Hi there
I am currently being tested for drug induced lupus from humira (I've been injecting for approx a year now). I am having severe joint problems, literally struggling to walk. I'd be grateful for any advice / info how you coped as this is getting me down.
Many thanks
Mike
HI
Had my first 40mg jab a few days ago for RA and am experiencing awful nausea and stomach pains which I gather is par for the course. Am however concerned that this will be ongoing and would welcome hearing of other's experience.
Have read that some people have found the automatic self injection thingie painful, although the manufacturer pack said the medication should be administered within 15 minutes of removal from the fridge, the Humira nurse said to take it out 20 mins before use, and I was pleasantly surprised at how painless using it was.
Cheers
Try codeine to reduce pain and symptoms
I have had Crohn's for 10 years. I have tried almost every medication available. I switched Drs. and had surgery and now I am taking Humira and 6MP. I can honestly say that I haven't felt this good in a long time. A lot is said about mixing the two drugs and the possibilty of certain cancers but in reality they have found links between chronic inflammation and cancer as well. I guess what I am saying is that there is a chance of cancer either way you go. I am pain free and my life is so great now. I have three kids, 10, 13, 16. I wish I would have done all this a LONG time ago. Good Luck!
Hi Kimberley, don't know how to make u feel better but totally get the space u are in. I hav had crohns disease since I was 18 and feel like it has robbed me of so much. I hav been on remicade and then had a Severe reaction to it (it did help me the first time tho). I've been on asacol, Pentasa, Purinethol, azapress. Prednisone, Entocord. None really helping at moment. I have a 9month old baby who really needs me and I'm still breastfeeding. I can hardly eat and am so thin. I don't know what to do. My doc wants to put me on methotrexate but the side effects are shocking, then humira is next option. I will have to stop breastfeeding (which I'm so sad about!) as these meds are extremely bad for baby. I'm worried about lupus and lymphoma from these meds and bilogics. I just can't understand this illness and can't help feeling so mad at my body for letting me down. I am also so physically active and struggling to keep up with life and look after my family. I feel like no-one understands even my hubby and I'm also just so tired of having this disease!!
Humira almost killed me, because I get sinus/MRSA staph infections ofter, and my GI doc at the time didn't bother to tell me that Humira makes it impossible to fight any infection off! I was in the hospital for 3 months with kindey infection, pancreatitis, MRSA staph (which made my face swell so much it broke my nose).........and I refuse to EVER take any type of Immune-Suppressor! Please talk to your doc about this and go over all of your options!