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Crohn's Disease / Ulcerative Colitis Community
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686769 tn?1236275731

miserable

I am still waiting for an answer from the pharmaceutical company on the Humira, as I also have NO insurance. I am on Endocort (steroid with a LOT less side effects than prednisone), Pentassa, Depression meds, Trammadol (pain), percocet (pain), azathioprine 75mg. Still, I am in pain almost daily. Every once in a while I have a good day. I am really having a hard time, mentally and physically. I have always been very active, early to rise and then go go go go... Now, I hate waking up because usually my pain is the most severe in the morning, which keeps me from being able to function.  Financially, well...you get it...meds are so expensive. My Doc has been great with any available samples, even so, the expense is outragous! The pain is either severe or just enough to keep me down on the couch.It seems if I am laying down it becomes less severe, but who can lay around all day? I am getting increasingly depressed and have really had enough. I am miserable and I have a family to take care of which sometimes I just CAN'T do, which also increases the depression. I won't eat at times just to slow down the bathroom trips and lessen pain and bloating. I feel achy in my bones, exhausted and have had a temp all this week. Ok, I have vented...lol...I am really just becoming a big mess and don't know how to deal with it right now. I am also concerned about vitamin defficiency from the big D and all the meds...HELP ! Thanks guys and gals...for being here! Kim
2 Responses
640033 tn?1260299590
Procter & Gamble has a patient assistance program:

http://www.pgpharma.com/patient_assistance.shtml

if you can prove that you don't have insurance/$$ to cover the cost of medication, they allow you to get 270 days worth of free medication.  it helped me out tremendously... i did it before and received asacol, not sure if asacol will even work for you, but i found it to be more effective than pentasa.  

also there's a generic available for steroid enemas (not proctor and gamble), i believe... still expensive but helps out.

good luck
686769 tn?1236275731
I was approved from Abott and received the medicine (Humira) a week ago. I am approved for at least one year of free meds!!! Thanks!!
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