Sorry to hear about your daughter. I have had Crohn's for 38 yrs (diagnosed at age 26) and for the past 7 yrs have been taking methotrexate injections weekly. This is a very strong chemo (cytotoxic) drug and can have various side effects, particularly to the liver. Is she having monthly complete blood tests? I don't know anyone else on mtx so not sure if chest pains could be a side effect - I have no problem with it, and have had the best 7 yrs of my life since diagnosis. Is she seeing a paediatric gastroenterologist? Perhaps you could get a second opinion of her meds from a university based hospital?
The anaemia needs addressing - I had blood transfusions when first diagnosed, but only needed them twice since, when I had rectal haemorrhages. I hope you can get some help for her soon.
I also suffer sometimes with pain in my chest. After not being able to find anything wrong with my heart or anything else, my doctor concluded that it was trapped air/gas. She had me think of my intenstines like a campfire - when it's burning hot and clean everything works well and as it should...but when it's smoky and not burning right, that smoke rises -- so when I have that pain it is most likely the "smoke" or gas bubbles rising in my abdomen and putting pressure in my chest. I've started taking Activated Charcoal tablets when I feel gassy or bloated and that seems to help a bit. Something else to think about :)
*Crohn's Disease dx 11/2007
*IBS since 1999
*Hashimoto's since 1989
It could be Splenic Flexure Syndrome which is caused by a distention of the bend in the colon beside the spleen. It is important to realise that there are no pain sensors in the lining of the gut, however, increase in pressure on the wall of the gut can produce pain - however the gut is poor at localising this pain. When this pressure is in the splenic region it is often sensed as a pain in the chest.
Another possibility is an issue with the spleen itself. The spleen is involved in he breakdown of red blood cells, which could under certain circumstances account for the anemia. This can lead to a cycle of splenic enlargement which can give rises to feelings of fulness or pain [usually to the upper left portion of the belly but also to the left shoulder] but also possibly in the chest.
In any event I would be inclined to have a second opinion on the blood work and the pain.
This may not be a normal anemia and require specialist consideration. A full hospital workup is warranted.
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