Humira

[Kimberly511]

Has anyone been on Humira and what kind of result did you have? Any side effects? I am on lots of meds which are not decreasing the pain. My doctor wants to put me on Humira and I was wondering if anyone out there has had any success with this drug. I am desperate to NOT be in pain anymore. Help...Kim

[Kristy_in_Houston]

Hang in there Kim. Things will get better! I'm on Humira and am doing really well! I am severe as well.
For all of you there is a web site www.*********** and there are a lot of people going through to same thing and offer lots of information that has been very helpful to me!

[blonde_eM]

I was diagnosed with Crohns nearly 6 years ago and by the time that had happened I was so sick I couldnt go to the loo for days and would vomit. I had a resection about 4 months later and was Crohns free for a year.

Unfortunatly I used to have a bad habit of going 100 miles an hour with everything and worked 2 jobs to pay for my music passion. I also was subjected to a nasty boss for a few months and started getting sick again over 18 months ago. This time the Crohns was in the original area and down in my bum. VERY painful.  I have not recovered in all this time and just before Christmas I had a sigmoidoscopy to find that it had spread to a 3rd area in just 5 months.  

I have now cut all wheat/gluten from my diet and very limited dairy. I have to take calcium supplments as I'm on high doses of steroids and I'm on Imuran. Some days the pain to even sit down is 7/10 other days its still there but 3/10. I don't sleep much and with auto immune disease sleep is very important in healing.

I'm about to start on Humira this week and cannot wait. I don't care about the risks, I'm in too much pain and I still have to go to work and function like this.

What I do believe in is diseases are our bodies at dis-ease. Something we are doing is not agreeing with us. Crohns is a stress triggered disease and I have removed all negative people and things out of my life. I have ZERO tolerance as negativity affects me far deeper than people that don't have Crohns or some other debilitating disease.

Keep positive and look at your lifestyle and diet. Look at your thought patterns and your attitude too. If you think **** you will be ****. It is harder said than done if you are living in constant pain as I am. But I will not be beaten by this disease and I refuse to be a victim. I am hoping Humira will help put it in remission so I can then look at other alternative therapies and wean off the drugs. I'm 38 this year and although at the moment the possibility of having a child is very slim I refuse to give up hope.

Neither should you!!

[bavarian72]

I am 37 years old and had mu first UC break out during a business trip to India back in June. The doctors and hospital there were absolutely phenomenal and the diagnosis was head on, which I can’t say about the doctors I visited previously here in the US due to some stomach issues I had. Either way, I had a severe outbreak of enteropathic arthritis about 3 weeks ago and it immobilized for about 2 weeks with horrible joint pain. My UC is pretty normal and I just deal with some soft stool and only 1 or 2 movements a day and I am taking Lialda to control my UC. My rheumatologist give me a shot of steroids, which helped me get back on my feet and back to work, but said that only the steroids keep my arthritis under control at this point and he is suggesting to put me on Humira as a long term solution. Initially I agreed for him to get approval from my insurance to get the approval, but after reading a few horror stories about the side effects of Humira I told him to hold off. At this point I am taking 30mg of Prednisone per day, but know that this is not a long term solution.
Does anybody else have an experience with low UC and enteropathic arthritis and the impact that Humira had? I am just scared to open a Pandora’s Box, especially now that I feel good again.
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[BeckyR27]

I have been on Humira for about 8 months though I did get lazy and I stopped the injections for a while.  I am sure they are causing me to have yeast infections.  The Humira is a great drug for me.  The problem is I feel fine most of the time, so then I feel like I don't need any medication.  But then I get REALLY sick.  Then everyone is cranky with me.  The doctor says "You should never miss appointments and never stop taking meds without asking first" in a very condescending  way.  Then my husband says " Why can't you just take it, you are acting like a big baby"  Then my kids say  "My mommy is sick and she needs to just stay on the couch. She can't play with me" So I know I need to take meds and stay healthy.  But some part of me hates this whole mess. My whole point is I was off for a while and now I am having a big flare.  My doctor wants me to take a bunch of expensive tests and I feel like I want to wait and see if the Humira kicks in again.  Does anybody know if the Humira stays in your system and gets stronger with each dose or does it ware off.  Should I treat this flare or wait and see? I hate this!

[mustanggirl59]

I have had ulcerative colitis dx since 2005, and dr  changed it to crohn's Jan of 2010. I have been on everything- from steriods to Remicade. I am now on Humira since Feb of 2010. I have a continuous stuffed nose, altho I have no problems injecting the drug. I am however, starting to get worried when researching side effects.  One forum has horrible side effects starting after about 1 yr of treatment, from cancer to pneumonia and death. Now I am wondering if I should stay on it.  I am also on Liadal, and iron pills. My bm's have improved, however there are still days where I cant leave my house, or come home to "change" my outfit. I feel like going off all the drugs and following a strict diet- but my drs tell me there are no certain foods to stay away from.

[pro2675]

How are you doing? Just wondering how you have been.

Pro2675