Seriously questioning diagnosis

[frustrated315]

I was diagnosed with chrons only one year ago and isnce i have questioned the diagnosis and as i read further here i question it even more....until i discovered a lump on my bottom i never really knew anything was wrong other than a nagging pain in my lower abdomen....I dont have diareha i can eat most anything i want...the only symptoms i have are the odd stomach e ache before i need to have a bowel movement, extreme tiredness, and this ever nagging fistula....they tell me i have very aggressive chrohns but any meds they put me on gives me the symptoms of chrohns they have done biopsies and tell me they are "consistant with" chrohns but i read here and i dont suffer from most of the things here can anyone else tell me if they are the same way or should i be looking for a different opinion????

[frustrated315]

Thanks for your reply..It has ben almost a year since i have had one done, I also havent had weight loss i seem to be gaingin more and i hate it... I am really having a hard time with my diagnosis as the doctors sem to be so back and forth one minute they tell me if they dont do soething it might shorten my life span as they usually only see this aggressive of chrohns in people who have had it 4 forthy years then the next thing i knw they are not doing anything for me i am so frustrated...i feel as thoug i am going nuts...then i think well i dont have all of these symptoms but i do ahve this one and then i wonder if because i am being told i have this that i am just thinking i do or what...sounds kinda silly i know but......I sit here wondering is it something else and we are folling around with the wrongs meds and they are doing more dmage then good....ok ill stop babbling now lol but i am so confused and i know i am not getting the medical care i deserve i have gotton more info here in two weeks then i have in a year from them

[April2]

Usually a biopsy is pretty accurate in diagnosing Crohns. I too was just recently diagnosed with Crohns when I had a mass removed in August. My doctor and I were both surprised at the diagnosis because we didn't feel I had enough symptoms. I did have the stomach pains the few weeks leading up to the surgery because the mass was causing constriction. I did have occasional digestive problems or diarhea but nothing too bad. I didn't have the weight loss a lot of people have. I had hoped the surgery put me in remission too since they removed the mass and the only ulcer they saw then, but I just had a colonoscopy/endoscopy done and it showed inflamation in several areas, a few ulcers and Gastritis in my stomach. Again, I was surprised. I thought I had been feeling pretty good since my surgery. I would get the occasional heartburn and diarhea but it was livable. I think maybe I have a mild case of Crohns, or maybe I'm just used to things and ignore most symptoms. I don't know.
From what I understand, it's tricky to diagnose Crohns and it usually takes several tests, etc. to confirm their suspicions.
When's the last time you had a colonoscopy or endoscopy? You might want to get more than one opinion on this. With my surgery, I had the biopsies sent to two different pathologists. This last colonoscopy was with a different doctor too. I'm still trying to grasp all this too. I really don't feel as bad as a lot of people on here who have Crohns, which I'm grateful but again I wonder if it's because it's in the ealry stages or if it's a mild case? I just don't know. I'm just trying to educate myself and take one day at a time. I hope you can find out soon. I know how aggravating it can be to wonder what's going on. Best wishes.
April