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Avatar universal

OCD diagnosis. Now what?

As i was speaking with my therapist... she mentioned me having OCD.
At the moment i took it casually as she said it casually. But upon reading.. OCD is very serious and cannot be cured.
I know the reality of it, on how thoughts can be very much controlling of me and my every day life.
I am still learning the tools to correspond appropriately, but i do not know what I’ll do when i get another thought that i will obsess about. What if my tools don’t work there? What if i never will able to be in a relationship ( especially looking at my history with these horrible matches) what if i get a child one day snd raise him to be mentally ill? Should i tell my family about this? Maybe they’d understand me better or maybe they’ll judge me. It’s so stressful here in my head right now.  
It is almost 3 am as i write this .. my thoughts are racing.
4 Responses
Avatar universal
First of all, just because a therapist said you have OCD doesn't mean you do.  You don't say what's going on with you but do know that the term OCD has been greatly expanded by the latest diagnostic manuals from what I'll just call true OCD, which involves rituals and repeated actions that if you don't perform you get very anxious.  I've been an anxiety sufferer for many years and all anxiety and depression involves obsessive thinking.  There is a term used nowadays called Pure O, which is OCD that only involves obsessive thinking and not repeated actions.  But like bipolar disorder, this expansion of the use of the term has gone out of control.  Many of these recent changes to the manuals used by mental health professionals are quite controversial among practitioners and appear to come from the pharmaceutical industry, in the pay of which most health professionals participate.  So you have a drug and you get doctors to know it might help with OCD, if you expand the definition of OCD you sell more drugs.  It is what it is.  I only say this because this issue comes up so often and others will vehemently disagree with me on this, so don't take anything here as gospel truth but my opinion and the opinion of many who practice mental health treatment.  Mostly I write this so you don't panic over being told you have OCD, because you really might not.  But whoever told you OCD was incurable was wrong.  It is true that many of us with anxiety disorders will never find a cure, many of us will.  There is therapy that treats it, but it's quite a bit different from the therapy used to treat other anxiety disorders so it is important to know if you have true OCD or you have obsessive thinking, which is treated with different methods.  But all anxiety disorders can be treated with therapy, with CBT being the therapy most in vogue right now and hypno-therapy being there as well.  If it can't be fixed, medication can help tamp down the symptoms.  As for raising a child to be mentally ill, that is possible but you don't have to be mentally ill yourself to do it.  Lots of parents stress their kids out so much for so long it can cause a problem without those parents being considered mentally ill.  It's not, however, contagious.  Most of us who get it just seem to have a predisposition for it -- you can put every member of a family through the same basic stuff and only one of them will turn out to have a mental disorder.  Most members of the military don't get PTSD.  There's something in those of us who do get it but nobody knows what that is at this point in time.  So don't panic about it, don't let yourself be defined by a label even when it comes from a therapist, instead focus on getting the therapist to get to work helping you learn how to get over it and if that doesn't happen, get a different therapist who specializes in the treatment of anxiety -- most don't.  If that doesn't work, get referred to a psychiatrist and try medication.  You're not doomed by having that term thrown at you.
1 Comments
Thank you for the lengthy explanation about this and giving me more insightful understanding about it.
We had the call over the phone, and I just casually went with the term.  Maybe just O. But sometimes I do see a CD. For example, i had times where i would check 2-3 times on something. And it happened on different occasions just not so often. And i recall telling my therapist “ i do not believe my eyes “ so that is why a CD would be present with my glorious O.
Growing up,
I remember my mother told me about how strict of a personality i have. I was around 5-6 and i would hate for people to come over because they would touch and play around with my things and get them all out of place. I remember that i used to hide things and say “ i am keeping this to when i grow up” or as a 5-6 year old i would say “ i am putting these shoes away for my future daughter. “ And those pair of shoes, got thrown away 3 years ago because i forgot about it.
Now, i do not have hard time throwing things away, neither having people around. But i feel it SLIGHTLY, just very little being there..
973741 tn?1342346373
Hi there.  Well, I'm glad you took the stop to work with a therapist and seek true help for what is going on in your life.  That's an important thing to do and can be life changing!  You may have OCD, however, a mention of it doesn't mean you are officially diagnosed with it.  To be diagnosed, you have to be assessed and match the DSM criteria.  Then you come up with a way to treat it if it is indeed the case.  Like everything, there is going to be a continuum with it.  More severe for some people than for others and frankly, a lot of people with OCD manage very well. It is not a doom sentence to receive this diagnosis.  I personally have always felt like once you put a name on your health issue, that is a good thing because then you can try the time tested ways to overcome it that very well may work for you.  :)  The time frame of not knowing is harder when you are floundering, better to know so you can act. Anyway, I'd explore the possibility of ocd further.  

My son has had this come up.  He's very mild with this aspect of anxiety.  But has some characteristics of it.  He works on it with a psychologist.  It's been very helpful.  Please keep your situation in perspective.  There are people that I've seen outside their psychiatrists office who can not exit the car because they are counting and touching the dashboard. Their rituals rule their entire life.  This does not seem to be you from what I can tell.  Medication and psychotherapy work for treating the symptoms of OCD.  But you, again, have not even been officially diagnosed.  

What do you do now for anxiety?  OCD is an anxiety disorder and some of the same tools should work to quiet it.  I call a brain that won't turn off as noisy and this is what happens to a lot of people when they are anxious.  Constant thought.  You want to stop the tape running over and over in your head.  What about trying to actively change a thought pattern?  Like when you catch yourself ruminating, you go ahead and stop the thought. Acknowledge it.  Then say --  okay, now I'm going to think about this and go to the new set of thoughts.  Like picturing yourself in a happy situation that is a go to happy place for you?  

Have you ever tried any of the meditation apps?  I wasn't a big fan but they have grown on me.  My son uses headspace and I use Calm.  They guide you through meditation and they are relaxing to my mind.  
1 Comments
Hello Specialmom,
Thanks for your input. I have been seeing her for about 10 sessions now or so. I do definitely need therapy. I was happy with a label to be honest. Because it shapes the situation for me, and i respond positively with that. For example, when she shaped my anxiety, as in I literally gave that anxiety which i translate it as a poke or intruder “ Sarah “. And since that session of titling my anxiety, i felt more better for some reason.
It is very hard to picture somethings sometimes. And if i do picture it, they’re horrible. Now however i am better than before. I would spend hours and hours on the same idea and not run my errands or do basic socializing.

I am very moody, and i am very emotionally driven. It makes me concerned about Bipolar Disorder. My therapist made it clear to me that i am emotionally stable however after me being doubtful of that; one because i sometimes realize it. Two because my previous partner pointed it out. But since he had PTSD himself  and never went to therapy, it was obvious he has been reflecting internal issues. ( not saying i am perfect, and that I might not know who i am but i know very well what I am not. )

I realized when i am alone, I function amazingly And i have nothing to worry about. I love my company, but when i have thoughts it gets foggy yet socializing does not make it any better because when i am there. I am not there at all. I am often seen panicking and i am just out of it. I enjoy jogging and just doing things for myself  but it gets lonely sometimes as i am a very compassionate individual and giving is in my nature.

For example, when i was dating, and i get physically involved with my partner this is where i lose all my strength. I start to panic how God will rot me in hell and punish me with an STD or that this person has slept with me to hurt me and he has now all the strength in the world against me and SO MUCH MORE. Even my separation anxiety reaches the peak. I often start finding myself showering my partner with love.. alot of it to where I forget myself and my partner would forget the fact he needs to return.
This fountain of love fills the cups of those who need and don’t need love.

But funny enough, now i am only physically involved with someone  and i am not on panic mode. I panic about God’s perspective sometimes but that’s something else. Maybe because i do not have my emotions involved i am at ease. ( this is my first time sleeping with someone who i am not dating, very odd of me to do so. ) we are friends yet we have good attraction and we like each other.

I am great in school and as a 19 year old i have a decent career BUT i know i am saying this now out of ease because i am not having any Obsessive thoughts at the present moment. And i did mention to my therapist, i do not know when my mind will make up something that will have me obsessing over it.

There is strength to when you know what you are experiencing is not true but it is only powerful when you are not GOING THROUGH IT. When i am in an episode or having a “ theme or topic “ for me to freak out about, I feel absolutely stuck and my thoughts are damn right. There is no way out and escape from the reality i am living at that time.
Avatar universal
I've known several people with OCD who have gone on to live good lives.

I am pleased that you are so self aware of the problem. I see you are actively seeking out answers, thinking about relationships, what situations you do well in and what situations cause difficulty, what thoughts are troublesome, and looking for ways to deal with those situations and thoughts.

And you have a therapist to help you along.

People have problems; people are not their problems. Someone has a disease, someone is not the disease. It's the difference between having a problem, and being the problem. When we HAVE a problem, the problem can be addressed and remedied, and we retain our identity. When we ARE the problem, there is no solution, because the problem and our identity are one and the same.

It's a subtle difference in framing the issue which makes a huge difference. People HAVE  problems, but we retain our personal identity, and it is our personal identity which makes us unique and interesting and attractive to others.

Men like you because you're female. The really good men will like you because you are you and you are a wonderful person and they will see your problem as something you HAVE, not something you ARE; something that can be dealt with and worked on, (and even something that makes you attractive, because the really good men like fixing things.)

Blessings!

(I also agree with the meditation suggestion. There are numerous apps one can try. 'Headspace' has some good animated videos on youtube.)
3 Comments
Hello, hope all is alright with you. Thank you for your input.

What you said is beautiful. We HAVE a problem, we ARE NOT the problem. I should remember that always. I am looking out for answers because I would like to elevate.

This is amazing,
A good man would be taking everything that is being given.
I know i am a great woman and i expect a great man too because yes, i have dated partners with PTSD, ADHD ... and it was all beauty in my eyes.

Now that I understand my condition, I will learn to slowly address this, and I’ll watch out for those who are willing to join me in this journey.
del, beautifully said.  It's what I am always trying to tell people about not focusing on the label they are given as to what mental illness they have, but you said it better than I did.  To Geminiiii, it sounds to me like you suffer from anxiety and all its accompaniments, including some self-esteem issues that crop up.  But it sounds like some depression is going on as well.  It doesn't sound like you have OCD and if you do it's not debilitating, but you do have something like what I have, which is a bit of agoraphobia-like feelings that keep you from wanting to be as social as you'd like.  It's a lot of stuff. but it's all anxiety and maybe some depression.  Keep working on it, it's not a death sentence.  
I definitely have OCD, prior to my therapy I have done my research and when I got into therapy, OCD is brought up, and I knew it was my sign.  
*Please read my comment to SpecialMom above, for more detailed reflection*

I am often found touching my lymph nodes or checking my body parts even when I am talking to you about the weather. But I would spend hours and hours researching and triple checking.

I went to urgent care at least 25 times in the month of February other than seeing my physician a few times. Till this day, when I feel the slightest anything, I have the urge to go see a doctor.

In the past, I experienced very disturbing thoughts that just buried me alive.  I remember spending days isolated and avoiding all that was related to these hideous scary thoughts.

I have also been working on the religion aspect, I would never be able to enjoy my sexuality. Ever!
I would think that when I have sex, God will punish me with an STD or illness or any health destructive event.
I elevated from the idea with the help of someone very dear here on MedHelp. She mentioned things that changed my complete aspect on it along with therapy.
207091 tn?1337713093
Gemi,

I'm here because you asked me to post.

For background for everyone else - I've been talking to Gemi in the STD and Herpes forums helping her work through some fears and diagnoses.

I am not a therapist or a mental health expert. I do know that you have been through a LOT - like a LOT - in the past few months, and that your upbringing, culturally, wasn't what many of us experienced, leaving you with a lot of shame around sex.

Personally, I think you need some time away from your ex (like permanently, but you already know that) and time to work through all the health stuff before worrying about a mental health diagnosis. Let your brain and body settle a bit.

Maybe it's OCD, maybe it's a more generalized anxiety disorder. Maybe it's more O than the CD, but you'll figure that out in time. I know you have a need to know and understand - I do, too. The absolute hardest thing for me is not knowing because I can't sit down and tear it all apart and figure it out so I can put it back together in ways I can understand it. "Taking time to settle" never sits well with me, but it always works best.

You have so much going on, personally, and you are in a very high covid19 area, and that has to be affecting things, too. I imagine your college is closed, and maybe you are living back home. That has to be a change.

Without getting preachy, God doesn't use infection, including STDs, to punish us. Any infection is just a germ doing it's biological thing, reproducing and spreading. It doesn't know or care if you are a virgin, have had 50 partners, help elderly ladies with groceries cross a busy street on your way to church, or whatnot. The only difference between an STD and strep throat or a cold or even covid19 is the mode of transmission. 90% of us will get HPV in our lifetimes at least once - this is not a divine punishment.

Hugs to you, Gemi. You're going to be fine. :)
1 Comments
Jessie, thank you so much for your input on this forum. Your opinion always matters to me.

Yes, by more therapy sessions i can figure out more about this brief diagnosis and whether It can completely resolve ( hoping it does ). I am an eager person, always digging. I will get to the bottom of this eventually... thank you for encouraging me for therapy.

You have helped me a lot in my STD fear that is related to religion, hence you helped me with this theme of my OCD. You really did. I will always remember the things you say. I am thankful you shut down that fear in me with the facts and logical responses you share regarding this manner.

I hope all is well with you. Please take care of yourself. Thank you for your constant support always. You have been a great support system for a very long time.
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