Hi, I can sympathize with your mouth problems and may have at least some way to alleviate your mouth problems. I saw an ear, nose and throat specialist who prescribed Vitamin E Complex which works in soothing the mouth swelling and over sensitivity. The complex normally comes in a powder form, a little like sherbet and you only need to take it for a few days before noticing a marked improvement. As I say it is only a temporary resolution to the problem but it means I can eat 'normally' and experience less symptoms. Worth giving it a try if nothing else. Good luck.
I truly feel your pain. I was diagnosed with chron's a year ago. Since that time, it has been day to day. I have had nasty hemorrhoids (had to undergo a not so pleasant removal procedure), which has definitely made bowel control a challenge. The dr discovered a fistula during procedure, and implanted a drain to prevent infection. Some mornings I must also use the bathroom 3-4 times before leaving for work. To make matters even better, I have developed mouth swelling, making it hard for me to talk and eat when it flares up. And my GI is pretty clueless - he actually told me that the mouth symptoms appeared to be Bell's palsy (neurological disorder). Had me so worried about it, I actually went to see a neurologist who quickly shot that theory down. I am now in the process of looking for a new GI who specializes in Chron's/UC. I have been on Asacol for over a year, and while it helps symptoms, it does not do much to treat underlying disease. Also use probiotics (align and culturelle), which help withe the incontinence.