Have you tried a shampoo with Ketoconizole? It works a lot better than coal tar shampoo for fungal infections. But in all honesty, you really need to see a doctor because from the symptoms you describe you will need a oral antifungal as well as topical treatment. Medication has to be determined by the type of fungus you have and that requires sample testing. You will feel a lot less anxious about what you are going through once you start taking action through a medical professional. Trust me, you will just drive yourself batty trying to manage this on your own.
Hi, going through this now and freaking out. Did you figure it out?
I've been dealing with this all year. I've consulted 2 internal med docs and 2 Dermatologists. I not only have the hair trapped under the sticky rubbery substance, much of the rest of my hair is stuck to my head but can be pulled up. I also have a white lacy coating on my scalp as well as red sore spots and some hardened white crusts.. In addition, I have super-weird things happen, like waxy bumps form and I can cut them open and a bunch of hair will come out, my hair will be weaved into a checkerboard pattern over my head superfast, or braided. If I mess with it, it pulls really tight. This happened during the first 4-6 months, not so much now. It feels like and looks like my scalp isn't my sctual scalp. I've felt at least 3 different surfaces, none of which are my actual scalp as I've had holes in my "scalp" where I can pull a bunch of hair thru it (sometimes feeling it being pulled back under). There's also been a pattern of circles of hair with a plastic-like coating (like a plastic 6-pk pop can holder) that adheres to my head; and plastic like bars that criss-cross thru the center of my crown all the way down and across my head as well as a a piece that feels like a steak bone but all of these are made from hair, including the different layers of "scalp". The problem is the only way to know any of this is to actually touch it. You can't just look at it and determine what is going on. I question whether there's a parasite under there though docs don't seem to think so.
The 1st Dr said to use lice treatment just in case and prescribed a topical steroid for inflammation and ketaconazole shampoo. Next I went to my PCP who said Alopecia but referred me to a dermatologist. While waiting for the 1st derm appt I bought a scalp detox shampoo. First dermatologist looked thru a lighted magnifier and said hair loss from trichotillomania but prescribed ketaconazole shampoo, antibiotic ointment and a different topical steroid both to be used 1x/day 5 days a week. At this point the majority of my scalp was a gummy substance that I couldn't remove. The first day of using her Rxs and my detox shampoo, the gummy scalp went away. However, NOT the stuff covering my hair at the crown and center hairline.
The 2nd derm just looked without anything and said Alopecia. Neither Dr would touch the spots to feel that it was different nor look at pictures that even slightly showed some of the weird things. This Dr prescribed 6 weeks of an oral antibiotic and antifungal, plus ketaconazole everyday, and a different topical antibiotic as well as topical steroid both 2x daily. It has been about a week since I saw him and it appears to be helping. I can start to feel the hair under the substance on the crown and can pull it out though it tends to go back.
I have tried Apple Cider Vinegar earlier in the year as well as different essential oils. I am going try Lemon juice/water to see if that gets rid of this.
I'm hoping that whatever this is, all these meds take care of it. I'm tired of obsessing over getting my hair out from under and being bald. It would be nice if doctors actually LISTENED to us.I get it, there's a pandemic but they act like they're afraid to learn anything new, or touch a person or look under a microscope. God forbid they take a SAMPLE !
Sorry for the long post but wanted to share my experience and weird symptoms.
If this treatment doesn't work, I'm going to a Hair Clinic.
I have the same white waxy scalp with it feeling like a helmet. I also get a white waxy grainy substance that sheets down my face , hairline to jaw. It leaves white this build up over my eyebrows, my top lip, corners of my mouth and if there is any break in my skin on my face, it will leak out of it. The substand feels like a mix of wax and baking soda and is bright white.
I’ve been search for an answer and all I’ve found is it must be tested properly with a deep biopsy of the scalp that must contain the entire hair follicle. Also check your eyebrows and see if there is redness or tiny little pustules.
I you have any other symptoms? Mental cloudiness, night sweats, blurry or double vision, loos of facial or body hair, hair texture gritty and loss of color, feeling of floating, dizziness, stuffy nose, sinusitis, thick while or clear discharge from sinuses, diarrhea and or constipation , itchy or painful scalp, spots in your mouth, white area on your tongue, cravings of sweets, surgery items, or alcohol?
ROPE WORM!!!! I think that might be the cause you guys!!!! Look it up!!
This is exactly what is happening to me
This is exactly what is happening to me
I’m losing my mind over this I went to my PCP and had test for autoimmune but was told I didn’t have that
I am experiencing these symptoms right now as well!. I have these black waxy hard strands on my scalp...my hairline looked like it was shaved off...my hair is twisting up in this weird pattern. When I come my hair...it snaps back down like elastic...I have also discovered this thin film coming my skin. Whenever I get the film off, hair is found underneath it. It is all on my face and when I rub what I thought where acne scars, turns out to be hair from my scalp on my face. I am freaking out and nobody believes me!
Sounds similar to my condition. Fly strike from large black fly, loud buzzing noise. Dealing w this and cannot get help from Dr’s. Would not even known this fly was in my hair if not found next day in my towel, after washing my hair. Dealing w this on my own, no help from physician’s. Even ER would not check my scalp, stayed across the room and this is unbelievable.
Same thing has been happening to me for 4 years ... hair twists and knots itself up on its own - I spend at least two hours a day trying to untangle my hair, some days I make it worse & some days I manage to untangle most of it however the moment I stop, move or sleep (sleep is the worst) is springs back up into a tangled mess ... I thought i was just balding however whenever I spend hours untangling I can clearly see my hair is still all there ... feels sticky, also wax coated & all my hair gets stuck in my face ... like a flat line from the top of my head to my neck, when it flares up it disfigures my face, makes me appear wrinkled and my skin is like orange peel ... then when it’s a good day the hairs stuck in my skin comes out (which you can feel when the hair lifts off the skin) and my hair starts to untangle .. then my hair tangles itself back up & gets trapped again in my skin ... quite literally everything you have all explained is the exact same with me ... I have been to 50 doctors, dermatologists & NONE of them have been able to help. They think it’s all in my head & even though there are thousands of us suffering the EXACT SAME BIZZARE symptoms they still refuse to see we are legitimately suffering.
I have lost everyone but my closest friend ... my family don’t believe me, work doesn’t understand ... It’s so lonely suffering so much while having to convince people you are not going crazy.
My hair twists and pulls so much my head is in agony, it twists my neck, shoulders .. I feel hair and debris in every inch of my body. I just want to look like me again.
Please someone help us ... I honestly can’t go on much longer, I just wish I could make someone listen .. I just don’t want to be here anymore
I've tried Albendazole (parasite stuff), but it doesn't seem to make too much of a difference. I got Dermarest Psoriasis, that seems to work better than anything else. Also a combo of rosemary, lavender, oregano and jojoba oil. Neem oil is great in general, as is triphala. Turmeric mixed with jojoba or coconut oils.
I was also prescribed doxycycline and some steroid, but would rather not use the steroid due to side effects.
As for scleroderma, that's a possibility, but not my issue, as I was tested for it earlier this year (different medical issue, though now I'm convinced it's all related).
Yes, the docs treating me like I'm nuts definitely sucks...