I have been dx. with the above diseases. MRS affects my head with massive headaches, neon zig-zag lines, facial swelling of lips and tongue. Tongue is furrowed and sometimes black. During these flair-ups I loose my voice (a few minutes up to days). Do you have any info about this? Lipomatosis-tumor of leg from ankle all the way up and into my hip and pelvic area, including all muscles of leg. Any info about this? Thank you, Claudette