Maatson usually has good answers. If that doesn't pan out, I usually suggest people rule out food allergies when they have weird skin or digestive complaints. You could just stop dairy, nuts, soy. If that makes no difference, you could get blood tests for Celiac disease, even though you do not yet have symptoms in your small intestines by endoscopy.
You look like you are eating a lean diet with vegetables and not smoking already.
Hello, To me this looks like a case of 'panniculitis' and effort should be directed to rule out pancreatitis (chronic).
My GI has order the test for Celiac Disease, so I will know about that shortly as well. I have tried to vary my diet looking for food allergies but have yet to find any foods that may be causing any issues.
The abdominal ultrasound did show the pancreas to be normal as my dermatologist thought 'panniculitis' was a possibility. I have be referred to one of the leading dermopathologists now, so hopefully this can be figured out.
I hate taking pills so having to be on pain medication because the "holes" hurt so much is the worse part (and the medication is not as effective anymore). The number of "holes" are increasing so if anyone can think of anything that we may be missing I would love to know. The doctors are running out of options for tests, and still they are not sure of the cause. Furthermore, I will have the doctors review the tests done and see if something can be figured out.
To post an update, I was just diagnosed with non-systemic lupus. The ICD9 code given is 695.4 which is discoid lupus. Looking at pictures from http://dermnetnz.org/immune/cutaneous-lupus.html it appears that lupus profundus is more accurate. I have started another thread in regards to the question of the type, but I wanted to conclude this thread with the diagnosis.
'Lupus profundus panniculitis' Best wishes for speedy recovery
After looking at your histopathology report, despite the apparent clinical diagnosis, the firm diagnosis now could be placed on Discoid LE.Though both these conditions are known to co-exist(Children), there is no evidence of fat involvement in histopathology (the hall-mark of panniculitis).
Guess you should be happier with this diagnosis, since it is better controlled and a much better prognosis.
With my best wishes.
Thank you very much for you responses. I go for my eye exam tomorrow and then I start Plaquenil along with Locoid Lipocream. Hopefully with the treatment the pain will ease, and the soft "holes" will stop growing in size.