OP finally here ....
The last time i posted I wanted to make sure that my next post was a solution to get rid of this i was hopeful that i would of figured out a name and a treatment for this and refused to return empty handed . well That never happened and I nervously came back to read my post and let me tell you how god damn upset and horrified I am to see response after response page after page of identical stories and no name or cure just a huge question mark . I m in literal tears reading these comments and reliving the terror when this first happended and being able to feel the fear from all of you and the disbelief of this mystery disease . Im so sorry I dont have any miraculous story of a cure or it disappearing as suddenly as it started... I do have a better understanding of what this could be and how it could of happened . I dont know if my situation will be relevant but i hope you find something useful .
So when this first manifested I did nothing but research every possible skin and hair condition known to man . I read field journals of every medical fungal infection there is and parasites and rare or weird skin diseases . nothing matched with what I was dealing with . there were countless times when i thought i had it pinpointed and then BAM! It completely changed on me and manifested into something else . I literally had to dissociate from the reality of what i was witnessing my body doing because if i didn't i think i would of lost my mind . I had become 100% isolated I had lost all of my confidence and not to toot my own horn but I was a very attractive girl and now i cant even stomach to look in the mirror . my skin is disgusting and aged and covered in lesions . I have no eyebrows or eyelashes because they are covered in a thick film . I wear wigs every day because i have no hair . the hair i do have as of now is wirey dry and completely white or grey (im 30 btw) I buy 300$ human hair wigs every 3 months because whatever this is it eats holes in the lace of the wig and the hair becomes webbed together and literally has the life and color drained from it . it also seems to be able to animate the hair strands on the wig and i can watch them move around . mostly navigating towards my mouth or eyes or even a cup of whatever liquid im drinking, its disgusting! . I also have this film coating my actual eyeballs . inside my nasal cavity and my gums and teeth . its a nightmare and has destroyed every aspect of my life . So back to my constant web searches ... I did see one thing constantly come up and that was morgellons but I remember when this first started I only read a tad bit into it and was terrified of it and also was misinformed by the countless websites claiming it was a mental disorder not a disease . So I ignorantly avoided ever looking further into it. Till one day on a forum I saw somebody talking about the waxy film on thier skin like we all have and actually having a name for it they said it was called" biofilm" . After doing a quick google search of what was biofilm i fell down a rabbit hole and finally felt like i knew what i was dealing with finally . This did lead me to the dreadful morgellons disease but this time with actual information and not ******** . I seriously couldn't believe that this "disease" matched every symptom I had . I 100% say for certain that all of you girls are dealing with biofilm but I am not gonna say its morgellons . So biofilms are actually a colony of bacteria that resemble the slippery pond scum you find on a rock . so biofilms are a slime mold of sorts . they can be found in the bathtub or shower curtains or the bathroom sink . they also dwell in hospitals and medical devices. So biofilm is a nightmare to get rid of because it is completely resistant against any antibiotics , can withstand extreme heat and chemicals . biofilms are protected by a shield of that waxy film we get covered in , and the bacteria thrive underneath unaffected by any treatments because of thier impenetrable shield . biofilms can also mix with other bacterias and fungus which teams up to really wreak havoc on our skin and hair . So doctors are as of now becoming educated on biofilms but not enough to know how to destroy them . Biofilms are actually found in many different diseases infecting different areas of the body . One of those diseases being lyme disease where the biofilm infects externally as well as internally . Morgellons has also been heavily linked with lymes bacteria with 98% of morgellons suffers being positive for the lymes bacteria . Now I really found this info useful because I suffer from chronic lyme disease and have contacted lymes 3 times one time being so bad i was hooked up to a I.V all summer with a home nurse . since having lymes my entire life i suffer from a compromised immune system like everyone else . So I think the reason that I have been inflicted with this curse of a disease is because of a beaten down immune system especially after going through a very unfortunate event in my life and being at a very low state plus with a ton of stress on me and working insane hours every day . I believe my body was open to attack from a opportunistic fungus . then not to long after came in contact with biofilm from my grandparents old shower and the combination is causing my body to go nuts in an attempt as a response from my immune system and is causing insane amount of inflammation which in turn my skin is producing an excessive amount of keratin and that mixed with the biofilm and fungus is causing crazy symptoms . I also advised that you take a blacklight and look over your skin and hair and clothes . you most likley will see fluorescent blue hairs or bluish green ones everywhere . i know its not a official wood lamp like they use to detect fungal infections but primarily bacterias and fungals glow fluorescent under blacklights so that should be a big clue to what your dealing with .
So another thing I highly recommend is to immediately join the facebook group morgellons and mold . even if you do not believe you have morgellons join anyway because this is a community of thousands of people all over with identical stories and symptoms to us . I know how isolating this issue is and how it destroys your mind and makes you feel crazy and alone and like no one knows whats wrong with you , but i promise joining this group will help tremendously with those feelings . It has also been the biggest life saver when it comes to information . I have learned so much about this and also awesome remedies to help with the insane symptoms . Like cutting sugar and processed foods from your diet can help a ton . also soaking in the tub with sea salt , baking soda and borox mixture for an hour 3 times a week will literally start melting off the buildup of biofilm . Using liquid collidal silver topically over time has been studied in labs to be the only thing effective with breaking down the biofilms shield. Also Iodine SSKI works tremendously externally and internally to relieve the terrible skin issues and help fight it from inside as well . also one more recommendation . please look into the F.I.R.M protocol , i wont lie its very expensive but it is the number one thing recommended from suffers alike and has been known to keep symptoms away for years and possibly all together for some ...
Im really sorry i dont have a solution for all of you like I hoped but I hope some of what I said helps you in anyway finding out what the issue is and maybe how to get on top of it . I know the shoe wont fit for everyone but if all of you have the same symptoms as I do then hopefully the info helps you the same it did for me .
Also if any of you want to reach out for any reason you can email me at ***@****
Curious is this site just a forum or are there actually medical doctors reading these ,sitting back like were some weird experiment? It's called WebMD! Maybe someone empathic, knowledgeable doctor would find a cure and help milio s from this suffering. I do not think it morgellons because I do not pull threads out more like I am a sticky fly strip and all th crap in the air lint and dust velcro to my scalp and skin. Inflammation decrease and increase with excessive sebum and keratin oils layering up over time causing creasing which residue hardened and feel like a binding sensation. I do believe sugar and processed food is a huge part of it. I take no medications and I am deficient in vitamins D ,potassium and glucose levels are off. Hydration electrolytes are key. I bought a woodslamp and found pink coral dots on every follicle.
Same thing has been happening to me for 4 years ... hair twists and knots itself up on its own - I spend at least two hours a day trying to untangle my hair, some days I make it worse & some days I manage to untangle most of it however the moment I stop, move or sleep (sleep is the worst) is springs back up into a tangled mess ... I thought i was just balding however whenever I spend hours untangling I can clearly see my hair is still all there ... feels sticky, also wax coated & all my hair gets stuck in my face ... like a flat line from the top of my head to my neck, when it flares up it disfigures my face, makes me appear wrinkled and my skin is like orange peel ... then when it’s a good day the hairs stuck in my skin comes out (which you can feel when the hair lifts off the skin) and my hair starts to untangle .. then my hair tangles itself back up & gets trapped again in my skin ... quite literally everything you have all explained is the exact same with me ... I have been to 50 doctors, dermatologists & NONE of them have been able to help. They think it’s all in my head & even though there are thousands of us suffering the EXACT SAME BIZZARE symptoms they still refuse to see we are legitimately suffering.
I have lost everyone but my closest friend ... my family don’t believe me, work doesn’t understand ... It’s so lonely suffering so much while having to convince people you are not going crazy.
My hair twists and pulls so much my head is in agony, it twists my neck, shoulders .. I feel hair and debris in every inch of my body. I just want to look like me again.
Please someone help us ... I honestly can’t go on much longer, I just wish I could make someone listen .. I just don’t want to be here anymore
Have used everything from Apple cider to peroxide and in between for a year now. Have recently been putting povidone iodine 10% on my scalp. Just my own experience, it seems to help for the first time. I have a post here too. I believe there are many similar posts to mine w some additional problems. I believe Morgellions is real and also fungus infections of the skin that spread to scalp. I definitely know I have problems from fly strike in Texas. I have also waxy film on scalp plus noticed hard string like shapes too last few months. Yes this also seems to have spread to my ears especially behind my ear. This acts like fungus to me, spreading this way. I’ve been on Ivermectin to several lice and dandruff shampoo, w not much help, alcohol and peroxide too. The povidone Iodine now for a week, 2 time a day spot treatment. Some relief and seems help symptoms for me.
Morgellons and u have morgellons and u have it.. And u and u and yep u too. It gets better. Read and listen. Follow. Leave it alone. It acts alive if u mess with it
I've been dealing with this all year. I've consulted 2 internal med docs and 2 Dermatologists. I not only have the hair trapped under the sticky rubbery substance, much of the rest of my hair is stuck to my head but can be pulled up. I also have a white lacy coating on my scalp as well as red sore spots and some hardened white crusts.. In addition, I have super-weird things happen, like waxy bumps form and I can cut them open and a bunch of hair will come out, my hair will be weaved into a checkerboard pattern over my head superfast, or braided. If I mess with it, it pulls really tight. This happened during the first 4-6 months, not so much now. It feels like and looks like my scalp isn't my sctual scalp. I've felt at least 3 different surfaces, none of which are my actual scalp as I've had holes in my "scalp" where I can pull a bunch of hair thru it (sometimes feeling it being pulled back under). There's also been a pattern of circles of hair with a plastic-like coating (like a plastic 6-pk pop can holder) that adheres to my head; and plastic like bars that criss-cross thru the center of my crown all the way down and across my head as well as a a piece that feels like a steak bone but all of these are made from hair, including the different layers of "scalp". The problem is the only way to know any of this is to actually touch it. You can't just look at it and determine what is going on. I question whether there's a parasite under there though docs don't seem to think so.
The 1st Dr said to use lice treatment just in case and prescribed a topical steroid for inflammation and ketaconazole shampoo. Next I went to my PCP who said Alopecia but referred me to a dermatologist. While waiting for the 1st derm appt I bought a scalp detox shampoo. First dermatologist looked thru a lighted magnifier and said hair loss from trichotillomania but prescribed ketaconazole shampoo, antibiotic ointment and a different topical steroid both to be used 1x/day 5 days a week. At this point the majority of my scalp was a gummy substance that I couldn't remove. The first day of using her Rxs and my detox shampoo, the gummy scalp went away. However, NOT the stuff covering my hair at the crown and center hairline.
The 2nd derm just looked without anything and said Alopecia. Neither Dr would touch the spots to feel that it was different nor look at pictures that even slightly showed some of the weird things. This Dr prescribed 6 weeks of an oral antibiotic and antifungal, plus ketaconazole everyday, and a different topical antibiotic as well as topical steroid both 2x daily. It has been about a week since I saw him and it appears to be helping. I can start to feel the hair under the substance on the crown and can pull it out though it tends to go back.
I have tried Apple Cider Vinegar earlier in the year as well as different essential oils. I am going try Lemon juice/water to see if that gets rid of this.
I'm hoping that whatever this is, all these meds take care of it. I'm tired of obsessing over getting my hair out from under and being bald. It would be nice if doctors actually LISTENED to us.I get it, there's a pandemic but they act like they're afraid to learn anything new, or touch a person or look under a microscope. God forbid they take a SAMPLE !
Sorry for the long post but wanted to share my experience and weird symptoms.
If this treatment doesn't work, I'm going to a Hair Clinic.
I have the same white waxy scalp with it feeling like a helmet. I also get a white waxy grainy substance that sheets down my face , hairline to jaw. It leaves white this build up over my eyebrows, my top lip, corners of my mouth and if there is any break in my skin on my face, it will leak out of it. The substand feels like a mix of wax and baking soda and is bright white.
I’ve been search for an answer and all I’ve found is it must be tested properly with a deep biopsy of the scalp that must contain the entire hair follicle. Also check your eyebrows and see if there is redness or tiny little pustules.
I you have any other symptoms? Mental cloudiness, night sweats, blurry or double vision, loos of facial or body hair, hair texture gritty and loss of color, feeling of floating, dizziness, stuffy nose, sinusitis, thick while or clear discharge from sinuses, diarrhea and or constipation , itchy or painful scalp, spots in your mouth, white area on your tongue, cravings of sweets, surgery items, or alcohol?
Wish I could have answered you sooner. The following video explains the infection and describes a protocol to alleviate and even cure the condition. Listen carefully and take notes, nobody is going to help you fix this but yourself so be diligent. "2017 The End of Electronic Harassment Symptoms" on youtube by channel "lookoutfacharlie."
Greetings Fellow Sufferer,
I realize that it’s been over here since you posted disinformation and I’m not sure if you’ve already been able to treat it but it’s not, I received some amazing information from a very intelligent educated individual and I’m going to share the treatment options that was you it with me. This is by No means, to be considered a sure fire cure, since everyone is different & I am by no means a professional doctor or specialist.
Yes it’s just what I’ve done so far and have experience finishing in the affects my condition. I’m going to link a few things BELOW and you can do with it what you want with this information, I really hope that this works for you, as well for you as it has for me.
Wow, we need to talk. I don’t know that you’ll receive this message even, as maybe it’s cleared up by now… but I AM GOING THROUGH THIS AND NO ONE KNOWS WHAT IS HAPPENING. I’m on Month 10 of this dreadful experience that’s manifested itself in so many other strange isn’t even the word ways… I’d like to give you my email if you get this. Take care
Sounds similar to my condition. Fly strike from large black fly, loud buzzing noise. Dealing w this and cannot get help from Dr’s. Would not even known this fly was in my hair if not found next day in my towel, after washing my hair. Dealing w this on my own, no help from physician’s. Even ER would not check my scalp, stayed across the room and this is unbelievable.
So Im 27 F , & I have been dealing with this problem for almost a year. I actually went through an entire pregnancy while it progressively got worse.. my doctor used to pull me aside to ask if I was using drugs while pregnant, and I had never been so embarrassed and mortified. But I couldn’t blame her for asking, I looked awful! Waxy skin from head to toe that only seemed to get thicker after every shower. Red ulcerated lesions covered my arms, legs, and even my belly. Peroxide, apple vinegar, tea tree oil.. I tried them all!
And then my son was born and immediately we noticed that he had some white patches in his mouth. Asking the nurse of it, she says it was oral thrush (yeast infection of the mouth.)
I went home and thought nothing of it until a couple months later, we bought a humidifier to help the baby breathe. After a few days, my son’s whole body began to break out in red bumps and sticky skin. My own rash got even worse to where I looked like I had gotten extremely sunburnt everywhere. my boyfriend wrote it off as regular allergies, but I knew better. I began searching my home for whatever my sons skin was reacting to, and then I discovered mold scattered around here and there.
Immediately we all went to the doctors and I asked if it was possible that both our rashes were related. TMI, but He asked me if tended to have frequent yeast infections. Which I had had several through out my pregnancy..
He said that with pregnancy, my immune system was compromised, thus making me prone to any infections, especially fungal. And with mold in my home, it would’ve only amplified my infection by causing a yeast overgrowth covering my entire body. My son being born with yeast, as well as breastfeeding with constant skin contact, when we used that humidifier, it only applied our infections by creating moisture in the air. Systemic candidiasis.
I was given 1 dose of oral fluconozole. I bought a couple boxes of “Monistat: Vaginal Yeast Infection cream” and applied it after bathing to both of our entire bodies. His son cleared up in just hours. My own was a bit tougher to crack, so I also began taking daily AZO Yeast Plus tablets. After a week, my skin has calmed down tremendously. My hair looks slightly fuller, and still using apple cider in the shower, I now can feel the thick coating falling off my skin when I rinse. I’m almost hopeful that in a couple weeks, I might be my old self again.
Just thinking how most of us are women, and Yeast is far more common with us then men. Having fungus in your home, could very well make a fungal infection more severe. Hope this helps someone!!
Has anyone had any luck with this issue? You all have described everything I am going through for the past year and a half. It’s devastating. I’ve resorted to head wraps and am saving up for a high quality wig.
I was reading through this thread last night and it honestly put me in such a foul mood. To read that everyone else suffering with this weird issue received nothing but mockery from the medical community breaks my heart (it honestly feels like there is a spiritual aspect to it at times, like I’m under attack. I have definitely become Christian through out this whole ordeal). I stopped going to the doctor, because every time I went they didn’t even look at my scalp, they just prescribed me antidepressants and anti anxiety medication. I have felt suicidal with how much this mystery disease has disfigured me. I used to be beautiful and now I have this weird mullet hairdo. Anyways, I have found the salycilic acid works a bit, but high strength salycilic acid. The 2% or 3% found in shampoos and toners don’t do the job. I started buying, believe it or not, wort remover, it has 17% salycilic acid. I put coconut oil on my scalp (which is hard because my scalp is covered by the same kind of “net” you all talk about) I let the oil sit for 30 minutes, then I apply the wort remover and let it sit for 10. I will have this white sheet like papery substance fall from my scalp. I comb out what I can then I wash the rest off with warm water. Has it fixed my problem? No, but it is removing something. I’m sure it’s terrible for my hair, but at this point I don’t really care, I just want this crap off my scalp. I am willing to do anything honestly, I feel trapped and consumed by this mystery disease. Oh I also found the heat helps a bit, I will sometimes run a flat iron through my hair close to the root and it causes the wax to melt, but, per usual, it doesn’t get rid of it.
you are not crazy
Alkalized hair is the cause
Use acidic shampoo
Wash your hair and use conditioner everyday
use hair vinegar
I've tried Albendazole (parasite stuff), but it doesn't seem to make too much of a difference. I got Dermarest Psoriasis, that seems to work better than anything else. Also a combo of rosemary, lavender, oregano and jojoba oil. Neem oil is great in general, as is triphala. Turmeric mixed with jojoba or coconut oils.
I was also prescribed doxycycline and some steroid, but would rather not use the steroid due to side effects.
As for scleroderma, that's a possibility, but not my issue, as I was tested for it earlier this year (different medical issue, though now I'm convinced it's all related).
Yes, the docs treating me like I'm nuts definitely sucks...
I am experiencing these symptoms right now as well!. I have these black waxy hard strands on my scalp...my hairline looked like it was shaved off...my hair is twisting up in this weird pattern. When I come my hair...it snaps back down like elastic...I have also discovered this thin film coming my skin. Whenever I get the film off, hair is found underneath it. It is all on my face and when I rub what I thought where acne scars, turns out to be hair from my scalp on my face. I am freaking out and nobody believes me!
Have you tried a shampoo with Ketoconizole? It works a lot better than coal tar shampoo for fungal infections. But in all honesty, you really need to see a doctor because from the symptoms you describe you will need a oral antifungal as well as topical treatment. Medication has to be determined by the type of fungus you have and that requires sample testing. You will feel a lot less anxious about what you are going through once you start taking action through a medical professional. Trust me, you will just drive yourself batty trying to manage this on your own.
Your description is quite confusing and cannot come to a conclusion.
24 hours you are thinking about this and you are treating by yourselves. Stop sitting in front of a mirror whole night....go and meet a dermatologist.
Has anyone looked into pityriasis amiantacea? After years of researching scalp problems I just stumbled upon this scalp condition and it sounds oddly familiar to what I might have. However, I’ve had these thoughts before so who knows. Thought I’d share. Here’s the link to the article that I found https://www.consultant360.com/articles/what-are-these-thick-clumps-scalp-scales-binding-boy-s-hair
**** This is a bit all over the place, tired not in the mood to edit, the content is all there, everything you need to know is here, experiment/feel free to PM me! I want to help!! ****
Note (this isn’t about or not about Morgellons it works its way in there but more just for the sake of conversation. Maybe I have it but it turns out what it is is a “syndrome,“ brought on by what I explained. below. Just a way to get give something a name, what’s needed is the missing piece, an overgrowth/spiral of hair seems to be the missing link to the symptoms/ body loaded with word keratin/collagen activity.
Problem solved!!!! It’s hair! The major clue was it’s reaction to Nair!
The “Morgellons,“ fibers came flying right out of my skin. when I applied the Nair! I don’t know that everybody else but if The lesions/fibers etc. react to depilatory and your head is overgrown, it isn’t Morgellons, it would mean Morgellons is a bunch of bored housewives who just didn’t know what to think. I’m not saying it exists or if it doesn’t, I just know that I have all of the symptoms and what I explained below is what happened. If you know anything about engineering etc. or just basic science you can look online at some of the women’s experiments with the Morgellons hairs and you will see what the skeptics are saying. Then again the people who are making some of the videos and talking about it may not actually have Morgellons, it’s just something. Watch all of the stuff reacts to depilatory, make sure of include oxygen (moving around) and had a tiny bit of water. It doesn’t say to do that in the instructions but you got a mess of a little bit.
Unfortunately I am not a believer in more jealous, not in my case. If it reacts to NAIR (Or other depulatoratory, I like the Nair “face” formula the best) it is hair and byproducts collagen stomach breaking down and just growing and everything over the years. I gave her a message I didn’t say I have excellent hygiene and I don’t even have a beer, I am cocaine cut,“ I did have my hair in a ponytail and used pomade etc. but I was like 20 something, I think it locked down then and the pomade kept it down while it tightened up my regular hair continue to grow right through it.
Not “mostly,” “oo%,” “pretty much,” or “virtually,” solved… It’s fully solved. Mind you, there are residual effects incl. trauma of all most of then stuff you guys have listed- included is a 72 hour “voluntary” hold at a psyche hospital because of my “delusion”/”psychosis” involving a “scalp under my scalp,” (it was hyperbole not literal) I made the mistake in thinking that someone (most people) at the ER would have done idea about what I was complaining about- I honestly forgot what initially brought me the their.
It is HAIR!
. The way it reacted to Nair! was the giveaway. I’m a pilot and have a background in engineering- this was the biggest mystery of my entire life,
, it will take a few weeks/ month+, you want to work slow, and prevent irritation.
It’s ALL hair. Start with NAIR, it needs oxygen so make sure to Rob it in/use your nails a bit to reallly get it in there. The hair is a big SWIRL 10,20, 30+ year old swirl, MINE covered my whole body that’s the “slime” people are taking about. Your hair is oily after a week, a decade, lifetime will yield “waxy” (to say the least) yes you have been washing but you haven’t paid attention to the giant swirl that has/is continuing to twist on your head. For me it has been, overall, the most maddening, frustrating and simply life ruining/pausing evehts of my entire 45 years.
people who describe the “holes,” on the scalp, that is the center of the swirl. Nair, a bunch of high quality disposable razors, a high quality electric razor (with the screen not rotary, a VERY high quality WHAL/Andis brand buzzer. Start from the outside (margins) and work in. Around the ears, even onto the ear. Go way way outside the edge of your hairlines, like two inches.
Use the high quality “trimmer” abd grab a “buzzer” as well. The thing that finally worked for me was when I used the guides (start with the size #1, this way it doesn’t have to bite into it, you want the sharp/powerful buzzer to just be skimming the surface. However for the first cut just start from the front’ abd use the trimmer Rob bites into it, once you make a goood cut into it you with start to feel, the first of many, releases of tension yiu didn’t know was there.
It’s probably all over your body, don’t start low. Down on your body, if you cut into the “slime” (hair) on (for guys) your chest, it will get pulled up, perhaps around your neck (I felt pressure on the side of my neck, oh yeah that’s how I wound up in the ER, I thought I was getting strangled, it (the hair) settled/balanced out, felt pressure on my carotid artery so I freaked out. I figured it was better to save my life… A little bit of pressure around your neck can be pretty damn scary.
Oh by the way if you’re having some dental issues, look into this.
Look up “hair tourniquet,” and relation to
The damn thing wrapped around one of my teeth, I didn’t have a receding gum line, I had hair pulling, that’s just one of the many “highlights,” if you have suddenly started having some dental issues maybe even kind of symmetrical looking cuts into your teeth look into
DISCLAIMER: I AM NOT A DOCTOR. I HOLD NO CERTIFICATIONS FOR COSMETOLOGY NOR HAVE I WORKED IN THAT FIELD. THIS INFORMATION IS NOT INTENDED TO TREAT, CURE OR DIAGNOSE ANY DISEASE. I’M NOT RESPONSIBLE FOR ANYTHING THAT MAY HAPPEN AS A R LOLESULT OF TAKING TAKE MY ADVICE AS CONING FROM “JUST SOME GUY” TALKING ABOUT ANECDOTAL EVIDENCE.
THIS INFORMATION HAS BEEN COMPILED BY MYSELF OVER THE COURSE OF ROUGHLY 6 MONTHS. I’M NOT GOING TO BE DESCRIBING MY SYMPTOMS,AND EXPERIANCED THEY ARE YOURS.
NEVERTHELESS HERE IS A “HIGHLIGHT” OF MY EXPERIENCE- THIS WILL CERTAINLY LET YOU KNOW I’M PART OF THE “CLUB.”
AS I WAS FIGURING EVERYTHING OUT/TRIAL & ERROR I WAS BRIEFLY HOUSED IN NYC’S FAMOUS BELVUE PSYCHIATRIC HOSPITAL. I HAD COME IN WITH CHEST TIGHTNESS
WITH MY NEVK BEING SCRAPED UP FROM A RAZOR AND “RAMBLING” ABOUT “HAIR UNDER MY SCALP. I WAS “VOLUNTARILY” (TO PREVENT INVOLUNTARY i.e. COERCION AND INTIMIDATION) (COMMITTED FOR BEING “PSYCHOTIC. I MADE A STUPID BUT PURPOSELY NON THREATENING COMMENT.”
(Caps got annoying,,for all of us I’m sure)!, just wanted to use them for the “disclaimer”)
Anyway I was having chest tightness (anxiety), this was from my overall level of angst being through the roof. The fact is when you are being inadvertently “gaslit” by literally everyone you can certainly question your sanity, you think “maybe I really am ‘crazy,” you’re not.
Ok so what is it?
OK SO HERE IS HOW TO FIX IT:
It is a tangle of VERY VERY fine “vellus hairs.” They have fused/keratonized over many, maybe most of your life.
Did you ever have dreads?
Super tight braids?
A tangle of some sort that was so tight it just kinda became “part of your scalp,” it was tied down in the back, top, everywhere. It made it so tight I couldn’t even tell that it was there, my hair was (I don’t know how) growing through it.
When I shaved it off, it extremely hard to start the buzzer. When I thought it was done I would discover an other layer like a week later . The hairs looked like they were my “scalp” because the invisible, Vellus hairs intertwined and just kinda held everything in place, the whole thing was very close to flesh tone.
Mine started off with what must have been 20+ years of tangle. The hair tied itself down to my scalp in an in credibly intricate way. Like two spirals If you take a tweezer and grab some of does it move around like a weird solid but not go anywhere?
So essentially this is your hair with a decades old literal network of Vellus hairs holding them together. The hairs are super soft and fine so they just kinda stay in place. In the places they are woven down side by side they look like a solid wax.
Ok so HERE is how to fix it. So here is what you need to get all off!
• NAIR (the magic ingredient!) the “face” variety is more gentle on your skin, you can try different depilatories if you wish, but this is what I used.
• A HIGH QUALITY BUZZER, the “Whal Peanut,” or better. We want it sharp and precise, it’s just better this way,
• A HIGH QUALITY ELECTRIC RAZOR, the kind with a screen (not the circles or whatever) I like Braun.
• DISPOSABLE RAZOR W/plenty of extra blades. The Gillette “Fusion Sensitive” was ideal for me. You want everything to be as
non irritating as possible.
• SHAVING CREAM
• VASOLINE (to provides lunrication for getting out knots)
• CORTISONE CREAM(make sure to use very little, if you have/get strong Rx cream and you put on too much it can literally make you jittery/heart race. Like everything else I learned “the hard way.” In that case I used soap and water, washed it off and took a Klonipin or Xanax (get some).
• A “TWEEZER MAN” SLANTED TWEEZER (keep it clean with Alcohol so it grabs better)
• A “TWEEZERMAN” pointed tweezer, I really liked the (unusually shaped) “splinter model.”
• “TEND SKIN” you will be using this to remove the ingrown hairs on the margin.
First, if you haven’t you need to shave your head, just do it. The good news is that the “bald spots” will be revealed as exactly what they are- hair. It’s all hair.
OK, because you are dealing with hair, and pretty much only hair you will be dissolving it with -NAIR- this will be a wonderful moment. You should work from the edges up, this way you won’t mess up the “ballance.”
The balance is very important if it is super tight, that’s how mine “plastisized,” (seems like a good name) it will pull on one side and maybe even feel scary on your neck. Remember you may have slot of ingrown (white) hairs around your neck, expose and get rid of these with the Nair and razors. If you have these they came from tiny hairs collecting over the years, they traveled down your body with sweat/gravity and got into different creases and seem to have hardened with something. That’s what I came up with.
If they are around your neck/shoulders it is way more important than your head. Slowly get rid of it, get help from somebody who has a better feel for this type of stuff if you don’t get it. Remove keep it balanced, this includes the back. DO THIS SLOWLY! ANYTIME I WENT TO FAST/CARELESS (mostly during trial and error) something put pressure around my neck and I (nearly) panicked. Keep your high quality, buzzer, shaver and blades at the ready.
These hairs are acseoerstr issue but if the overgrowth/knowingness got to this level on your head it is probably doing stuff elsewhere. Put a small amount of Nair on your chest (sweat runs down your chest). If there are a lot GET HELP from a Dr. take video etc.
The ingrown hairs around your neck is one of the places where the electric razor will help out. If it got this tight around your head for the tight spouse then use the electric razor to slow log and carefully even it out, If this is your case it will take practice.
So for your head, a put some Nair in the small area you are ready to talkie.,work in small patches from the margins up. For example 2 inches up left side burns then 2 inches right sideburn.
The Nair will immediately expose and remove hairs, follow the instructions, move with a hot towel etc. You will then see the hair get kinda “crisp” (I hate that word) this will just keep happening.
So as the hair hardens/gets crispy or whatever this is where your choice of razors comes in. Just keep Naring and removing, slowly,
Use the other stuff as you see fit. The powder is to put all over yourself if it gets tight around your neck while wet, it will loosen it a bit. Again because this comes from hair that got tight that didn’t know about, the ingrown (mine were thick and white) are prob part of it.
Remember, your scalp has been covered for a long, maybe very long time. Get it checked by a Dermatologist, oh avd here is a tip. Just show the doctor(s) your symptoms, let them figure it out. Don’t mention the waxy feeling, they are wearing gloves and it will just add to their BS.
Hope this helped. Good Luck!
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I’m not asking for money but if this info saved you the way it did for me, feel free to send me some. II would have paid anything for this info and I could really use some help with med. etc. expenses. Again I’m not selling medical advice, but if my story inspires you to lol :-)
I’d really really appreciate it!
Feel free to use that email to say hi if you wish, I’d love to hear how this worked for you.!
Please I fear this is going to kill my partner and myself. Suffering from this exact same symptoms I have had to cut
All my hair off including my scalp (I am female) it grows back black and thick and matted together and stuck under this waxy transparent like film I have felt sick physically now for around 10 months it started with loss of some of my eyebrows and lesions appearing to full blown lesions no eyebrows just now block dot like hairs that grow back all drs miff us off make us feel like we are crazy it’s deformed my partners neck with scarring from lesions and giant hairs that come from seemingly no where and black thick hairs that fight to stay In with large black gooey bulbs some even look like legs of bug burrowed in I can’t explain it alls I know is it’s killing us and I don’t know what else to do this is emotionally killing me and my partner also we don’t want to hardly leave the house because of fear of spreading whatever this is and or someone noticing and assuming we are just crazy or druggos which we aren’t neither off I wish it was something that simple then we could get help and get better! With this I see a bleak outlook and I’m scared. Tired. Drained I have disabled child who needs me and I’m scared of what this could do if affects other people close to me please someone help
…..It’s been over a year since you posted this and I’m hoping that you’ve already heard it but if you’re still battling with it, I think I might have the answer to your question so what’s going on with you!