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My joints are killing me
I am a 32 yera ld female with crohns. within the last week I have had extreme joint pain and inflamation in my hAnds. My knees hurt and I have lost all feeling in my left middle finger. When I sleep, or try to sleep, both of my arms and hands go numb. I got blood work and my ana count is high. They want me to see a reuhmatoid doctor, I am wondering if this isn't crohns related,,,any help for a sister would be appreciated
Try eliminating sugars / Doing so saved my joints
I'm in my 30's and I've had moderate / sever ocerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
I'm in my 30's and I've had moderate / sever ocerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
Try eliminating sugars / Doing so saved my joints
I'm in my 30's and I've had moderate / sever ocerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
I'm in my 30's and I've had moderate / sever ocerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
Try eliminating sugars / Doing so saved my joints
I'm in my 30's and I've had moderate / sever ulcerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint, sometimes, hot swollen joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
I'm in my 30's and I've had moderate / sever ulcerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint, sometimes, hot swollen joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
Try eliminating sugars / Doing so saved my joints
I'm in my 30's and I've had moderate / sever ulcerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint, sometimes, hot swollen joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
I'm in my 30's and I've had moderate / sever ulcerative colitis for 9 years and about 2 or 3 years after my first symptoms I started experiencing severe joint pain that would migrate from joint to joint (knees, knuckles, shoulders, toes, ankles, inner hip/groin, as well as in my back and chest muscles. The pain would last severely in one joint/area for a 1-4 days often being debilitating (sleepless nights, extreme pain, inability to use joint, sometimes, hot swollen joint) then would travel to another joint usually then travel to the other or go dormant for a time then flair up again.
After almost giving up on trying to fix the problem I saw a pattern (a few days after gorging on Halloween candy) that the flairs were directly associated with my consumption of processed sugars. It was amazing after cutting candy, soda, and high fructose corn syrup and other processed sugars out of my diet for about a month the joint pain stopped completely.
I found can eat natural sugars no problem such as in fruit and juice and have no problem. Once again the pain literally stopped after about a month and hasn't returned for now years.
However, if I stray and start to each too much processed sugars I can feel it creeping in once in full force for a time after straying from my strict no sugar rule). Those little reminders and one large reminder have allowed me to stay "bad" sugar free and pain free. Before when I had the pain I used high and low doses of prednizone but even prednizone didn't completely help me. It wasn't until I stopped the sugar and stayed off it that I found relief. Also, I've been able to stay predizone free as well). Although my colitis is still an issue (mostly managed by Asocal / Asathiaprine) the joint pain is past.
I hope this helps and I highly recommend you try this as it saved me so much pain. On a related note I also try to stay away from too much fake sugars (diet drinks, etc) as I have found that these have caused me some trouble although not nearly as much as processed sugars.
Good luck!!!
Your symptoms are the same as mine. My bowels are in remission, but I suffer with fistulas. I have been having the same arthritis symptoms for the past year, severe. Moves from joint to joint severely every day. Every joint, from my toes, feet, ankles, knees, shoulders, elbows,wrists, fingers. It seems to be leaving me with nerve damage. Now have numbness below one knee and all fingers in left hand. My right hand has nerves pinching currently and unable to straighten my finger. Also affects my tendons. I also feel it must be more than just arthritis. I am only 50 and feel I will have to get on disability soon if I don't get this under control. What the heck!!!! Did you ever get a doctors response?
I was diagnosed with UC 15 years ago that never went into remission and I had a colectomy with j-pouch surgery 13 years ago. That took care of the intestinal issues, but I have had fatigue and joint/muscle aches all along the way and they have recently gotten worse. The slightest exertion can leave me achy, weak, nauseous, and blurred vision for 1-3 days after. Usually I'm battling fatigue and aches on a regular basis, but it gets a lot worse after any exertion. All blood work comes back normal. Doctor has me on fish oil and anti-depressants. They help a little. So I'm another example of this IBD-related pain syndrome. Feeling pretty hopeless but plan to try arthritis medicine like Celebrex if doc agrees.
Hi. I was diagnosed with UC in 2007 and have had a couple bad flares, bad enough to be hospitalized for. I have seen major improvement in my digestion since I started the Specific Carbohydrate Diet (SCD) via Elaine Gottshalls book Breaking the Vicious Cycle. I still have some joint pains buy they seem to be improving. Epsom salts baths add some relief. Mostly my knee and elbow right now. I am not on any meds and do not want to take any so I'm looking for relief naturally. It seems excersize helps some too. Thanks,
Don M.
Don M.
Hi
I've just started on low dose naltrexone and have relief of joint pains for the first time! Please go to the website www.idninfo.org and look up the info. I'm so grateful I did. All the best, S.
I've just started on low dose naltrexone and have relief of joint pains for the first time! Please go to the website www.idninfo.org and look up the info. I'm so grateful I did. All the best, S.
Trina is that what it's called green-lipped mussel supplement, from what I know Celebrex is better than Naproxin and doesn't bother me at all at 300 mg / day, my hips and knees have finally stopped bothering me. My Colitis has been contributed to my anti inflamatory Feldene 200 mg / day I was taking following three failed back surgeries. Strange they gave me the good old reliable strong one and really messed me up. It's funny our pets get better meds than we do. I just want to make sure of the name of the other, they won't give my wife the same as me so she still suffers, maybe it will work for her too Thank in advance
Rick
Rick
Well like the most of you I've been on this roller coaster for 18 years now with Colitis, my hips and knees were getting so sore I was having trouble trying to sleep. After feeling my GI was enjoying his work just a little too much and feeling embarrassed to go for appointments I switched to a new GI who after five years has never given me a rectal exam in his office. He put me on 300 mg of Celebrix/ day and after one month the only time my hips bother me is if I walk further than I should and yes definitely related to Chron's and Colitis, now there are two different dosages depending on which Arthritis your GI puts down you are being treated for, the milder sorry if that sounds insensitive only allows 200 mg for insurance purposes where the nastier form allows for 400 mg. I'm sorry I haven't got the names I know one is Rumathoid but I think you should get the idea. so my GI gives me 300 mg because 200 wouldn't do it. Good Luck to you all and may God Bless
Rick
Rick
Hi I have Crohns disease and have just started getting alot of joint pain , mainly in my right hip , its so bad some times i am unable to weight bare on it , Any advice ?.
Hey this i think is defiantly crohn's related... I'm a 30 yr old female who was diagnosed with Crohn's earlier this year & also diagnosed with Psoriatic Arthritis a few months ago. I'm in pain all the time & it *****, i know how it feels... I too also have to go see a Reumatologist for the Psoriatic Arthritis & i'm taking Embrel Shots 2x a week for it cause i have plaque masses on my hands, elbows, knees, back & the whole top of my right foot & those are all the places i also have joint pain too :( They itch all the time, they are red & swollen but i not only do i feel the pain on the outside of my skin, i feel it in my joints too.
Hi, Yes, it's probably all related, because Crohn's and arthritis are both auto-immune conditions, where the body's immune system attacks the body itself. I did it the other way round, I've had arthritis for many years, since my 30s (I'm now 61) and I got Crohn's at age 54. It was blamed on the anti-inflammatory drugs I had been taking for years. I have especially bad arthritis in my spine and can't now take much in the way of anti-inflammatory, only 1 tab of naproxen a day, but it does take the edge off. What's really good for joints is green-lipped mussel supplement, freely available. I got on to it because the vet gave one of our dogs some for hip arthritis and within a couple of days she was jumping round like a puppy, so I thought if it works for the dog, it's gotta help me too! Give that a try, it doesn't seem to irritate the gut.
Hi, I am back, (Nace1) my first post was June 7th 2010, where I spoke about having had Crohn's for some 26/7 years, 3 Ops, (bowel resections) and at date of that post 4 months of severe migrating joint pain, so here we are 14 months later with an update:
Many consultations later with both Gastro & Reumatologist,
Reumo is baffled by what is going on as many tests show no degradation associated with arthritis but believes in my pain and has seen physical and photographic evidence of swellings, in summary thinks its connected to the Crohn's, somehow?
Gastro is convinced the Crohn's is under control and therefore joint & other area's with these symptoms are not connected ? so, not the Crohn's?
So neither of them are taking any responsibility, they cant both be right unless it is something completely different? I am so so frustrated, I am sure I could handle the pain and disability better if I new what it is and what to expect, I am now unable to work full time or plan anything as I don't know from one day to the next how I am going to be.
I don't know the answers, but it does help to speak with people who have an idea what I am going through, so thanks for that at least guys, actually I think mostly ladies on this forum, I feel for you all.
Paul.
Many consultations later with both Gastro & Reumatologist,
Reumo is baffled by what is going on as many tests show no degradation associated with arthritis but believes in my pain and has seen physical and photographic evidence of swellings, in summary thinks its connected to the Crohn's, somehow?
Gastro is convinced the Crohn's is under control and therefore joint & other area's with these symptoms are not connected ? so, not the Crohn's?
So neither of them are taking any responsibility, they cant both be right unless it is something completely different? I am so so frustrated, I am sure I could handle the pain and disability better if I new what it is and what to expect, I am now unable to work full time or plan anything as I don't know from one day to the next how I am going to be.
I don't know the answers, but it does help to speak with people who have an idea what I am going through, so thanks for that at least guys, actually I think mostly ladies on this forum, I feel for you all.
Paul.
Hi, I was diagnosed with crohns disease in 2003, I had one colon resection in 2006. I am in pain everyday, and I too think that I am crazy, and would not ever wish this debilitating disease on no one. I am always reading to find out more about this disease. I change my diet from time to time, but it is never the same. What I ate last week, I can not eat this week. I get sick just thinking about what to eat and what not to eat. I have taken Asacol, Imuran, prednisone, entocort, and the list goes on.
I try to pray daily, but my mind is so much on the pain, I forget to sometimes. I ache through out my whole body daily, I go through the pain and every other night I take a vicodin to help me sleep. (do not want to become addicted) tylenol nor tylenol PM works for me anymore.
I have Rheumatoid arthritis stemming from the crohns. Sometime I do not even know what to say or how to describe my pain anymore, because it just seems as though people do not believe you, and I guess because I still have to get up and do what I have to do; cook, clean, wash, drive kids, which is dangerous because my legs sometimes lock up on me and I have to pull over until the pain goes away. I feel for everyone on this panel and I understand the misery of Crohns, we are not CRAZY, just in constant PAIN.
I try to pray daily, but my mind is so much on the pain, I forget to sometimes. I ache through out my whole body daily, I go through the pain and every other night I take a vicodin to help me sleep. (do not want to become addicted) tylenol nor tylenol PM works for me anymore.
I have Rheumatoid arthritis stemming from the crohns. Sometime I do not even know what to say or how to describe my pain anymore, because it just seems as though people do not believe you, and I guess because I still have to get up and do what I have to do; cook, clean, wash, drive kids, which is dangerous because my legs sometimes lock up on me and I have to pull over until the pain goes away. I feel for everyone on this panel and I understand the misery of Crohns, we are not CRAZY, just in constant PAIN.
Wow. I read this discussion and it could have been parts of my own life!!! I was diagnosed with crohns 17 years ago when I was 19. Spent the first 12 years having the digestive issues most of you guys described, including about a foot of bowel removed (iliem area) when I was 28. For the last 6 years it's been less digestive issues, though they are still there, and more joint issues. I have 3 vertebrae in my lower back that a back doc told me look like a 90 year old ditch digger's because of the amount of inflammation/arthritis affecting them. My knees, wrists, feet, toes, hips ... All can and will ache depending on the day/ moment. I have plantar facitis (sp)- inflamed tendons on the bottom of my feet, supposed gout in my left big toe - but it's ALL inflammation of 1 type or another. I'm taking hydromorphcontin every day wondering if I'm getting physically dependent on it, but not able to walk properly or "manage my life" if I don't take it. ie. Too stiff & sore & in too much pain to do simple things like cook, clean, go to the playground with my son (6 yrs old). I also have a spouse who tells me my pain is mostly "in my head" & I don't need the pain meds. I don't get a "high" from them, take them exactly as prescribed and have stopped taking them only to be unable to sleep & go from bed, straight to sofa in the morning because I'm to stiff & sore & in pain to do anything.
I've met people with "regular" arthritis (reumatiod & osteo) and generally the people I've met say they suffer more from stiffnes & with RA deformaties but don't appear to have the "traveling" inflammation of the joints I do (as in one day my knees are worse, few days later it seems my wrists are worse, my back always hurts). Has any one else run into this? I believe I have a very high pain tolerance lol after crohns for this long I've only been on regular pain meds for the last 4 years. With the gut pain we can get people with crohns develop a high pain tolerance I believe. I've tried humira but reacted to it. I also tried remicade a few years ago but had to stop because I got really run down & sick & couldn't get healthly again. My gastrio-doc is thinking of remicade again or referring me to a reumatiod arthritis doc, waiting for blood work to come back. In addition to humira (allerigic), remicade, I've been on pentasa, salofalk (sp?), entocort & prednisone, (so sick of cortisteroids), & immurane ( got very very sick from).
Anyway not that I wish these problems on anyone but it is nice to hear about them & know a person isn't the only one going through it, especially when (for me at least) the people closest to me really have no idea what it's like.
Thanks for letting me ramble.
I've met people with "regular" arthritis (reumatiod & osteo) and generally the people I've met say they suffer more from stiffnes & with RA deformaties but don't appear to have the "traveling" inflammation of the joints I do (as in one day my knees are worse, few days later it seems my wrists are worse, my back always hurts). Has any one else run into this? I believe I have a very high pain tolerance lol after crohns for this long I've only been on regular pain meds for the last 4 years. With the gut pain we can get people with crohns develop a high pain tolerance I believe. I've tried humira but reacted to it. I also tried remicade a few years ago but had to stop because I got really run down & sick & couldn't get healthly again. My gastrio-doc is thinking of remicade again or referring me to a reumatiod arthritis doc, waiting for blood work to come back. In addition to humira (allerigic), remicade, I've been on pentasa, salofalk (sp?), entocort & prednisone, (so sick of cortisteroids), & immurane ( got very very sick from).
Anyway not that I wish these problems on anyone but it is nice to hear about them & know a person isn't the only one going through it, especially when (for me at least) the people closest to me really have no idea what it's like.
Thanks for letting me ramble.
I'm a 51 yr old female diagonsed with Crohns last summer. Prior to that I have had bathroom issues for several years. Within the last 4 yrs I had rt shoulder surgery, but the pain is horrible. The pain starts under rt shoulder blade, radiates down rt side of back and rt side, under rt rib cage, rt abdomen, rt arm and wrist very week and even makes my rt breast hurt. I've tried several meds nothing seems to help. It seems like the only time I can really get relief is when I've been admitted to hospital (twice) and they pour on the fluids, however short term. I thought I was CRAZY. I have a appt with Gastro shortly. Hopefully they can help with all this crazy pain.
I was diagnosed w Crohns Disease at age 30 (which was 5 years ago). I am about 15 to 20lbs overweight...so i could stand to lose weight. My symptoms aren't necessarily all typical from what I've been told. I suffer from flare ups consisting of mild constipation, moderate abdominal cramps, & occasional nausea. My worse symptom by far is extreme Joint Pain. I do not have RA or arthritis according to my MD. She tells me that it the pain is directly related to what is happening with my colon. I have significant narrowing in the last part of my small intestine & acscending colon. I'm told that it is time for surgical intervention. .. But I'm very scared & have put it off for 5 months now...entocort / pentasa combo doesn't help & the MD said no need to try other drugs at this point...have surgery. Would love to know if removal of narrowed colon would help ease joint pain...? Most nights I'm soaking in HOT baths & taking pain meds trying to get relief. It's miserable. Very little sleep.
Glad to hear I'm not crazy. The joint pain moves around - hands, knees, ankles, shoulders, etc. Never know where it will be next. Any suggestions on full lapro procedure vs open? I'd have to travel to have the lapro surgical method but thinking it would be worth it.. Best to all.
Glad to hear I'm not crazy. The joint pain moves around - hands, knees, ankles, shoulders, etc. Never know where it will be next. Any suggestions on full lapro procedure vs open? I'd have to travel to have the lapro surgical method but thinking it would be worth it.. Best to all.
Hi, I'm a 45 yr old woman who was diagnosed with Crohn's about 7 years ago but I definately had it for some time before that.
I have also dealt with back pain for the last 20 years and have always dealt with it via chiro, acupuncture, massage, physio, swimming etc.
but in the last 6 months I've had some episodes that have been the most painful of my life and have only recently been told that the two are likely related.
I've been on Humira for 2 yrs, infliximab I reacted badly too, and colazide gives me diarhea and the sulfasalizine type drugs just do bugger all.
I want to only to say I empathise with you all. To others we look like we're okay, it's hard for them to understand the excrutiating pain we can be in. And I'm relieved to discover there is a connection between the two.
Along with humira (and now celebrex) I take cod liver oil, spirulina, pro biotics, zinc, magnesium orotate. I make sure I eat lots of healthy, grass fed red meat and well cooked vegetables. Don't fall for the 'raw is best' line, hard enough for any body to absorb nutrients from raw veg without a rumen let alone us with absorprtion problems.
Good luck all
I have also dealt with back pain for the last 20 years and have always dealt with it via chiro, acupuncture, massage, physio, swimming etc.
but in the last 6 months I've had some episodes that have been the most painful of my life and have only recently been told that the two are likely related.
I've been on Humira for 2 yrs, infliximab I reacted badly too, and colazide gives me diarhea and the sulfasalizine type drugs just do bugger all.
I want to only to say I empathise with you all. To others we look like we're okay, it's hard for them to understand the excrutiating pain we can be in. And I'm relieved to discover there is a connection between the two.
Along with humira (and now celebrex) I take cod liver oil, spirulina, pro biotics, zinc, magnesium orotate. I make sure I eat lots of healthy, grass fed red meat and well cooked vegetables. Don't fall for the 'raw is best' line, hard enough for any body to absorb nutrients from raw veg without a rumen let alone us with absorprtion problems.
Good luck all
Wow I am so happy to read all these postings I was just notified that I was misdiagnosed and I never had Ulcerative Colits I have always had Chrons Disease. I am now addicted to Codeine Sulfate. I was given that to keep my bowels thicker. I have seen many GI doctors and I think they just love to write prescriptions to keep you quite. When I get down to pick something up it takes me forever to get back up my knees hurt so BAD. My arm and hand go numb and I have constant back pain. They think the back pain is from all the fistulas I now have. Before they diagnosed me with Chrons I was scheduled to go in for surgery on March 30th to make my ostomy bag forever. Now with me being diagnosed with Chrons not sure about the surgery but the dr still wants to do it. They now want to put me on all types of Chrons medicine. I am frustrated and so upset this has happened to me.
I have had Colitis for 27 years. The flare ups for 10 years were minimal.. Sulfasalazine was the medicine of choice back then. Early 90's a flare sent me to the GI. He changed med to Dipentum. Shortly after that I started aching inn my right elbow. It would come and go. This went on for 10 years. I did a lot of jogging. Seemed like the farther jogged my aches grew. Then the aches went to my shoulders. Sometimes my hips. The last flare started 2 years ago, and has just now getting under control. I tried Remicade, it seemed to be a wonder drug, for a month. It slowly became useless. I tried Humiria, it seemed to work fair. Finally I went back to Colazal. Taking 3 pills 3 times a day. Plus I am on Entocort. I am slowly getting better. My "urgency" to go it all but gone now. But during my 2 year flare, My joints did not hurt! Now that the flare is under control, I am starting to hurt again. I tried jogging 3 weeks ago and that really got my shoulders and elbows hurting. Apparently from the bouncing motion. Anyway It seems that there is an infection in me that is either in my colon or in my joints but not at the same time! I don't like taking Tylenol all the time. I take a half of a Lorcet when it really hurts. Anyway I just wanted to post "my" situation for anyone else who may have similar problems. Hopefully "if it doesn't kill us, it will make us stronger". And please , anyone else reading these posts, do the rest of us a favor and post your "problems". Until I read about Colitis Arthritis, I thought I was NUTS!
Thanks for sharing everyone...I was diagnosed with Crohn's in 1996. Resection, steroids, remicade, humira all have helped with the digestive symptoms, but two years ago started having the SAME symptoms as nace1. I am at my wit's end with this joint/muscle pain/stiffness/swelling. I feel like I'm 100 years old. I had some relief with the Humira, but have been hospitalized TWICE with pneumonia in the last six months and was told
I have to go off all the immunosuppressant drugs and am praying the digestive symptoms will not return. In the meantime I am turning into a Vicodin junkie, as it is the only thing that remotely takes the edge off the pain. Thanks for letting me vent, and if anyone has any suggestions, I AM WILLING TO TRY ANYTHING AT THIS POINT. Blessings to all...
I have to go off all the immunosuppressant drugs and am praying the digestive symptoms will not return. In the meantime I am turning into a Vicodin junkie, as it is the only thing that remotely takes the edge off the pain. Thanks for letting me vent, and if anyone has any suggestions, I AM WILLING TO TRY ANYTHING AT THIS POINT. Blessings to all...
Wow! It's nice to hear that I am not really crazy. I was diagnosed with Ulcerative Colits and Relapsing Polychondritis in 2009 and I've had so many side issues I don't know which is to blame. It's very difficult trying to work or even explain to some people what is going on with my body. Some days I wake up and everything is just fine and some days I'm drained because I may have spent half the night in the bathroom or I wake up to some part of my body being swollen. Sometimes it's the joints but more often than not it's the area around the joints (from the RP). In the last year I've had swelling/inflammations in my nose, ear, face, neck, elbow, wrists, arm, fingers and toes. One day both of my ankles were totally swollen and I was confined to bed which is very difficult with UC. It's become a running joke each day to see what part of my body is sore or inflamed as I'm trying to see the humor in all of this to keep from crying. Anyway, just wanted to say it's actually good to know that I'm really not alone in this craziness.
I feel for you all, and it seems mostly ladies?
I have had Crohns for over 25 years and have had three resections in 1984, 2001 & 2007 I have been on various drugs over the years and had good and bad years, for around a year now I have been on infleximab by infusion, Methotrexate tablets as well as taking Questran to help digestion, folic acid and 3 monthly B12 injections.
I have had some trouble over the years with stiff joints in my hands, mostly in winter, but around four months ago I started getting real pain in my hands and fingers followed by them swelling, this then started in my feet and ankles, legs, knees, arms elbows and shoulders and seems to move from one place to the other on a 2-3 day basis, it sometimes even changes from being severe to the point of not being able to use my hands to just a slight pain and completely moved to, say a knee or a foot over night, my only respite now is too many pain killers and complete rest, as soon as I work (I don't to anything too manual these days) or take exersize one or another, or several of my limbs will be extremely painfull or sore to touch very soon after, the pain is not confined to my joints, in fact there is not always pain in the joint, more around it and in cases up my arm or leg, more like, and it changes, tendon or muscle pain. Yesterday my ankle was swollen and painfull to move, enough to cause me to limp and my calf muscle felt as though I had a severe cramp in it every time I put my foot to the floor. The strangest thing is this continuing changing of the area that gives most pain.
I am coming to the end of my tether with this, my Doctors keep telling me its to do with the Crohns, we will have to do more tests etc.etc. my Crohns has been very good as far as I am concerned for some time now, although I have recently had a pillcam which seems to reveal that the Crohns is active but there is nowhere to go medically, looking like the only option is more surgery, if the surgery would get rid of the new symptoms while the Crohns stays at bay, great but I am now 54 and not keen on yet more surgery when I feel in myself that this is a seperate issue from the Crohns. There are apparently more than 70 kinds of arthuritis, is it possible that this has nothing to do with the Crohns and should be investigated on its own symptoms? I find if you have Crohns any other ailment at all is lumped in with it, "Oh that's to do with your Crohns" is sometimes a very convenient answer.
Any help at all would be appreciated, if any one else experienced anything like this or any proffesionals out there have heard of similar symptoms please get in touch through this site or direct to ***@**** Thanks.
I have had Crohns for over 25 years and have had three resections in 1984, 2001 & 2007 I have been on various drugs over the years and had good and bad years, for around a year now I have been on infleximab by infusion, Methotrexate tablets as well as taking Questran to help digestion, folic acid and 3 monthly B12 injections.
I have had some trouble over the years with stiff joints in my hands, mostly in winter, but around four months ago I started getting real pain in my hands and fingers followed by them swelling, this then started in my feet and ankles, legs, knees, arms elbows and shoulders and seems to move from one place to the other on a 2-3 day basis, it sometimes even changes from being severe to the point of not being able to use my hands to just a slight pain and completely moved to, say a knee or a foot over night, my only respite now is too many pain killers and complete rest, as soon as I work (I don't to anything too manual these days) or take exersize one or another, or several of my limbs will be extremely painfull or sore to touch very soon after, the pain is not confined to my joints, in fact there is not always pain in the joint, more around it and in cases up my arm or leg, more like, and it changes, tendon or muscle pain. Yesterday my ankle was swollen and painfull to move, enough to cause me to limp and my calf muscle felt as though I had a severe cramp in it every time I put my foot to the floor. The strangest thing is this continuing changing of the area that gives most pain.
I am coming to the end of my tether with this, my Doctors keep telling me its to do with the Crohns, we will have to do more tests etc.etc. my Crohns has been very good as far as I am concerned for some time now, although I have recently had a pillcam which seems to reveal that the Crohns is active but there is nowhere to go medically, looking like the only option is more surgery, if the surgery would get rid of the new symptoms while the Crohns stays at bay, great but I am now 54 and not keen on yet more surgery when I feel in myself that this is a seperate issue from the Crohns. There are apparently more than 70 kinds of arthuritis, is it possible that this has nothing to do with the Crohns and should be investigated on its own symptoms? I find if you have Crohns any other ailment at all is lumped in with it, "Oh that's to do with your Crohns" is sometimes a very convenient answer.
Any help at all would be appreciated, if any one else experienced anything like this or any proffesionals out there have heard of similar symptoms please get in touch through this site or direct to ***@**** Thanks.
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