up. Liz or anyone else have a suggestion or have had the same experience please share. My app. is May the 14th. So, let me hear from you crohnies.
PS-On good days i do all I can. But am learning to pace myself also. i just want my life back.....well, at least a normal crohn's life. ha ha ha......
Ihave a question which I have been forgetting. Does anyone else have a problem withbladder and kidney infections over and over again? I have had 4 already since Dec. 23,2009.
Also, the humira is helping the crohn's but nothing for the RA or even just joint pain of any kind RA or not. Anyone else like that out there having or have had these issue's.
i was wondering what are some of the meds you other crohnies are taking? i am taking bentyl but i do not like the side effects? lomotil really doesn't help. i have read about donnattal & belladonna and had it in the er once. it worked with no side effects like bentyl. you guys know that weird stupid feeling you get on anti-spas. i am trying to get all the info i can before this next gi app this time. i know there has to be other meds to try. if my doc will listen. please i need suggestions and info. my meds are librax, lomotil, tincture of opium, loratab, ultram or tylenol 3(they change the pain meds back an forth alot), bentyl, zofran, humria, carafate liquid, kapadex, pentasa, benicar, b-12 injection, nu-iron. i think thats all.
even with those i still have at least 10-15 bowel movements a day. if i do not take something they can be as many as 20 or more. no joke.
i hope this next visit goes well. i feel if they would just lesve my meds alone for awhile that maybe i could get stable or even remission.
i am making notes to take with me to this visit. thanks to all for listening to me in the last few post. its good to have a place to vent it out.
i have been soooo aggravated when i have written the last few post. ibd and crohn's *****. you all know that. but i am trying to remain positive. that which doesn't kill us only makes you stronger, right?
You need to see a urologist and ask them to find out if you might have a fistula to the bladder. I had a bladder infection that would not clear up and that was the cause.
Let me know what you find out.
Thank you so much for the info. How did you feel other than the bladder infections? Did you have a test ? What did they do to remove the fistula?
I had a fistula near the rectum and had to have it removed. It was 2in long and 2in deep. It had to heal from the inside out. So nasty and incon. Thank you again. Please more info if you can.
I am a 50 year old male and was diagnosed with Crohn's when I was 13. I have had four surgeries related to Crohn's, colon cancer was discovered on my second to last surgery in '97. Cancer was found in time, before it spread. Timing is everything, and regular checkups. My struggle with Crohn's continues.
I have tried all meds except the biologics. I have been researching, via internet, LDN (low dose Naltrexone). Dr. Jill Smith at Penn State (Hershey) has conducted clinical trials using LDN and has claimed positive results. Has anybody tried or heard of its effectiveness?
I was feeling so much better than I had in months. I had started Remicade and it was doing wonders for me. I could actually eat food and was getting entergy back. Just cloudy urine.
Yes, had to have it removed. But this happened to be a blessing in disguise, because I was feeling great, getting strength back etc.
They did a bowel resection and I had 2 fistula (only knew about 1). Just as Davedog, they found a cancer in the crohns infected part of my colon, It was just a mass of colon all wadded up, the bariatric surgeon said he didn't know how I was standing it. In the middle of all the infected colon they found a cancer. It was an incidental find and was so new and not spread that I didn't have to have further treatment. I went to the oncologist every 3 months for a couple of years, now every 6 months and later 1 time a year for life.
I know that if I hadn't had the fistula and had to have it removed, I would be in really bad shape by now as the cancer would have been rampant.
So far my crohns is still in remission. Best of luck to all.
Liz and Davedog,
Hope you are doing better each day. Attitude helps us make it through each day, keep a positive attitude and get better.
Things went good and bad. So, here is the good. I have gained 7 lbs. Now I am at 123lbs. In Dec. it was 98lbs. Big improvement. My blood work was good. However, my amaleyse is staying up. Along with excessive wheat in my stool. To deal with the wheat I'm now taking Diflucan for ten days. The pancreas issue with the amalayse to high is the result of pancreatitus. But they didn't really say how we or they were going to treat it. But at least they know now why I stay nausea with severe vomiting and stomach and right side (r. flank) pain. So, if any of you fellow crohnies have this pancrease problem please let me know how you are dealing with it and your treatment. The only thing I know from the other attacks is for me to stay away from fatty foods. Which i do anyway. I eat no more than 35 grams of fat a day. I know that when I was taking Imuran I was in the hospital 3-5 days. about 10 or 12 years ago my old gastro thought I had the pancreas attacks twice. Which It never happened before and at the time it just happened when I took the Imuran.
I have been on the humira since Aug. every two weeks. I'm still having alot of very watery bowel movements, vomiting, fever, chills, joint pain, stomach cramps, intestinal, spasm's. So, they decreased the bentyl to twice aday instead of 3-4 times. Two loratabs to 1 at bedtime. Zofran 1 every 12 hours instead of 1 every 6 hours. That wasn't a very good idea I thought. But wants me to take 4 drops of opium tincture and 6 lomital a day. So, now the humira every week. I guess we will see how it goes. They gave me two humirra samples. I'm worried that it is just some that was returned when another patient couldn't take it. Because it does not say sample on the package. I didn't think it came in a sample. i'm going to ask someone from where it is shipped from every week. I have enough problems without using a bad injection.
Sorry this was a long one but that brings you all up to speed. Please let me know if any of you have or had any of the above problems.
I am 18 and Found out I had chrons an colitis. a year ago, I went through alot of pain and doctor visits and a lot of meds, I got the things called inflimation tumors, I spent most of my time in the bathtub or in bed... It hurt to move, finally after so many new medications not helping my doctor put me on Humira. It has helped so much, after my first four shots I could start to feel it working in first hour!. my inflimation tumors went down in size the very next day, they are gone now.. Only thing humira does to me is when I take the shot, Im usaully pretty tired for a few days, but id rather be tired then in pain!!. if anybody would like you can email me for details, Breanna_dalton***@****.
Hey, I have Crohn's and my doc put me on Humira, I loved it, it was a great drug (make sure you numb the injection site, though), and got me off the Prednisone for the first time since my diagnosis. However, you can catch any and all infections out there. For example, my coworker came into work with a bad cold, so I got the flu, and ended up in the hospital for a month from a flare up orginating from the flu...go figure. So, I loved Humira, but be careful of sick people, since the drug's an auto immune suppressant.
How are you doing? I hope to go on vacation. I need a week with no doc apps. Its our anniversary so its more than just a vacation.
I started off great 2 months ago. I was going to the YMCA with my husband working out and riding my bike at the park. I was going almost everyday. Then the gastro wanted me to start taking the humria every week. That was a bad idea. I suffered 10 months before my body got use to it. It has made me sick. I can't and will not do it every week. I had even put on 1 1/2 inches of muscle. By the forth week of the shot - I was ill. So, i have stayed in our apartment. I joke that I'm like the Hunch back stuck up here for 3 weeks. My amalayse level has been high causing pancreatic attacks.
I am thinking positive. I have something to look forward to.
For all that have taken or is taking Humira and have a problem with the pain of the medicine, I have a trick that I do when I take my Humira. I put an icepack on my abdomen for a few minutes. I wait until the stinging is gone from putting something so cold on my abdomen. Then, I know that the abdomen is numb and I then take my shot. This keeps the medicine from stinging so bad. I hope this helps someone with this small complication.
I don't have any fistula's in my bladder or track. It was interstitial cystitis. Doc took biopsies to rule out bladder cancer. Get the results on Aug 17th. We are thinking positive and praying. The biopsies hopefully with the bladder being filled to the max ( I was out for this one) it stretched it and will stop me from urinating 20 or more times a day. Blimey mates its hard to stay hydrated for the crohns and now this. Hope this helps someone from suffering as long as I have.
PLEASE let me know how some of you felt when you stopped taking the humira. I'm really wanting to stop it. I have been sicker. Been on it one year. I don't think I should give it any longer to get better.
I HAVE BEEN DIAGNOSED WITH COLITIS AND I HAVE BEEN PUT ON LIALDA AND STEROIDS AND HYDROCORTIZONE AND NONE OF THEM SEEM TO BE WORKING I HAVE BEEN HAVE REALLY SEVERE FLARE UPS NOTHING BUT BLOOD MOST OF THE TIMES I GO TO MY DOCTER FRIDAY AND IM A GOING TO ASK THEM ABOUT PUTTING ME ON REMICADE I CANT GO NO WHERES CAUSE I HAVE TO BE NEAR THE BATHROOM MY LIFE HAS BEEN MISERABLE IF ANYONE HAS ANY INFORMATION THAT I CAN HELP ME MAKE ME A LITTLE BETTER PLEASE LET ME KNOW THANK YOU FOR YOUR TIME
Well, i had to be off the steroids before they did my remicade. However, that was 10 years ago. Boiling cabbage and drinking the juice halps soothe those spots that cause you to pass blood. Also, aleo vera liquid you can get at gnc or some walmarts will help sooth it. Ibupropen or motrin will cause blood to pass more. They help our joints and arth pains but its very hard on crohnies. Hope this helps.
Hi I have UC.I have been on Remicade for years. I do not mind the 2-3 three hour infusions. I am in remission at this time and I feel great. I am not on any other medications at this time. My doc has recommended that I switch to Humira?
I did remicade i wish i had it instead sometimes rather than humira. it makes me soooooo sick for three or four days. but hey some dont have this happen. but i think most do. it fels like the flu. i have been on humira a year and it still makes me feel very bad and weter each injection. good luck.
Hey all you fellow crohnies. I had my gastro app. An for those of you who have read my other posts you will understand what happened. I was suppose to be taking the humira every week. But it made me so sick - that I went back to every two weeks. I feel better. However, my dumb gastro n.p. thinks that I should go to cizmia (not sure on the spelling). She didn't even want to refill my bentyle and said that my ins shouldnt be paying for my zofran. She had a problem. She wouldn't listen to myself or my husband. An wants me to go to pain management. Because I have pancreatic attacks and interstitial cystitis. Now, I don't see the point in going to it. What can they teach me. Anyway I'm not going. She made me so mad the last few months everytime I seen her she changed my meds. You all know once you find a good combnation of meds stick with it. But NO she kept changeing them. Long story short - I am looking for a new gastro. There was alot more said but you all get the picture.
Thanks for listening.
I have had ulcerative colitis dx since 2005, and dr changed it to crohn's Jan of 2010. I have been on everything- from steriods to Remicade. I am now on Humira since Feb of 2010. I have a continuous stuffed nose, altho I have no problems injecting the drug. I am however, starting to get worried when researching side effects. One forum has horrible side effects starting after about 1 yr of treatment, from cancer to pneumonia and death. Now I am wondering if I should stay on it. I am also on Liadal, and iron pills. My bm's have improved, however there are still days where I cant leave my house, or come home to "change" my outfit. I feel like going off all the drugs and following a strict diet- but my drs tell me there are no certain foods to stay away from.
I have been on Humira for about 8 months though I did get lazy and I stopped the injections for a while. I am sure they are causing me to have yeast infections. The Humira is a great drug for me. The problem is I feel fine most of the time, so then I feel like I don't need any medication. But then I get REALLY sick. Then everyone is cranky with me. The doctor says "You should never miss appointments and never stop taking meds without asking first" in a very condescending way. Then my husband says " Why can't you just take it, you are acting like a big baby" Then my kids say "My mommy is sick and she needs to just stay on the couch. She can't play with me" So I know I need to take meds and stay healthy. But some part of me hates this whole mess. My whole point is I was off for a while and now I am having a big flare. My doctor wants me to take a bunch of expensive tests and I feel like I want to wait and see if the Humira kicks in again. Does anybody know if the Humira stays in your system and gets stronger with each dose or does it ware off. Should I treat this flare or wait and see? I hate this!
I am 37 years old and had mu first UC break out during a business trip to India back in June. The doctors and hospital there were absolutely phenomenal and the diagnosis was head on, which I can’t say about the doctors I visited previously here in the US due to some stomach issues I had. Either way, I had a severe outbreak of enteropathic arthritis about 3 weeks ago and it immobilized for about 2 weeks with horrible joint pain. My UC is pretty normal and I just deal with some soft stool and only 1 or 2 movements a day and I am taking Lialda to control my UC. My rheumatologist give me a shot of steroids, which helped me get back on my feet and back to work, but said that only the steroids keep my arthritis under control at this point and he is suggesting to put me on Humira as a long term solution. Initially I agreed for him to get approval from my insurance to get the approval, but after reading a few horror stories about the side effects of Humira I told him to hold off. At this point I am taking 30mg of Prednisone per day, but know that this is not a long term solution.
Does anybody else have an experience with low UC and enteropathic arthritis and the impact that Humira had? I am just scared to open a Pandora’s Box, especially now that I feel good again.
You can also reply to ***@****
I was diagnosed with Crohns nearly 6 years ago and by the time that had happened I was so sick I couldnt go to the loo for days and would vomit. I had a resection about 4 months later and was Crohns free for a year.
Unfortunatly I used to have a bad habit of going 100 miles an hour with everything and worked 2 jobs to pay for my music passion. I also was subjected to a nasty boss for a few months and started getting sick again over 18 months ago. This time the Crohns was in the original area and down in my bum. VERY painful. I have not recovered in all this time and just before Christmas I had a sigmoidoscopy to find that it had spread to a 3rd area in just 5 months.
I have now cut all wheat/gluten from my diet and very limited dairy. I have to take calcium supplments as I'm on high doses of steroids and I'm on Imuran. Some days the pain to even sit down is 7/10 other days its still there but 3/10. I don't sleep much and with auto immune disease sleep is very important in healing.
I'm about to start on Humira this week and cannot wait. I don't care about the risks, I'm in too much pain and I still have to go to work and function like this.
What I do believe in is diseases are our bodies at dis-ease. Something we are doing is not agreeing with us. Crohns is a stress triggered disease and I have removed all negative people and things out of my life. I have ZERO tolerance as negativity affects me far deeper than people that don't have Crohns or some other debilitating disease.
Keep positive and look at your lifestyle and diet. Look at your thought patterns and your attitude too. If you think **** you will be ****. It is harder said than done if you are living in constant pain as I am. But I will not be beaten by this disease and I refuse to be a victim. I am hoping Humira will help put it in remission so I can then look at other alternative therapies and wean off the drugs. I'm 38 this year and although at the moment the possibility of having a child is very slim I refuse to give up hope.
Hang in there Kim. Things will get better! I'm on Humira and am doing really well! I am severe as well.
For all of you there is a web site www.*********** and there are a lot of people going through to same thing and offer lots of information that has been very helpful to me!
Humira almost killed me, because I get sinus/MRSA staph infections ofter, and my GI doc at the time didn't bother to tell me that Humira makes it impossible to fight any infection off! I was in the hospital for 3 months with kindey infection, pancreatitis, MRSA staph (which made my face swell so much it broke my nose).........and I refuse to EVER take any type of Immune-Suppressor! Please talk to your doc about this and go over all of your options!
Hi Kimberley, don't know how to make u feel better but totally get the space u are in. I hav had crohns disease since I was 18 and feel like it has robbed me of so much. I hav been on remicade and then had a Severe reaction to it (it did help me the first time tho). I've been on asacol, Pentasa, Purinethol, azapress. Prednisone, Entocord. None really helping at moment. I have a 9month old baby who really needs me and I'm still breastfeeding. I can hardly eat and am so thin. I don't know what to do. My doc wants to put me on methotrexate but the side effects are shocking, then humira is next option. I will have to stop breastfeeding (which I'm so sad about!) as these meds are extremely bad for baby. I'm worried about lupus and lymphoma from these meds and bilogics. I just can't understand this illness and can't help feeling so mad at my body for letting me down. I am also so physically active and struggling to keep up with life and look after my family. I feel like no-one understands even my hubby and I'm also just so tired of having this disease!!
I have had Crohn's for 10 years. I have tried almost every medication available. I switched Drs. and had surgery and now I am taking Humira and 6MP. I can honestly say that I haven't felt this good in a long time. A lot is said about mixing the two drugs and the possibilty of certain cancers but in reality they have found links between chronic inflammation and cancer as well. I guess what I am saying is that there is a chance of cancer either way you go. I am pain free and my life is so great now. I have three kids, 10, 13, 16. I wish I would have done all this a LONG time ago. Good Luck!
Had my first 40mg jab a few days ago for RA and am experiencing awful nausea and stomach pains which I gather is par for the course. Am however concerned that this will be ongoing and would welcome hearing of other's experience.
Have read that some people have found the automatic self injection thingie painful, although the manufacturer pack said the medication should be administered within 15 minutes of removal from the fridge, the Humira nurse said to take it out 20 mins before use, and I was pleasantly surprised at how painless using it was.
I am currently being tested for drug induced lupus from humira (I've been injecting for approx a year now). I am having severe joint problems, literally struggling to walk. I'd be grateful for any advice / info how you coped as this is getting me down.
I started Humira two weeks ago, so can't say much about it. I took the first dose, all four injections, at different parts of my stomach. For me, it hurt a lot (stung like a bee and took a while to stop stinging), and the next day I felt like I'd been punched in the stomach. I'm thankful to the writer above who told about removing it from the fridge 20 min's before using it. I hope that will help. And I hope the Humira will help.
I was diagnosed with Crohns Colitis in July 2008 and I have had more flare ups than being well. In the last year and a half I have had the worst possible time because I had an 8 month flare up which didnt respond to 3 courses of steroids, in July 2011 I had a sigmoid colectomy and was given an ileostomy. I had my ileostomy reversed in February 2012 and have suffered with a severe flare up ever since. I am now currently on Humira however I do not hold out much confidence because I had previously tried it last year and it didnt work. I have tried Infliximab before which I thought was fantastic until I had a major reaction and stopped breathing. I just want this condition to get better. I have suffered badly now for a year and a half and just hope that this Humira works otherwise I will have to have further surgery. Good luck to you all with your treatment :)
I am 66 years old and was diagnosed with Crohn's disease a year ago. My gastroenterologist wanted me to go on steroids. I refused since I can't afford to gain weight, however, I agreed to take 4000 mg. pentassa a day. I've been on it for a year and after xrays and mri the inflammation is still there. Now he wants me to go on humira and since I'm not symptomatic I don't see the point of doing anything. I have diarreah only when I eat spicy foods or drink carbonated or caffeinated drinks. It sounds like the drug side effects are worse than what I'm experiencing. I'm really confused since I've read nothing positive about these drugs online or in patient information. Is there anything positive out there to convince me to start taking drugs?
Hilda, you might want to start a new post. That would probably help you get more responses. Crohns can flare at any time. You DO NOT want to wait until you have a flare up before starting treatment. Prevention is much better. And flares can cause so much damage.
I used to receive Humira infusions for rheumatoid arthritis. I would have to go to the doctor's office and lay in a recliner for four hours with an IV. The last two infusions I had, I was unable to get myself out of bed for two days from the lumbar pain. It was awful. Not worth the side effects.
I have RA in my hands and it started about 8 years ago. The pain and redness would come and go until finally it came and stayed. My sister urged me to see a doctor because "they have drugs that can help with that". Because of the possible side effects I decided not to go that route.
By late 2011, I had two finger joints that were pretty much immobilized and very painful all of the time as well as other hand joints that were less painful. At that time, I started taking Anatabloc, an OTC anti-imflammatory product that modulated the effects of NF-kB, for hypothyroidism. Within a few weeks, the pain in my hands decreased dramatically until today I no longer have pain in my hands at all.
Although I'm not anti-doctor, I always look for "natural" answers to my aches and pains. I've tried touted anti-inflammatory remedies such as a combination of curcumin and ginger but none of them did a thing for me. There are no side-effects from anatabine citrate, the active ingrediant in Anatabloc, so for me, it was worth a try and it paid off for me.
I took humira for the psoriasis that abs ruined my social life !! Hot rid of itam now100% clear but I had had HIV when I took it which caused ALOT if complications !! Now I can't walk solo and had to quit my job at NASA!! WTF???
Hi I know this post is old but I have to tell u that I took humira for one year. I was told by my doctor that side effects are rare bc I was concerned bc many people have had dangerous reactions from it. I took it and it helped almost immediately and was able to walk without a cane. The fatigue from arthritis was gone. Fast forward six months and I became ill....very ill. I contracted klebsiella bacterium and resulted in severe pneumonia. Also at the same time I gained 50lbs but still ate a healthy diet. I developed an enlarged liver. Once all this was treated I started back on humira. Within six months I contracted systemic candida fungal infection which 4 years later is still treatment resistent. I obviously stopped the humira at that time but I continue to suffer from this infection. I now struggle with this as well as the arthritis. I am now disabled bc of this infection and can't work, can't eat without getting sick, I burn from head to toe everyday bc the candida causes constant allergic reactions to foods, and I developed chemical sensitivites and get ill from any colognes, perfumes, car exhausts and any scents. I have to take benedyrl every 4 hours to prevent swelling and anaphylaxis. I cant sue abbott labs (the manufacturer of humira) because they are too powerful of a company and no lawyer will take my case bc abbotts has 100's of lawyers at their disposal. I have a clear cut case but i cant touch them. It kills me when I see drs such as S. Kaul give advice when they do not know the dangers associated with biologic medications because they are told these medications are safe by the manufacturers. Shame on them.
Iv been on Humira for about 6 years and it has helped tremendously!!! I'm so thankful that I was able to continue working in my own business, while being very vigilant about my health as I was well informed by my Rheumatologist Dr LUBBE that my immune system will be compromised.
I avoid shaking hands or any close contact with strangers. I wash my hands constantly throughout the day, I take lots of good vitamins and minerals to boost my system, keep very warm in winter & breathe through my nose instead of my mouth! I drink very little alcohol and don't smoke...As a result of being vigilant and caring for myself I have only had the flu once during all these years!i thank God for giving me grace and the wisdom. I'm wondering though...
Can Humira stop being effective after long use?
I'm not sure if it's the Humira that has stopped being effective or if it is due to a business stress over the few past years?
Has anyone been on Humira and what kind of result did you have? Any side effects? I am on lots of meds which are not decreasing the pain. My doctor wants to put me on Humira and I was wondering if anyone out there has had any success with this drug. I am desperate to NOT be in pain anymore. Help...Kim
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