Hey all you fellow crohnies. I had my gastro app. An for those of you who have read my other posts you will understand what happened. I was suppose to be taking the humira every week. But it made me so sick - that I went back to every two weeks. I feel better. However, my dumb gastro n.p. thinks that I should go to cizmia (not sure on the spelling). She didn't even want to refill my bentyle and said that my ins shouldnt be paying for my zofran. She had a problem. She wouldn't listen to myself or my husband. An wants me to go to pain management. Because I have pancreatic attacks and interstitial cystitis. Now, I don't see the point in going to it. What can they teach me. Anyway I'm not going. She made me so mad the last few months everytime I seen her she changed my meds. You all know once you find a good combnation of meds stick with it. But NO she kept changeing them. Long story short - I am looking for a new gastro. There was alot more said but you all get the picture.
Thanks for listening.
I would suggest that you stay on Remicade if you are in remission. You can always switch to something else if it stops working. But why would you switch if it is working.
I did remicade i wish i had it instead sometimes rather than humira. it makes me soooooo sick for three or four days. but hey some dont have this happen. but i think most do. it fels like the flu. i have been on humira a year and it still makes me feel very bad and weter each injection. good luck.
Hi I have UC.I have been on Remicade for years. I do not mind the 2-3 three hour infusions. I am in remission at this time and I feel great. I am not on any other medications at this time. My doc has recommended that I switch to Humira?
Well, i had to be off the steroids before they did my remicade. However, that was 10 years ago. Boiling cabbage and drinking the juice halps soothe those spots that cause you to pass blood. Also, aleo vera liquid you can get at gnc or some walmarts will help sooth it. Ibupropen or motrin will cause blood to pass more. They help our joints and arth pains but its very hard on crohnies. Hope this helps.
I HAVE BEEN DIAGNOSED WITH COLITIS AND I HAVE BEEN PUT ON LIALDA AND STEROIDS AND HYDROCORTIZONE AND NONE OF THEM SEEM TO BE WORKING I HAVE BEEN HAVE REALLY SEVERE FLARE UPS NOTHING BUT BLOOD MOST OF THE TIMES I GO TO MY DOCTER FRIDAY AND IM A GOING TO ASK THEM ABOUT PUTTING ME ON REMICADE I CANT GO NO WHERES CAUSE I HAVE TO BE NEAR THE BATHROOM MY LIFE HAS BEEN MISERABLE IF ANYONE HAS ANY INFORMATION THAT I CAN HELP ME MAKE ME A LITTLE BETTER PLEASE LET ME KNOW THANK YOU FOR YOUR TIME