WORK AND CROHN'S

[katta]

I JUST WANT TO KNOW HOW CAN YOU GO TO WORK AND HAVE A NORMAL LIFE WHEN YOU HAVE CROHN'S DX?
i have lost so many jobs due to my condition, i am constantly going to the bathroom when i am at work, feeling tired, abdominal pain, and worrying so much to ask for time off to get my ramicade treatment or just beacause i need to go for my check up with my doctor.
please can someone tell me how to deal with it?

thanks
kathy

[woodsprincess]

The longer I have it the harder it seems to get, control isnt there anymore.IT must be nice to be healthy. Oh well sorry to vent.

[babyphat740]

I have crohn's disease and it is hard for me to go to work because im always in the restroom. Sometimes I don't no what to do. I can't eat the things that I like because its time to go im just tired. Im on asocal its ok but nothing is helping right now, as for I can't go and enjoy different things because im afraid im going to have a flare-up so I just stay home.


                                                                                  

[merlinhornet]

You can say wow again. I have been on some forums for the past few days and I have never felt so sad.
Im in Australia and I was luckily diagnosed 4 years ago. I have never experienced as much as anyone here and with determination, hope and perserverence I hope you all find something that works for you and makes your lives much easier.
I too started on prednisone and then put onto 8 tablets of sulphalazaline which I am allergic to so they had to prescribe mesasal. I only have prednisone once in a blue moon now with sever flare ups. I have had one anul fistula removed but cannot have any follow up on if I am getting better or worse this is because all the solutions are sulphur based. I have a few friends with crohns and one with a bag for the rest of his life.
There are people out there who are sceptics but here goes. Find a healer or remedial massage therapy. I have had 2 blockages and I have not had to see one doctor or specialist. My work collegues are highly supportive and when I am in a flare up and need rest I have never been questioned.
When I first started on the steroids they did my head in, I was the angriest nastiest person on the planet and I flipped at the smallest things for no reason, not to mention the weight I had gained from them. Then over 12 months I lost 25 kilos and I fluctuate every few months. Since remedial massage I find less cramps, bloating and stress. If you can find that special person who can help you can be happy and less sick then you start to heal on the inside. You might want to have a read of www.bobbyrunningfox.com

[Vexus]

Wow. This is amazing. I'm sure you have all felt this way at some point, but I was diagnosed with severe Crohn's in my rectum in March 2008. I am 25 years old. I live in a very rural part of northern British Columbia, so the Doctors we get out here aren't the greatest to say the least. I am FINALLY going to see a specialist, which has taken me 2 months to get an appointment. Today, just reading this site and all of the comments you have all posted has been more helpful than talking to 7 different Doctors in almost a year. I cried. I am so frustrated having to find all the information I need by myself. The only medication my doctors have percribed for me have been prednisone and cortisone. I am so tired of having to take steriods. I finally finish a bout of them and I am so incredibly sick afterwards. I catch any little illness going around. Im sure it doesnt help any that I am a waitress. lol. But I am sick for a good 2 to 3 weeks afterwards. I am so sick of being sick all the time. I am tired and in constant pain.  My Docs have kept trying to give me morphine for the pain, but heard it is highly addictive, so I dont take any. Any advice before I go see the specialist would be much appreciated. Thank you all.

Amanda

[shell700]

New to this forum , I have had crohns for over ten years and had a surgery four years ago. losing 1metre of my bowel.I am about to have a further surgery but I am holding offf as long as I can due to the fact that in my job at present, I have to leave the floor and rush out to the loo around four times in any one shift. I guess I have about 15 motions a day and I have explained this to my employer along with a letter from my gastro guy, They can not sack you for this and they cannot harrass  you for this either,  I take questran every day. As well as many other medications. Love to hear from you

[bottomsup]

i was recently diagnosed with crohns. i have had the potty problem since ever. i just tell my workgroup i have bad gut genes and i go to the bathroom often. i even pt up a little flag on my monitor that says "ladies room" just so they know im not off being a social butterfly (which im so often guilty of).

i have lost 15 lbs in the past 3 months- has anyone else experienced weight loss?