Go to an urgent care they will help in the mean time while you wait for your appointment:)
My son is 12 diagnosed 6 months ago, 3 fistulas and a seton ring. He is almost in remission with the Scd diet. He has an occasional runny poo still never more than 2 a day and he has energy. No medications at all. Good luck to you. He also is putting on weight again.
Im 33 with crohns, I.normally weigh 145 to 160 depending on summer/winter, however since being diagnosed actually prior to being diagnosed, I began to start dropping weigght, but it kept.droping, 130s mow I flutter between 117 ans 120, I lost just bout 25% of body weight which.scares.the ****.out of me. I am not as bad off as you in terms of fatigue, although I dont habe much choice as I need to work to survive, but usually my daus off I find spending in mu room laying in bed. I have been takin 6mp, and recently began taking humira, we wanted to avoid steroids as they can be quite hatmful as well. I too have watery mudbutt. Real bad cramping from time to time, and wheen it comes to eating I really dont look forward to food anymore, if I could I wouldnt eat anymore. Im hoping the humira will have a positive effect, but I am a skeptic, although I hear success stories about the drug. The only way I.really am able to mamage my days at the moment is with pain meds, ashamed to say but, they allow me to do all thw tgings crohns took from me, sleepong, eatinf, relaxing, ... Other thing is, noatter what I eat and how much I eat I cant gain weight, I have an eight pack or washboard stomach and I havent beento a gym in a decade. My veins show in my arms... I def feel people lookin at me as if im sick with cancer. I dont know where u live, or if u have looked into humira or silar drugs such as remicade, cimzia, and one other I cant remember. I jave also jad fistulas and might have a possible abcess at the moment. Have jad my appendix out, and they wanted to remove 2 ft of my intestines as well at the ilieum. Im sorry you are going through this, good luck, dunno of my post helps but I thought I would share with u my experiwnce
My heart goes out to you!
I don't know if you and your parents have considered another option for the enteral therapy. Our GI doc wanted my son to try resting his bowel with the drinks too. He did okay for a while, but, like you, he didn't care for the taste and just wouldn't drink them. He has a nasty stricture (his most common Crohn's symptom) at the duodenum (when the stomach meets the intestines). He had a g-tube placed into his stomach. IT IS WORKING REALLY WELL!
Now my son get the nutrition he needs and the fluids he usually doesn't have enough of too. He is finally gaining weight and has more energy than he has had in a loooooong time. We prepare his "feed" in the evening and it runs overnight. By morning he is finished and can go to school like normal.
My son is 12 and was dx with Crohn's about six years ago.
Good luck to you!