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Melkersson-Rosenthal Syndrome (MRS)

I have been dx. with the above diseases. MRS affects my head with massive headaches, neon zig-zag lines, facial swelling of lips and tongue. Tongue is furrowed and sometimes black. During these flair-ups I loose my voice (a few minutes up to days). Do you have any info about this? Lipomatosis-tumor of leg from ankle all the way up and into my hip and pelvic area, including all muscles of leg. Any info about this?  Thank you, Claudette
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FROM  SITE vulgaris-medical.com

Melkersson-Rosenthal (syndrome de)
voir
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hi,i have swellingon me face.On my mouth and a litle on the nouse.Doctor say that is a sindrom mellkrersson rosenthal sy.But he don't sure.My e-mail address is ***@**** have this sick 1 years ago.What i can do?Please help me.I live in Yugoslavia and medicin is bed.I have 15 years.Write to me .
                 milos mitrovic
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What are the etilogy of melkersson rosenthal syndrome?
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242489 tn?1210497213
MEDICAL PROFESSIONAL
Claudette:

I am sorry,but that constellation of symptoms does not add up to anything with which I am familiar.I think you will need to consult a dermatologist.

Best,

Dr. R.
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