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Mastocytosis

Hi Doc!

My mother has been diagnosed as having Mastocytosis.  It took doctors 10 years to diagnose her because of the rarity of the disease.  For the past 4 years i have been showing the same exact signs and symptoms.  I have the same rashes in the same locations as she.  I have been tested for the disease,  but tests came out negative.  I have argued with my doctor that i should be tested DURING an outbreak,  but he just  po po's me as if i don't know anything.  Am I correct in assuming that results will be more accurate if I do get tested during an outbreak?  What else can you tell me about mastocytosis?
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