My biggest problems are the following:
My hair started falling out (I've always had long thick Hair) in April 2007. My doctor says to date, I have lost approximately 75%. In June 2007 woke up one morning and began to burn horribly in my throat. I already take PPIs for Acid Reflux, so I thought GERD was the problem. The burning never stopped from that day and still occurs everyday from about 10 a.m. until I knock myself out at night with Ambien. The burning is horrible. My GI doctor performed several endoscopies and said even though I have a Hiatal Hernia and reflux (only upright reflux -approx. 100 episodes during time spent in upright position and NO supine reflux) was present, it couldn't be acid making me burn because I take Protonix 2 x day. I can stave off the burning throat if I don't eat or drink, but when I do, no matter what it is, the horrible buring starts. The act of eating and swallowing soothes my throat, but as soon as I am done, the burning worsens.
A few months later, my scalp began to burn and my hair actually hurt. It feels like the weight of my hair is being ripped out of my scalp and after the burning episodes, which usually last 1-14 days, my scalp is very sore, like someone pulled me around by my hair. It seems like I lose more hair than usual during the burning episodes.I haven't been able to wear my hair in any style except down since this began because the pain is too much to bear. The dermatolgist told me I have Chronic Telogen Effluvium from whatever is making ill and the only way to stop it is to have someone diagnose my illness and treat it.
I also sometimes have burning upon urination, like a urinary tract infection, but none is present when tested.
In September 2007, I started having horrible Menstrual Migraines, lasting 304 days.
The only thing I can link the burning throat, scalp and hair loss and Menstrual Migraines to is that in March 2007, my PCP changed my Oral Contraceptive from Yasmin (been on for years with no problem) to Yaz. I don't know why, but she insisted. A few weeks later my hair began to fall out, I began to cry uncontrollably and have temper outbursts. I had horrible cramps and a very heavy period, both of which I have never had. I called PCP and have her change me back to Yasmin. Emotional symptoms cleared up, but burning throat, burning scalp and loss continued and worsens with each passing day. Menstrual Migraines still come every month and put me in bed for 3-4 days. I can deal with everything that is happening to me except the awful burning throat, scalp pain and hair loss. I am so miserable. My mother found this web site and sent it to me. she has been on her PC day and night for the past 1 1/2 years trying to find some relief for me. I have tried every home remedy out there. Doctors are telling me to learn to live with the burning, but that's very easy for them to say. They are not in pain 90% every passing day. I am at my wits end and will be grateful for any advice you can give me.
I don't know if these things are related, but I am very tired all of the time, I have chronic insomnia, my whole body aches. I am deficient in many vitamins, including Biotin (uncommon), B-12, Vitamin D and
Iron and have been taking them now for 2 + months with no change. I have a lesion on my kidney which is being followed for renal Cell Carcinoma (no change in 2 years), Pulmonary Nodules and Left Brain Lesion, all of which is thought to be harmless. I was injured at 13 and have herniated disks in Cervical Spine, (Occipital Headaches several times per month since injury in 1979) Thoracic Spine and Lumbar Spine. Spondylolosis and Disc Degeneration at L5-S1, and Degenerative Bone and Joint Disease. Numbness in tips of fingers on both hands and wrist pain (already had Carpal Tunnel Surgery in both). I sweat profusely, but am cold and clammy at the same time. I have also been having "hot' sweats lately.
Also, In 2005 everything changed and I became ill with what was then diagnosed as Pancreatitis. I do not drink any alcohol and my gallbladder ( healthy) was removed. Flare-ups have persisted and in April 2007 I became even sicker, which is why I am writing in. I have been to so many doctors and no one is able to diagnose me. The Pancreatitis is very painful. but I can live with it.
I know I have given you a lot of information, but the only things I am asking for help with are burning scalp and chronic hair loss. If I can get this pain to stop, I know I can go on and deal with the rest. The past 1 1/2 years of constant burning pain have really taken it's toll on me.
Thank you in advance for any help you can give me. God Bless!
Sincerely,
Tina
Interests: Burning Throat since 06/07, Burning Scalp since 09/07, Chronic Hair Loss since 04/07