hi, thank you very much for the advices.
hi thank you very much. yes your right its not the end of the world & thanks for the link.
Anytime we get news like this about our child it is over-whelming and depressing. I had two children diagnosed with a bowel disease and one is now 40 and is hiking in the Sierras as we speak. So know your son will have a future. Just research as much as you can so you can always stay one step ahead of the disease, and are able to ask all the right questions. Cincinnati Children's Research Hosp. is rated the premiere unit in the country for Pediatric Gastroenterology, and people travel from all over the country to have their child treated there. You may want to set up a consult with them. They have a Ronald McDonald house and make everything very easy for you. Your reaction is normal, but you need to hold it together for your son...they can sense our fear. He's young and great strides are being made in this field, so hopefully there will be better ways of handling anything he faces. My son does everything the doctors say it shouldn't be able to...so never lose hope and make sure he always has a postive attitude. I wish your son and the family all the best!
I would say that you are having a normal reaction to bad news, that is my guess. It is sadness, fear, worry these are all normal human feelings.
Sorry............here is the link I forgot
http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/hirschsprung-disease/
I have included a link to Seattle's Childrens Hospital concerning Hirschsprung's Disease, much of which you probably already know. But it discusses what happens after the surgery and maybe that hasn't been explained to you very well.
This can be a lifethreating disease if not caught, so it is very, very good that you got your son the help he needed.
I think, as a parent who loves their child, you have every right to feel depressed about this condition and how it is going to impact your son's life. But if you begin to find that the depression is interfering with the care of your son or you or is affecting your life in negative ways, please speak with a doctor about this. Your son needs you desperately right now and he needs to learn from you and all his family that whatever the outcome is, he will never feel different or rejected.
Yes, it is sad, and awful and unfair that your sweet little boy has this disease, but there is a cure and he will grow up to be a well adjusted and happy person with a full and rich life if he is brought up to feel as normal as the next kid.
I suggest talking to the doctor about some counseling for yourself on ways to handle this now and as your grows into different stages of his life.
I wish your son the very best and the two of you a wonderful life full of treasured memories.
This is NOT the end of the world.
God Speed
Greenlydia